Jessicas Joy

£14,399 of £17,000 goal

Raised by 107 people in 32 months
Hi my name is Jessica May and I'm 10 years old! Jessica was born with beckwith wiedemann syndrome and a unique chromosome abnormality, Jess has lots of medical issues and has to deal with a lot which is why we are trying to make life a little more joyous for Jess. Jess has a tracheostomy, colostomy and is tube fed, she had spinal fusion 16 months ago which she taken along time to get over. We are planning on making Jessica's garden safe by laying artificial turf, Jess like to play in dirt and whilst it's great fun it's actually now dangerous for Jess as she suffers severe gut dysmotility and likes to put her fingers in her mouth, not a good mix!!!!! We would love to get Jess a summer house just for her, we plan to make it very sensory and a happy, safe place for Jess and also a hot tub so Jess can enjoy the warm water and help relax her back . Jess is the happiest and most determined person I've ever met, she makes me smile and cry happy tears daily, she has come through lots over the last ten years, a lot of surgery and intervention always smiling. Jess can't speak but through her smile and personality she frequently makes new friends and steals the hearts of strangers. Thanks for reading Jessica's story Alison, a very proud mum x
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Jess has once again defied the odds and made it through a very scary few weeks in ICU following surgery for another twisted bowel episode. Jess will now be on Total parental nutrition 18hrs a day 7 days a week, she's very weak at mo and resting a lot. Jess is smiling still and we are pushing to finish her cabin now so she can use it everyday as won't be in school for quite a while. Huge thanks for everyone's support to get us this far! Thanks Mark & Al x
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On Nov 19th 2016 Jessica woke in a lot of pain, her bowel had twisted so badly it was dead in parts and then perforated. Jess had emergency surgery but was so poorly we didn't think she would make the night. how wrong we were!!! she came out of intensive care after two wks and 2 weeks ago she came home. unfortunately jess now has a illiostomy swell as a colostomy and also a central line for TPN feeds, throughout the last 6 months Jess has continued to SMILE and melt everyones heart, I'm honestly gobsmacked by my beautiful girls strength. Jessies cabin and garden project is coming along so well thanks to her new best mates Dean & Damian!!! we are still raising money to help enhance Jessies lif, fun and enjoyment as much as we can. Thanks to all our fab supporters a very proud and humble Mummy xx
my fab friends Joanne & Damian
6 months later I'm back ready to play!!!
beautiful girl
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Big week as the artificial grass goes down!!! Let's hope it doesn't snow
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And so it begins!!! Phase 1 started today thanks to all our supporters x
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£14,399 of £17,000 goal

Raised by 107 people in 32 months
Created August 8, 2016
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Karen Roberts
12 months ago

Hope this helps a bit xxxx love Dylan xxx

13 months ago
Suzie Hosker
14 months ago

Happy Birthday Jessica, with love Megan and Alfie

14 months ago
Christine Moffat
15 months ago

Love you Jess ❤️

15 months ago
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