Barry needs our help fighting ALS!

$14,122 of $50,000 goal

Raised by 175 people in 49 months
BIO

For almost 38 years of his adult life, Barry Lavery taught

photography/photojournalism at the Art Institute of

Pittsburgh. His teaching was marked by a dogged faith in his

students and dedication to them. Many of his students went on

to successful careers in all areas of professional photography,

but that was not his main goal. “I don’t teach photography as

much as I try to instill a sense of looking at the world and

oneself in a way that creates the kind of person that students

want to live with for the rest of their lives. If they learn about

the processes and techniques of photography along the way, all

the better.”

During that time he also did social documentary work while

exploring the streets and generally hanging out in Havana, Port

au Prince, New York City, Rochester, N.Y and, of course,

Pittsburgh. In the backwaters of those cities he met

photographers Milton Rogovin, Nathan Lyons, Danny Lyon,

Ralph Gibson, Jill Freedman, Eddie Adams, Arnold Newman

and Timothy Greenfield Sanders, as well as friends of late

writers and artists like Ernest Hemingway, Jack Kerouac, and

Wilhelm DeKoenig. His teaching was peppered with stories and conversations from those meetings.

After retiring in 2005, Lavery turned to another great love,

Nature. He worked as a volunteer, rehabilitating injured and

orphaned wild animals and photographing both flora and

fauna, especially his favorites, the raptors. Traveling, usually

with his wife, Katyna, he explored deserts of the Great Basin

and Sonora in search of species of interest including the

Mexican grey wolf and the Ferruginous Hawk.

In August of 2014, he underwent routine back surgery. A

month and three emergency surgeries later he awoke in a

rehabilitation/ recovery center in Oakland. There, with the

support of family, he relearned how to walk, speak, breathe

and try to remember what had happened to him. In the process

he received a new diagnosis: ALS or Lou Gehrig’s disease, an

incurable and fatal disease. He presently lives, wheel chair and

oxygen dependent, at his home in Pittsburgh, under the loving

care of his dedicated and heroic wife, Katyna.

OUR FINANCIAL NEED

Barry needs care 24/7 and Katyna supplies most of it. Professional nursing care cost (4-5 hours/day) - $1200/week.

Medicine, supplements, and and medical equipment - $200/week.

Transportation (wheel chair van) - $200/month.

Generator - $13,000. 

We recently spent $8,000 to do some minimal fixing of major cracks in the house so that we could maintain heat. 

SCDs to prevent blood clots in his legs - $1800.00

Housing:  
When they bought their house 9 years ago, Barry fell in love with it and said that "This is the house i want to die in." Now they struggle to meet mortgage payments. The house is equiped with an emergency generator for the frequent black-outs in their neighborhood, and a long ramp installed by the ALS foundation to get Barry out of the house and into a vehicle or for a wheel-chair stroll around the neighborhood. They are fighting to remain in the house for the rest of Barry's life (doctor's estimate = 1-2 years; Barry's estimate = 3 years; Katyna's determination = 5 years). To pay for nursing and maintain paying where we live, it is costing 11,000/month. If we were on welfare, the nursing would all be paid for. Medicaire pays for NO long-term care, whether at home or in a nursing facility. So far, the agencies we have reached out to have not helped. This can happen to anyone, and if you are a normal person who has worked all of your life, there is no safety net.

We are grateful to the ALS Chapter of Western Pennsylvania who provided a wheelchair ramp, a motorized wheelchair on loan, and a small nursing grant. 

And we are forever grateful to all of you have found it in your heart to contribute. You have no idea how much it helps  to know some people care.

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Barry is currently in the hospital. He had a small pulmonary embolism. Any prayers are appreciated. We will never forget those who have helped.
Katyna Lavery
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To all those who have cared about us:
Barry is now fighting pneumonia, and consequently must be weaned off of a vent again, which is a slow tedious process. Any prayers are appreciated. We will never forget those who have helped.
Katyna Lavery
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Dear fellow friends and supporters,
Please know how much you are helping now. We have run out of funds to pay for nursing and are waiting for Medicaid, which is quite a long, expensive, and frustrating process. Everything goes toward this purpose. Thanks to all who have been generous. We are deeply grateful.
Barry
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To those of you who gave last month (or before!) or came to our fundraiser, thank you so much for your support and generosity. It is what keeps us going. All or your donations go toward paying for Barry's medicine, respiratory care, and caregiving (which is 6000/month). It gives us hope that people care:)
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Read a Previous Update
Deb Deb Schell
46 months ago
1
1

I'm so sorry to hear about this. Barry was my favorite teacher at AIP and was inspirational in my career. I am hoping he gets the help he needs.

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$14,122 of $50,000 goal

Raised by 175 people in 49 months
Created January 18, 2015
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Mary Hennessey
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26 months ago
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Mary Hennessey
26 months ago (Monthly Donation)
Deb Deb Schell
46 months ago
1
1

I'm so sorry to hear about this. Barry was my favorite teacher at AIP and was inspirational in my career. I am hoping he gets the help he needs.

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