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Help Jack Battle Lyme Disease

$18,360 of $30,000 goal

Raised by 211 people in 13 months
Created April 13, 2018
The Montgomery's have made the difficult decision to allow me to start a GoFundMe page to help Jackson fight his battle with chronic Lyme disease. The family is seeking funds to pursue a new, revolutionary treatment for Jackson in hopes of him leading a symptom-free, normal life.

Jackson's Story

Jackson's story starts at the age of 12 when he became mysteriously ill and was not diagnosed with Lyme disease until he was 15. It was three arduous years of apathetic specialists, painful tests, non-stop trips to Boston hospitals, the Mayo Clinic in Minnesota and relentless research before he was ultimately diagnosed. The road to a diagnosis was excruciatingly hard. 

In addition to Lyme, Jackson has two other tick co-infections, babesia and bartonella. Lyme and these co-infections have caused him to experience brutal symptoms over the years: brain fog, memory loss, excruciating head and neck pain, night/day drenching sweats, vision loss, hearing loss, severe gastrointestinal problems, joint pain, bone pain, light and noise sensitivity, temperature dysregulation, word retrieval problems, and migraines are just some of his ailments. 

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Due to the late diagnosis, the Lyme infiltrated Jackson's nervous system. This infiltration led to a condition called Postural Orthostatic Tachycardia Syndrome (POTS), whereby Jackson's heart rate is sporadically thrown into low to high rhythmic beats when standing. This makes him feel as if he's having a heart attack to a complete fainting episode.

At the time Jackson was finally diagnosed, he had started using a wheelchair more frequently and the family was considering home schooling. Antibiotic therapy and supplements helped reduce the symptoms enough to where, because of his incredible will, he was able to continue school. What Jackson accomplished in high school on its own is outstanding. The fact that he did so, when feeling extremely sick and undergoing multiple treatments that often times made him sicker, is unfathomable. To meet Jackson you would not know that he feels sick...every minute...of every day...battling this invisible, yet deadly illness.

Treatment

To date, Jackson has endured long term antibiotic therapy, herbal therapy, bio-magnetic therapy, pulsed electromagnetic therapy, rife therapy, ozone therapy, and IV laser therapy on top of taking over 35 pills daily. While these treatments have helped somewhat physically, they have not put his Lyme in remission and currently his health is deteriorating. 


Recently Jackson and his family learned stem cell transplantation for Lyme has become available in the U.S. This treatment had huge success in Germany in terms of remission and healing the long time damaged immune system. However, it is extremely expensive (est. $30,000 for multiple long term treatments) and Jackson's family has exhausted all of their resources. They estimate having spent over $100,000 out of pocket thus far given that health insurance does not recognize chronic Lyme, and they continue to spend $1,000 a month on treatments. If stem cell treatments in the U.S. do not succeed, they plan to go to Germany for further help.

How You Can Help

As most of you know, the Montgomery's have always persevered when faced with a challenge. They have been fiercely independent and private about the costs of Jackson's medical bills but at the same time will stop at nothing to help him recover. Asking for monetary aid from family and friends is their last resort. Now is the time to put pride aside and seek the help of the community to help Jackson lead a normal life.

Jackson is an amazing young man, with an incredibly bright future ahead. This experience has inspired him to enter the medical profession and to serve those who need it most. Please consider donating to help him in this battle that I know wholeheartedly he will overcome.

Thank you immensely for your support and please share this page with others. We look forward to updating you on Jackson's journey in the months to come.


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I wanted to post an update today on Jackson’s progress as I am beyond thankful for the generosity we have received from this campaign.

Jackson recently had lab work done and for the first time in six years his magnesium, vitamin D and iron levels have risen from almost non existent levels to firmly normal levels. Not only does this allow him to reduce the plethora of pills he takes each day, it is a sign his body is both absorbing and metabolizing again.

Jackson has managed to wean himself off a medication used to stabilize his heart rate, hopefully a sign that his autonomic nervous system is beginning to heal. He has headed back to the gym and is working on normalizing his heart rate while working out

His overall day to day pain has decreased significantly although he is receiving continued care for the joints in his hand. Most likely his next stem cell treatment will be injected directly into that area.

The purpose of stem cells for Lyme patients besides being regenerative, is to modulate a severely damaged immune system. Chronic Lyme can not be “cured” but put into remission. That goal can only be achieved with a properly acting immune system. As Jackson’s immune system is showing signs of normalizing, he will begin to take himself off all “killing” medications. This is huge step to healing.

Jackson has a long way to go towards healing and repairing but the progress he has made in the few months post his first stem cell treatment have been so encouraging!
On that note, unfortunately Jackson’s sister Lauren tested positive for Lyme this past spring after a year of crazy, undiagnosable symptoms. After a few months of trying the more traditional route of treating, we have decided because of Jacksons positive outcome , to move ahead with stem cell treatment for her in January . We are cautiously optimistic we can prevent the unraveling we saw in the years Jackson was ill.

We have so much to be thankful for this year and seeing Jackson’s smile come a little more easily and a little more frequently again is a constant reminder of that. Thank you all for your generosity and Happy Thanksgiving!
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It’s been a little over 2 months since the first stem cells were received and it has been a more difficult summer than expected. However, I believe that it’s because there are changes happening in his body. We are told the 3-4 month mark is generally where you see the most benefits so we are still monitoring and hoping for more healing.
Jackson has been receiving other supportive therapies weekly as well in New Hampshire.
Jackson has seen a marked decrease in his headaches and general pain. He has begun to gain muscle mass and has seen some improvement in some of his joints. We are seeing small gains in his digestive system that had been all but paralyzed. That is huge. He seems clearer mentally and his short term memory seems much better. His cardiologist has suggested we try weaning him off some of his medications. If he’s able to do it, it would be a huge win.He has a long way to go, but the changes we have seen in the last 2 weeks are promising.
Jackson being Jackson ,he has decided to go back to school this semester. It is only in the last 2 weeks that he has been affirmative on this. While I am nervous about this, seeing his determination and stubbornness return is a good sign. As he is now at UMASS, he will be coming home throughout the semester to keep up with his treatments.
I will never even begin to thank all of you enough.I do not know where we would be right now without the financial means for this treatment. Jackson has made it his goal to never forget where he’s been and pay it forward. I pray he gets well enough to do so!
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Jackson received his first stem cells 2 days ago. It’s been a bit of a rollercoaster ride so far, but from what we have heard from others, it’s to be expected. There is definitely something different going on in his body, it’s just hard to say what. He will be undergoing supportive treatments next week and then we just pray this begins to heal his body. We will know more in the next couple of weeks.
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Jackson has been bravely battling returning infections since returning home. While we were hoping to get him in a better place medically before his stem cell treatment, his body and mind needs some peace. He will be going to New Hampshire on Thursday for his first treatment. He will receive stem cells inter muscular as that is the best treatment for Neuro lyme. He will also receive them IV to treat the rest of his body. All prayers and positive thoughts appreciated
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$18,360 of $30,000 goal

Raised by 211 people in 13 months
Created April 13, 2018
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JD
$50
Jane DiFloures
5 months ago
MG
$50
Mark Grossman
7 months ago
$10
Anonymous
8 months ago
UF
$200
Uncle Mike & Aunt Kathy Fredericksen
11 months ago
BW
$400
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11 months ago
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11 months ago
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11 months ago
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