Joey's Mental Health Recovery Fund
After spending two weeks in a psychiatic hospital in Hong Kong, Joey was transferred to a treatment facility in Ohio called the Lindner Center for Hope. My parents spent the month of February by his side as they lived in a hotel. This has been going on since early January and his condition progressed rapidly.
Last week he was transfered to a long term facility in Tennessee at the recommendation of his doctors. This will be a very long process for our family as this is a life long diagnosis that will require constant care, treatment and attention.
You may not be aware of the significant cost of mental health care in the United States for such a diagnosis, and neither was I. The Lindner Center for Hope costs $19,500 for just ten days. Pasadena Villa, where Joey is now in TN, will cost over $25,000 a month and Joey will likely have to stay for a minumum of three months. After this time we still don't know how long it will take for the medications to be effective or what will be the next steps.
Anyone who knows my mother and father knows that they are some of the most generous and caring people you will ever meet. They fill the lives of others with so much love and support and they deserve the same, especially in such a difficult time. They constantly go above and beyond helping those around them in whatever way they can. My parents have done tremendous things to promote STEM education and they have encouraged so many people to get involved in the Maker Community throughout the years. My brother and I have been fortnuate to experience this firsthand. As their daughter, I only hope to be able to give as much support in return as I have always received from them. I am aware of the finacial toll this has had on my family and I am hoping that you can help lessen the burden of this unforseen financial hardship.
Any funds received in excess of those needed for Joey's treatment will go to helping other families in similar situations.
My family really appreciates any help you can provide - financially and through your caring thoughts.
My brother has lived with schizophrenia for the past 17 years. I started Partners for StrongMinds, a nonprofit that connects young people to early intervention treatment for psychosis. Comprehensive early treatment programs have a 20+ yr history of evidence behind them overseas and are now spreading throughout the U.S. following a large, successful NIMH trial of these programs that wrapped in 2015. There are a few new programs offered in AZ - please check them out and let me know if I can help. http://strongmindsproject.org/get-strong/find-help/ I know how hard it can be to support someone in these early stages. There is so much hope for recovery, especially if he is able to get high quality, compassionate care right away. I am happy to support in any way I can. My very best to you, Chantel
I hope the best for your brother. As a maker, engineer, and patient diagnosed with a psychotic disorder who has recovered significantly -I'd encourage your family to consider the option of community based rehabilitation rather than residential facility if your Brother's behavior allows it. Recovery takes significant time, and it's no joke that recovery begins at home.
Elizabeth, read the Wash Post story. Very sorry to hear. I don't know if your family knows about the Natl Alliance on Mental Illness (NAMI) www.nami.org. They don't offer financial support, but can be helpful in other ways with information and, support. There's a NAMI Tennessee office in Nashville and local affiliates around the state in case they need local advice, networking, etc. http://www.nami.org/Affiliate?state=TN. Hang in there.
Please apply for Social Security Disability/Medicaid (while still possible) for this young man as soon as possible to get him access to necessary medical, and other needs, and also to protect him and the family financially. According to SSA, schizophrenia is the second most disabling condition, and he should be accepted immediately.
I wish I could help out financially but I can't do that. I can say that I know how your family feels... my son has been down this same road. It's not an easy journey and I learned early on that I could only walk with my son... at the end of the day I could leave and go home- he stayed in those shoes every minute of every day and night. My son was 10 when he was officially diagnosed and our walk lasted many years. Please, as soon as your brother is stabilized on meds and his behaviors are stable I encourage you to get him out into the community as much as you can and as soon as possible get him out of the institution and back into some family type of living situation. It may not be at home, it may be in an adult assisted living home... but with rehab services available he can work and continue his STEM activities and that will all go towards his recovery and stabilization. My heart and thoughts are with you all- sending white light and positive energy for healing and strength!
