Stamp Out Movement Disorders

$13,100 of $25,000 goal

Raised by 87 people in 46 months
Seven years ago, I was diagnosed with PLS.  It’s similar to ALS and Parkinson’s, as you lose the use of limbs. I gradually lost all functioning in my right arm – it hangs limp at my side like a dead weight.  Moving my right leg is an effort and I have “drop foot” on my right foot, necessitating the use of an ankle-foot orthotic. As PLS progresses, there is a good chance I’ll be unable to use my limbs on my right side at all, and eventually my left side too.

There are only about 500 cases of PLS in the US.  Since it is so rare, I was initially misdiagnosed with Parkinson’s and ended up with an unnecessary brain surgery.  Now I see my neurologist twice a year and he basically says “Hi Jay, there’s still nothing we can do.” In his world, what I have cannot be treated, medicated, or cured.

As a now one-handed web developer, a client of mine suggested that I try stem cell therapy. They have had some successes with Parkinson’s and I am hoping that it is successful with PLS.

I’m not one to ask for help – I’m usually the one who gives it.  However, my insurance won’t cover stem cell therapy, and the thought of living as a completely dependent person who can’t do the things I love is a rather grim alternative. 

I build websites for a living, and I also publish a newsletter for radio broadcasters. I’m a second-generation radio guy myself, and my newsletter is the only resource that small, home-town broadcasters have. I’m passionate about both, and they’re my only sources of income.

Not to be able to work creatively supporting some amazing people, and on top of that to put all the financial pressure on my wife… well… I don’t want to go down that path.

Your support pays for my stem cell therapy and the travel to get there and back. Though the stem cells are taken from my own body, the U.S. does not allow them to be injected back in to the body via this particular process yet. If the treatment is successful, the PLS won’t progress, and I may regain the full use of the right side of my body. My hope is that this treatment works, so that I and others with neurodegenerative diseases can once again have the quality of life we once enjoyed. You can join me on my journey on my blog post here .

To show my appreciation, I am going to offer a free basic website to the highest donor as my way of saying thank you and giving back.  It won’t necessarily be a fast turn-around time, but it will be a great website – hopefully designed and developed by the first person to be cured of PLS.

Thank you for your kindness and generosity.

God bless.

Jay Mitchell

Treatment Information
For those of you who are curious, I'm being treated by   Dr. Todd Ovokaitys (who goes by "Dr. Todd" for obvious reasons) whose company, Qigenix , has pioneered the use of lasers in stem cell therapy; and Dr. Randall Davis from Luminec Life Sciences who has combined the formulations Tri-Amino & TAFA400 based on the "Schutt Paradigm of Free Amino Alignment & Molecular Stability" along with a customized nutrition program to enhance my immune system to maximum levels for pre-& post op stem cell therapy.
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Check out this short clip taken after my last treatment. I don't know if you can tell, but my posture and balance have improved considerably!
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Quick update: I've now had three stem-cell treatments, the first two in my arm and the last one via a lumbar puncture (which sounds as pleasant as it is). The idea behind the lumbar puncture is that injecting the stem cells into the spinal fluid is a much more direct route to the brain, which is where we want these little suckers to end up in first place.

In each case, and particularly in the last case, I have felt some immediate energy shifts within my body. At first it seems that my balance was off, but in reality it was just a redistribution of energy and musculature that I had to get used to. In fact, immediately following the last procedure I was able to walk relatively smoothly and with a fair amount of balance without using my cane.

But the most exciting news of all came during my semiannual visit to my neurologist last week: he did a thorough top-to-bottom analysis of my condition and found that in a number of cases what was once a muscle strength of "0" was now a "1," "2," or "3"!

I am fortunate to have a neurologist who is open to new ideas, who is in favor of anything that will help his patients – so he has been following my case closely and has been very positive about what I'm doing. (Typically with my condition, there is no course of action, no medicine – thank goodness – in the world of traditional medicine, so our encounter every six months is more of a fly-by joke-fest.)

I wish I could tell you that I threw away my cane and danced out of the treatment clinic, but at least I don't have to report that nothing is happening. I'm making steady progress, and I hope to have more treatments in the future to increase the rate and magnitude of my recovery.

I can't stress adequately the gratitude I feel for your contributions, whether they be in the form of thoughts and prayers and well-wishes, or something slightly more negotiable.

With thanks and good wishes,

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I just want to wish you a great new year, and thank you again for your generosity.

So far everything is going well. The combination of the stem-cell therapy, the nutritional supplements and the change of diet have worked together to make me healthier in general and to improve my stamina and mobility.

As you can see from the before-and-after photos on my Facebook page – despite the fact that the "before" was professionally done (as part of the video on my GFM site) And the "after" was a spontaneous snapshot – I am pounds lighter and immeasurably healthier.

Thanks again for everything, and I hope 2016 brings you great happiness, health and prosperity.
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They say it's my birthday ... Thanks everybody for your kind wishes. Had a very nice birthday present yesterday - did my first stem cell treatment in Mexico. No, I wasn't able to moon walk out of the clinic, but it's pretty remarkable what did occur. Within minutes of the treatment I was able to move the fingers on my right hand - not much, but it was noticeable. I was even able to touch my thumb to the first three fingers. They also did a Babinsky reflex test (Google it) and it was positive before the procedure and negative after (a good thing). I felt looser and my walk was much improved. All in all a pretty good result given the duration and severity of my condition. Ahead is physical therapy, nutrition and supplements, counseling and perhaps more treatments. I am very grateful to "Dr. Todd," Dr. Randall Davis, John Everding, Rick Episcopo and the Luminec Life Sciences team, Regan Rowe, Dr. Carlos Soros and his staff, Dr. Juan Funes, Clay Kemp and the Mediaseam team, and "The Chemist."
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$13,100 of $25,000 goal

Raised by 87 people in 46 months
Created June 18, 2015
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Dick Ferguson
37 months ago

Jay... your video and YOU are inspiring. You are in my thoughts.

37 months ago
Marie Kiefer
37 months ago

All our prayers and wishes for continued success.

38 months ago (Offline Donation)
39 months ago (Offline Donation)
James Champlin
40 months ago

Jay, a friend and someone who always strives to make a positive mark in life for others to benefit ! All the best in 2016

40 months ago (Offline Donation)
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