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Joe Gregory: Beat ALS

$30,058 of $35,000 goal

Raised by 146 people in 10 months
Created October 2, 2017
When Joe Gregory, at age 35, started having some left arm weakness, difficulty swallowing, and slurred speech, the first fear he and his wife, Melanie, had was “stroke.” A trip to the emergency room allayed that fear, but after seeing four neurologists and undergoing many tests, Joe was officially diagnosed with Bulbar and Spinal ALS.

Also known as Lou Gehrig’s disease, ALS is a devastating motor neuron disease that impairs the muscles for walking, speaking, and breathing. Right now there is no cure for ALS and once diagnosed the progression to  complete paralysis and death is 2 1/2-5 years. A new treatment from Japan, Radicava, has been shown to slow the progression of symptoms by 30%. While the search for a cure continues, this treatment could give Joe and his young family the gift of more time.

Joe  has been doing Lunasin treatment, and was able to go to Johns Hopkins for Radicava treatments. It is very expensive, and insurance will cover some of the cost; but the Gregorys have a tough road ahead with treatment expenses, trips to Johns Hopkins, and, as the disease progresses, more medical treatments and home therapy.

Your prayers and financial support will help lighten this load for Joe, Melanie, and their four beautiful children.

Joe knows what he’s facing, and fighting. And all with joy.  He has always  been one to give joy to those around him; and true to form, he wants to make this, too, a journey of joy.  As he says, each day is a blessing, and the love and support that he has received from family and friends has convinced him that he is the luckiest man on the face of this earth!
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Joe was officially accepted into the study in Massachusetts. This week they took his marrow. Next month they will put it back in him treated. (praying not with placebo). Costs continue to mount with air travel, hotels, car rentals and the technology and physical aids for Joe to be able to communicate and get around. Any help and prayers are appreciated always. Thank you. Visit Joe's blog at https://joeschronicals.com/ for his words.
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Thank you so much to all the wonderful supporters of Joe and his battle with ALS! The donations and prayers are such a blessing, and continues to support Joe and his family on this journey. As the disease progresses, he has been using his fingers to help him speak more on his blog. His words will always be better than mine.
https://joeschronicals.wordpress.com/

To give a quick update, Joe is going to participate in an ALS study at Massachusetts General involving his own stem cells. It will be a year of study, and trips to and from Massachusetts.

Joe and Melanie also received the news that they will be traveling to Lourdes with the Knights of Malta in the Spring. You will all be remembered in prayer as they travel.

Thank you again for all of you support!
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Hello Friends,

On behalf of Joe and Melanie, I want to thank you all for your amazing support! The prayers and love shown to the Gregory family has been truly overwhelming. Joe’s joy and acceptance is truly beautiful and such an example to us all. Though in his words, he is only able to do this by the grace of God and prayers.

The medicines that Joe has been taking are very expensive, and though insurance covers some of the $18,000 per month cost, the amount that the family must pay is quite daunting. We have raised our goal to address at least 6 months of this medicine, and address the future medical needs, which will continue to grow as the disease progresses. We know the costs will be much more in the future, and there is no way of knowing what that number will be at this time.

It is so beautiful to see how much my brother is loved and how many want to help. Please keep the prayers coming, as we pray for all of you!
Thank you, and God bless you!
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A huge thank you to all who have donated and shared! We have reached more than half of our goal! God bless you for your generosity!
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$30,058 of $35,000 goal

Raised by 146 people in 10 months
Created October 2, 2017
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TL
$100
Tim Latta
8 days ago
$50
Anonymous
20 days ago
PR
$50
Patty Ramirez
24 days ago
$300
Anonymous
27 days ago
AS
$100
Ann Southard
29 days ago
$500
Glenn Gregory
29 days ago
$100
Lynn O'Neill
1 month ago
$150
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1 month ago
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