Please help this family! My son, now 24 is a schizophrenic. All was well until he was 20 then it happened with no warning. He has been in 2 treatment facilities for a period of 13+ months and has been receiving psychiatric and psychosocial therapies as well as seeing a LCSW/coach at home to support his everyday living. All cost me well in to the $300,,000 + range and is ongoing... We are forced to sell our home and to cut back drastically on our plans for retirement. Most of my day is making sure all goes smoothly for my son and dealing with our uncooperative insurance company. It is heartbreaking to have one son, then the next day have a whole other person you've never seen before. It's so scary to not know what, if any recovery may be possible and there is so little funding for mental health. I will be holding the Hudy family in The Light.
after you do the front end work ssa does all the investigation. it is worth a try. there is a wide variety of what will be paid for and he will get medicaid which *at this point in time* pays for almost everything. he will also get a monthly payment for living/other expenses. it could help him get better, there are jobs programs to get him on the right track, etc. it will cover medications. it doesn't have to be a life long sentence.
it is great that you are raising funds, but for long term sustainability I highly recommend he apply/or you apply for him, for social security disability. it can all be done online. you do not need a lawyer as is the common perception. https://www.ssa.gov/applyfordisability/
Once again, I beg you to have Joey tested for VGKC - it is an encephalitic type condition which causes the paranoia and schizophrenia in people. It is treatable and he may be able to recover 100%. There is a book called "Brain on Fire" which details this condition. I know as I also had this condition. Thanks
Somehow I am trying to get to the parents of Joey, Julie and Victor Hudy. I am requesting that they have Joey tested for a neurological condition know as Voltage Gated Potassium Channel Antibody.(VGKC) It is a rare condition that presents itself with paranoia and schizophrenia like systems . I, for one had this condition and recovered from it. I am also referring you to a book by Sussanah Cahalan, Brain on Fire. Thank you and my best to your son.
Although there is no cure for schizophrenia as a psychology major I can assure you that the medications will lesson his symptoms once they figure out what levels he needs. I fully undersrand the financial stress this can cause as it does take time to get him on the correct dose. I am prating for yoir family and hope my gift helps your family. Please place your faith in God because above all therapies and medications he has control and he will answer your prayers.
I don't know your family and can only imagine what you are going through. Please consider rtying alternative, non-traditional medicine. Chinese medicine heals a lot of diseases including mental. It is not an easy road and it is a long process, but it is worth trying. Wishing you all the best!
I saw your story about your son joey on 12 News. There are genes associated with mental conditions such as the one your son has. There is a doctor in Scottsdale that does a special epigenetics test (it's a cheek swab) that can give information as well as possible supplimentation that could possibly assist in allow Joey to have a better quality of life with less medication. When we have genetic anomolies our bodies and brains need help. Supplementation and diet can play a huge role. In case you are interested in pursuing this avenue, the doctor's name is Courney Hunt MD . Her practice is Wellness of both male and female patients and her office number is 480-970-1937. Perhaps call her, give her details and she will be able to tell you if she feels she could help. Dr Hunt has helped me personally a great deal and I have all the faith in the world that if somoene can help you, she can. Hope this helps, Lovingly, Jenny
How old was Joe when diagnosed? There are many programs that can assist with his care. In AZ, he would qualify for ALTCS (Az Long Term Care) which would cover the costs of his housing and much of his care. In TN it's https://www.tn.gov/aging/topic/long-term-care-ombudsman Please also sign him up ASAP for Social Security Suplemental Security Income (SSI) which will automatically entitle him to Medicare coverage My prayers are with your family
My son Timothy was diagnosed with childhood onset schizophrenia at age 11. My heart goes out to your entire family. This disease is a family disease! Tim is 22 now and stable, but it took 4 years of residential treatment during his teenage years to get him stable. Please know that you aren't alone. I am part of a support group on facebook for parents of children with severe mental illness. If you need to vent, it's a closed group, and we all understand what you face. Feel free to join us if you need to talk. https://www.facebook.com/groups/144622772289553/
Hi, My prayers for Joey and his recovery. Have doctors looked into PANDAS or Autoimmune Encephalitis? It is when the immune system attacks the brain, causing neurological and/or psychiatric symptoms. These are brain diseases that can cause/mimic symptoms of Schizophrenia, especially Hashimotos Encephalopathy. My oldest child was 7 when he began experiencing psychiatric symptoms and was found to have many chronic infections and PANDAS. Testing is available for PANDAS antibodies through Cunningham Labs, and Athena Diagnostics has an extensive panel of CNS antibodies that can rule out different types of Autoimmune Encephalitis. Many chronic infections such as Lyme Disease, Bartonella, Strep and Mycoplasma Pneumoniae will cause symptoms of mental illness and hallucinations/delusions also in later stages. Please don't give up. Find a doctor who will find a root cause and treat. His life depends on it.
Proof that Obamacare is a failure. Good luck with your diagnosis, I have a close friend with this condition, he is doing well a few years later having stablized on his medication living off social security in a subsidized home and insured by Medicaid. God Bless! Sorry I can't afford to donate, my taxes are already too high this past year.