Friends for John Aspra

$33,385 of $100k goal

Raised by 159 people in 25 months
John Aspra
on behalf of Michelle Ando
 SANTA BARBARA, CA
Friends of John Aspra
It's be hard to believe that anything could take down our strapping friend John Aspra, but he was recently diagnosed with Brachial Amyotrophic Diplegia – a rare form of Amyotrophic Lateral Sclerosis (ALS) or Lou Gehrig’s disease.  For over a year, John’s been seeking a diagnosis for troubling symptoms.  Because there is no single diagnostic test for ALS, a definitive diagnosis can take many months.  John's doctors are continuing with tests and observation to refine his particular variant of ALS even further.  Motor neuron disease is not well understood, but unfortunately the progression is irreversible.  As of now, John is experiencing progression of the disease.  The accumulated medical costs have been devastating.

The bummer facts:
ALS is a progressive and terminal neurodegenerative disease affecting brain and spinal cord nerves and pathways.  In the case of Brachial Amyotrophic Diplegia, symptoms include muscle wasting and paralysis of the arms, and eventually difficulty speaking, swallowing and breathing.  The average life expectancy is three to five years from the time of diagnosis.  John has officially been declared disabled by his neurologists, and is facing such issues as managing current and ongoing rent payments, utilities, medical treatments not covered by insurance, co-pays, insurance deductibles, IVIG therapy, physical therapy, occupational therapy, home health assistance, and eventually assisted living.   It costs an estimated $200,000 a year to provide the care an ALS patient requires.

I’ve been lucky enough to call John my friend for far less time than a lot of you out there.  He beautifully and thoughtfully presided over my marriage.  He is an amazing and hardworking chef, from his taco bar behind O’Malley’s to the Rancheros and his brush with fame and other adventures as the Epicurean Cowboy!  His annual Fiesta Pequeña party has been a fun-loving and joyful 20 + year Santa Barbara tradition where John went out of his way to make everyone feel welcome.  To me, he is a supportive man willing to go out on a limb for anyone he considers a friend.   I know that John has gained a wide net of friends both near and far—his huge heart connects us all with his enthusiastic joie de vivre and benevolence. 

“We're not here for a long time, we're here for a good time!” J.A.

Our Opportunity:
We have an amazing opportunity to show John our love and support.  The funds raised will broaden his ability to pursue available treatments and maximize his quality of life with less financial strain.  It will give him the means to pay for ongoing medical and living expenses, skilled care, and the freedom to enjoy time with his devoted friends and family.  Let's come together and be a player in his journey so that John can carry on with the passion and zest for life that we all love and admire.

Support One, Support Many:
John is not alone.  Ultimately, consider your gift as paying it forward to other patients struggling with ALS.  While there is lack of sufficient funding and research for ALS in general, there is even less for John's variant of ALS.  Over time, each patient uniquely contributes to the growing database and pool of knowledge, helping to bring greater awareness and hope for effective treatments.  

ANY donation is appreciated.   
Thank you for your support and prayers
–  Michelle Ando

To learn more about ALS please visit:  http://www.alsa.org/
+ Read More
Update 5
Posted by Michelle Ando
24 months ago
   Share
2
2
'Living our Dash "
John asked me to post this to all:

Please enjoy The Dash poem written by Linda Ellis.
​This poem has been enjoyed by millions around the world. The words have changed many lives. They could change yours, too…

​The Dash
by Linda Ellis copyright 1996

​I read of a man who stood to speak
at the funeral of a friend.
He referred to the dates on the tombstone
from the beginning…to the end.

He noted that first came the date of birth
and spoke the following date with tears,
but he said what mattered most of all
was the dash between those years.

For that dash represents all the time
that they spent alive on earth.
And now only those who loved them
know what that little line is worth.

For it matters not, how much we own,
the cars…the house…the cash.
What matters is how we live and love
and how we spend our dash.

So, think about this long and hard.
Are there things you’d like to change?
For you never know how much time is left
that can still be rearranged.

If we could just slow down enough
to consider what’s true and real
and always try to understand
​the way other people feel.

And be less quick to anger
and show appreciation more
and love the people in our lives
like we’ve never loved before.

If we treat each other with respect
and more often wear a smile,
remembering that this special dash
might only last a little while.

​So, when your eulogy is being read,
with your life’s actions to rehash…
would you be proud of the things they say
about how you spent YOUR dash?

​Copyright 1996 Linda Ellis
ALL RIGHTS RESERVED
This copyrighted material may not be reproduced, reposted or distributed.
Living our Dash
LIVING OUR dASH
+ Read More
Update 4
Posted by Michelle Ando
24 months ago
   Share
From John this AM:

Hello everyone, I have struggled with this fundraiser and this public announcement of my dilemma, to say the least. The whole process is very humbling.
I do however want you all to know how greatly I appreciate all that you've done, all the phone calls, well wishes, and of course the hard-earned money that so many of you have graciously donated.

