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Jayson's Transportation

$265 of $7,000 goal

Raised by 5 people in 28 months
Diana Boles  EL PASO, TX
I am Jayson's mother. That's our nickname for him. His real name is Joseph Edward Jude Boles IV.  Jayson was born 22 years ago. He has spina bifida. His neural tube defect is at the Lumbar 5 and Sacral 1 joint of the spinal column. All the nerves below the L5-S1 juncture are damaged. 
What this means is that he can walk by using the mobility in his hips and knees. He has no mobility in his ankles and no real feeling in his feet. He does feel pressure, but no pain. While Jayson enjoys being as active and social as possible, this is hampered by his lack of transportation.
Additionally, I have always been grateful that he can walk, but too much physical activity is stressful on him, and he runs the risk of injuring his feet from excessive walking. He also had foot surgery when he was 4 months to repair two club feet, which has left him with small feet (about a size 8 shoe) and a wobbley walk. He also had 4 other foot surgeries between the ages of 13 and 15 to improve his mobility on his right foot, but there only was a slight improvement.
Another aspect of his spina bifida is hydrocephaly, which has caused some brain damage. His I.Q. has been measured at about 86,  just below normal. He also is incontinent and requires catheters, medicine, and pads to stay dry. 
Three years ago, he walked to town (about 1 mile) and developed two large blisters on his feet. He didn't notice them until he came home and saw that his socks were bloody. It required extreme foot care, including 3 separate intravenous doses of antibiotics to treat for sepsis, a surgery to lance an improperly healed  blister, and visits to a local clinic weekly. The nurses and  I changed bandages 3 times a day for 19 months. Yes, that's right. It took almost 2 years to heal 2 blisters. 
The second summer on his first trip to the beach, the hot sand gave him another blister. Honestly, I almost cried, but fortunately it was on the side of his foot and healed in about 3 weeks. 
Shortly after that I bought him a used four-wheeler ATV for $700.  After more than $500 worth of repairs over the last 2 years, it's not worth repairing anymore. He needs another one, but I don't have the money. 
Here is a link of what I would like to buy him.   The extra money is for delivery to our town, insurance,  a removeable roof, and a small trailer that I would like to have built for it.
With this, my goal is to give him an opportunity to earn some income from either delivering wood in the winter, or running errands for people like a taxi/hauling service.
Finally, I believe Jayson is very fortunate for someone with spina bifida. He walks; many children don't.  Also, he suffered very few complications when he was younger, but as he becomes older, it is more obvious that he needs more support, not only financially, but physically and emotionally as he realizes how limited his options are with this handicap. 
I would not be asking for this money except that my own efforts at trying to build a second income are stalled, and I'm beginning to doubt my effectiveness. Here is the website that I've been building: http://www.createmyhomeschool.com It has been up for about 19 months and has cost me $600 and netted me $13. I'm not saying that I'm giving up, but I must be realistic too. I get about 8,000 page views per month.  
 This is not the only thing that Jayson needs, but if this small request is unsuccessful, there is no need to ask for more.
Thank you very much for reading my request. 


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Update 3
Posted by Diana Boles
22 months ago
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Thank you so much, Theresa. I appreciate it.
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Update 2
Posted by Diana Boles
22 months ago
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It has been more than 6 months since Jayson's foot was injured. Mostly, he's been home trying not to walk on it too much, but it hasn't improved. It was infected about 2 months ago, but a round of antibiotics fixed that. However, even after 2 months of daily visits to the clinic, the hole in his foot is as large as ever. In fact, larger than it was when he first went there 6 months ago. Therefore, the P.A. and the doctor have referred him to a surgeon at the hospital up the road from us in Rocha. He's got an appointment in about 2 weeks. In the meantime, the taxi just to get him to the daily bandage changes cost $188 a month, as my motocycle is broken. Presently, it has some electrical problem where the lights, turn signals, fuel gauge, and speedometer and the electric starter don't work. That being said, I'm going to end this campaign in about a week. A few wonderful friends have supported me, but I'm asking permission to withdraw this money, so I can apply it to a used ATV that's available on mercadolibre. This is the equivalent of Ebay in the States.
Thank you all very much.

http://moto.mercadolibre.com.uy/MLU-427012651-cuatriciclo-winner-automatico-atv-125-cc-sin-empadronar-_JM
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Update 1
Posted by Diana Boles
24 months ago
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I thought we'd get lucky this time with Jayson's foot almost healed after two months, but it seems that there is a subdermal cavern growing under his skin. This is what happened about 3 years ago when his foot took 19 months to heal. We're going to go to the doctor on Monday and see what they have to say. Wish us luck.
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$265 of $7,000 goal

Raised by 5 people in 28 months
Created December 28, 2014
Diana Boles  
TH
$100
Theresa Harnesd
22 months ago

I was in your class the year you were fighting so hard to become a mother. My Mom took care of you during your pregnancy, and when Jayson was a baby I had the pleasure of babysitting him when you were going to school. I know this will not meet your goal, but I hope it helps. Love and Prayers, Theresa Barrett

EM
$20
Elizabeth Maunz
27 months ago
$100
Anonymous
28 months ago
BV
$20
Bianca Vazquez
28 months ago

Mrs. Boles I wish I could give you more, you were a wonderful teacher and helped me a lot. I am going to be praying for your family a lot :)

TM
$25
Tamara & Manny Medellin
28 months ago
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