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Medical Donations for Jase Coker

$2,625 of $6,000 goal

Raised by 52 people in 9 months

Jase Coker was born on October 17th, 2014.  At about two months old, Jase started having symptoms including high fevers, rashes, seizures, tremors, migraines, respiratory issues, and others.  Us as parents have been to countless doctors, specialists, hospitals, EEGs, CT Scans, blood work and lab tests to no avail.  The doctors - so far, over the course of 2+ years - have been unable to diagnose Jase. Just when we get close, another new symptom comes up and we head to a different direction.

As a result of these visits and his health issues and condition, Jase's mother, Sarah, had to leave her job and stay with him full time, leaving the sole provider to be his dad, Jon (me).  The travel costs, medical expenses associated with medicine, doctors visits, hospital stays, along with everyday bills has taken a toll on me and my family, including my other two children (5 year old girl and 11 year old boy).  





The frustration of no direction or no answers has drained us physically, emotionally, and mentally.  Jase is now taking Speech Therapy weekly and was told because of his past seizures, he has regressed.  So we are currently having him attend speech to improve his speech and comprehension.

We also have a few more specialist appointments lined up for next couple months hoping to get answers and what to do next.

Jase is a fighter. He has been through numerous tests and scans. He always tries to be a normal two year old and play and be wild. He loves being around his brother and sister and play games with then. But sometimes, his symptoms won't cooperate.  There are days where he wil just love on you and laugh and everything seems fine. But then there are days where he will lay around, lethargic, and quiet will leads into having a flare up and having a fever and you dont know whats wrong because he can't tell you. Each day it seems like we are battling a new symptom or a re-occuring symptom. His favorite is Mickey Mouse Clubhouse and loves to growl like Donald on the show.

My goal is for him to be a happy healthy little boy and live life like any normal kid. 


We're hopeful as each day passes, we get answers or a path toward a diagnosis and a cure.

Any donations will be greatly appreciated. Sometimes in life, you have to swallow your pride and ask for help. Im learning to do so. These four are my life and my goal in life is to protect them and make them proud.

If you want to follow Jase's daily health updates, join his group  at Jase's Soldiers on Facebook. 


Thank You and God Bless!



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New Update: 02/06/2018:

Jase has been diagnosed with the dreaded flu. So far his lungs are clear. The doctor told me to keep doing what I've been doing. Keep him hydrated, fever under control, rest as much as he wants, and nebulizer for the cough to keep from setting up in his lungs. He has perked up a bit more today. Still extremely irritable and coughing. He had a terrible night last night with gagging and choking when he was coughing. His appetite is completely down but he is drinking lots of fluids. Praying this doesn't last much longer.

Jase started about 2 weeks ago having spells where he can't open his eyes. This will go on for 5-10 minutes at a time. I asked the Dr about this today and showed him the video. He said to let the nuerologist see this and thinks he needs to have another MRI as soon as we possibly can to see if any brain damage has/is occurring. Also said when the brain is firing in the back and causing the seizures of the eyes that it is bright lights rushing through his eyes. Which could be the reason he is keeping them closed at times. I will call and follow back up with nuerology tomorrow and see what she wants us to do. Video below was from last night. We tried everything to get him to open his eyes. He will even get up and try to walk around but of course knocks in to things because he can't see. He Also gets very agitated right before it starts.
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New Update: 01/30/2018:

We got the approval today. Jase will be seen at Augusta Epilepsy Monitoring Unit on April 4th. He will be admitted for 2-4 days depending on seizure activity. The sooner he has seizures and they can do their study, the sooner we can come home. We should be leaving with some answers as well as a treatment plan that will help get his seizures under control.

Please keep Jase and the family in your thoughts and prayers. Hopefully we get the answers we need soon. God Bless
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Jase had a follow up with nuerology today. I learned things that our last nuerologist should have told us. The new nuerologist received all of Jase's records. The last EEG we were told he had abnormal movements in the front temporal lobe. She told me the reports showed the back of the brain was firing as well as the front. She said it wasn't abnormal movements it was spikes. Spikes indicate seizures. The firing in the back of the brain causes seizures dealing with his eyes. This explains the eye tics and his newest seizures he's having. I will post video. The spikes he was having was each night while he was sleeping. I've always been concerned with him having seizures in his sleep.

The medicine he is currently on only controls focal seizures. She wants to change his medicine as soon as we see Augusta epilepsy center. She said we should be in within 2 weeks. I was reading up on them today and they have the best epilepsy program in the country. This makes me feel better knowing he will be getting the best care possible.

We spoke a bit more about the changes we've seen in the past 3 weeks. She said she really thinks once we get back genetic testing he will be diagnosed with Rett Syndrome. He's showing more and more symptoms. I'm praying this isn't the case. She was thrilled to hear he's still making progress with his words.

So I left today feeling both hopeful and mad. Extremely mad the old nuerologist made me feel crazy the past 2 years but had the evidence in hand he was having multiple types of seizures. Hopeful because I finally found someone to take me serious and send us to the best center to get Jase the best possible care he needs. Below is a video of the seizures he has started having this week. Eyes flickering while closed and completely unresponsive. He's breathing but goes limp when you go to pick him up.

Latest video: https://m.facebook.com/groups/208380489669011?view=permalink&id=324293338077725
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$2,625 of $6,000 goal

Raised by 52 people in 9 months
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$200
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3 months ago
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4 months ago
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