If nothing else it is taking a huge burden, a mental burden off of my shoulders, I don't know how many of you may know it but I have not been able to work since about January. I like to tell people that with
"Tongue in cheek", my vanity has kept me going up to now. But my vanity is wearing very thin.

To everyone I thank you from the bottom of my heart. I hope to see all soon at our Annual Fiesta soiree in August.

Love to all, and again thank you.
John Aspra at Fiesta Pequeña party
John Aspra
JOHNS ASPRA with his Cowboys
+ Read More
Update 3
Posted by Michelle Ando
24 months ago
   Share
1
1
Friends of John Aspra it is Michelle Ando:

As we have disclosed several days ago our friend John Aspra, has been recently diagnosed with Brachial Amyotrophic Diplegia – a rare form of Amyotrophic Lateral Sclerosis (ALS) or Lou Gehrig’s disease. As of now, John is experiencing progression of the disease and the accumulated medical costs have been devastating to him.

We have an amazing opportunity to show John our love and support. The funds raised will broaden his ability to pursue available treatments and maximize his quality of life with less financial strain. It will give him the means to pay for ongoing medical and living expenses, skilled care, and the freedom to enjoy time with his devoted friends and family. Let's come together and be a player in his journey so that John can carry on with the passion and zest for life that we all love and admire.
Support One, Support Many:

John is not alone. Ultimately, consider your gift as paying it forward to other patients struggling with ALS. While there is lack of sufficient funding and research for ALS in general, there is even less for John's variant of ALS. Over time, each patient uniquely contributes to the growing database and pool of knowledge, helping to bring greater awareness and hope for effective treatments.

ANY donation is appreciated. To help go to http://www.gofundme.com/John-Aspra

Thank you for your support and prayers – Michelle Ando
John Aspra out on the Range
+ Read More
Update 2
Posted by Michelle Ando
24 months ago
   Share
1
1
Follow Friends for John Aspra Facebook page
by clicking link below:
https://www.facebook.com/CowboyUpforJohnAspra
Friends for the Epicurean Cowboy
+ Read More
Read a Previous Update
Mike Davies
21 months ago

SO SAD TO HEAR THIS JOHN MY PRAYERS AND LOVE GO OUT TO U IF ANYONE CAN BEAT THIS ITS U BRO PEACE AND LOVE MIKE DAVIES

+ Read More
Johnny Aspra
24 months ago

That my vanity has kept me going, my vanity is wearing thin, to all, I thank you. I hope to see you all soon at our annual fiesta soiree in August. Live to you all, and thank you..

+ Read More
Johnny Aspra
24 months ago

Hello everyone, I have struggled with this fundraiser and this public announcement of my dilemma, to say the least it's very humbling. I do however want you all to know how greatly I appreciate all that you've done, all the phone calls and well wishes, and of course the hard-earned money that so many of you have graciously donated. If nothing else it is taking a huge burden, a mental burden off of my shoulders, I don't know how many of you may know it but I have not been able to work since about January. I like to tell people with " tongue in cheek" ,

+ Read More

$33,385 of $100k goal

Raised by 159 people in 25 months
Created April 9, 2015
John Aspra  
on behalf of Michelle Ando
RP
$100
robert priday
16 days ago
RP
$100
Robert Priday
18 days ago
RP
$100
Robert Priday
1 month ago

Keep on keeping on

RP
$100
Robert Priday
3 months ago
JQ
$75
Jackie Quinn
4 months ago (Monthly Donation)
RP
$100
robert priday
4 months ago
JQ
$75
Jackie Quinn
5 months ago (Monthly Donation)
LD
$50
Lisa Abreu Davis
5 months ago
RP
$50
Robert Priday
5 months ago
$5
Anonymous
5 months ago
Mike Davies
21 months ago

SO SAD TO HEAR THIS JOHN MY PRAYERS AND LOVE GO OUT TO U IF ANYONE CAN BEAT THIS ITS U BRO PEACE AND LOVE MIKE DAVIES

+ Read More
Johnny Aspra
24 months ago

That my vanity has kept me going, my vanity is wearing thin, to all, I thank you. I hope to see you all soon at our annual fiesta soiree in August. Live to you all, and thank you..

+ Read More
Johnny Aspra
24 months ago

Hello everyone, I have struggled with this fundraiser and this public announcement of my dilemma, to say the least it's very humbling. I do however want you all to know how greatly I appreciate all that you've done, all the phone calls and well wishes, and of course the hard-earned money that so many of you have graciously donated. If nothing else it is taking a huge burden, a mental burden off of my shoulders, I don't know how many of you may know it but I have not been able to work since about January. I like to tell people with " tongue in cheek" ,

+ Read More
or
Or, use your email…
Use My Email Address
By continuing, you agree with the GoFundMe
terms and privacy policy
There's an issue with this Campaign Organizer's account. Our team has contacted them with the solution! Please ask them to sign in to GoFundMe and check their account. Return to Campaign

Are you ready for the next step?
Even a $5 donation can help!
Donate Now Not now

This campaign needs your support

Any amount helps!
Donate Now
Connect on Facebook to keep track of how many donations your share brings.
We will never post on Facebook without your permission.