Joshua Burns Adair

£39,095 of £100k goal

Raised by 1,686 people in 55 months

Hi my name is Joshua I was diagnosed with Jeunes Thoracic Dystrophy at birth, I have been to Great Ormond Street for to operations to enlarge my chest as it was very small due to having Jeunse. I will be 5 in june, I have been having problems with my tummy bloating up and it caused me to go in to shock a couple of Saturdays ago and i nearly died but the paramedics got me back. I am a very happy and giddy boy and love life to the full. After having this episode on the Saturday I have been told by the hospital that there isnt anything else that they can help me with as they dont have the resorses in this country. My dad has found a hospital in america that could help me but it costs a lot off money that my mum and dad dont have, so I am asking for everyone out there if they could possibly help so that i can have a chance to live a long life with my loving mum and dad, I would be greatfull for any small donation as it will all count. Thank you for reading my story and I hope in your heart you can help. Love Joshua.
You can also Google joshua's full name and you will get the full story of of his brave journey.

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 1.6K total shares
Update 11
Posted by Mark Adair
3 months ago
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Little Joshua has been accepted for the operation in America but we have been given a run down of prices know for the operation and the first to parts are going to cost 1.5 million so my £100.000 won't go very far. Please keep helping as I now have my work cut out to get Joshua the operation he needs. Thank you to everyone that has donated so far.
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Update 10
Posted by Mark Adair
10 months ago
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Massive thank you to all the Rangers supporters for there amazing help and support
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Update 9
Posted by Mark Adair
11 months ago
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We are know trying to raise enough money to take Joshua to America as we can't get any more help in the uk. So please donate and help this fabulous little boy get the most out of his life.
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Update 8
Posted by Mark Adair
39 months ago
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Not been on for a bit. Joshua is doing really well after having his second chest expansion. Now sitting up on his own and trying to crawl after being told he never would. Such a amazing little boy.
Someone nearly crawling.
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 1.6K total shares
Read a Previous Update
Amy Lou Ververis
13 days ago

Our little girl Lilah has had genetic testing done were still awaiting the results but they think she has Jeunes Syndrome it's heartbreaking and there is not much information out there to look into are there any support groups out there? May God bless your handsome guy Joshua I pray that your able to raise enough money needed for your target much love and comfort being sent your way

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Isabel Clapham
4 months ago

Another hospital in the US: http://www.seattlechildrens.org/medical-conditions/chromosomal-genetic-conditions/jeune-syndrome/

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Colin Angell
4 months ago

I play in a Soul & Motown Band )Black & Gold) which is probably the best in the northwest, WE would be willing to put on a show for Joshua. If you are interested please call me on 07961-940976

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Rachael Wood
5 months ago

I really hope you reach your target. As a fellow Jeune patient this struck a very personal chord x

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£39,095 of £100k goal

Raised by 1,686 people in 55 months
Created August 21, 2012
BM
£10
Bluegenebop Rangers Media
21 hours ago
TA
£5
Taylor Anderson
4 days ago

Hope you reach your goal soon

DS
£20
David Spencer
5 days ago
JR
£20
JC10 RM
6 days ago

All the best JC10

GR
£20
gmcf RM
6 days ago

All the best Josh.

£30
Anonymous
6 days ago
SB
£5
Shaun Brown
7 days ago

brave wee soldier, god bless him and his family

NT
£20
Neil T
7 days ago
CH
£25
Craig Horsfield
8 days ago

Keep fighting Josh....

JG
£115
John Galbraith.
8 days ago

The remainder of the Old Firm 'Bonus Ball' ticket funds from RangersMedia - ref K.A.I.

Amy Lou Ververis
13 days ago

Our little girl Lilah has had genetic testing done were still awaiting the results but they think she has Jeunes Syndrome it's heartbreaking and there is not much information out there to look into are there any support groups out there? May God bless your handsome guy Joshua I pray that your able to raise enough money needed for your target much love and comfort being sent your way

+ Read More
Isabel Clapham
4 months ago

Another hospital in the US: http://www.seattlechildrens.org/medical-conditions/chromosomal-genetic-conditions/jeune-syndrome/

+ Read More
Colin Angell
4 months ago

I play in a Soul & Motown Band )Black & Gold) which is probably the best in the northwest, WE would be willing to put on a show for Joshua. If you are interested please call me on 07961-940976

+ Read More
Rachael Wood
5 months ago

I really hope you reach your target. As a fellow Jeune patient this struck a very personal chord x

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