Creating Miracles For Jack
It all started on a cold March day 14 years ago. A doctor told us Jack had Hurlers Syndrome and to take him home and spend our last days with him that he wouldn't make it past two or three years old. He was 13 months old then. Now he's 15 and a half. But only after one stem cell transplant 2 corneal transplants and 50 orthopedic surgeries later. Jack should be a normal teenager running around with his friends and loving this life, but instead he has been using a walker for seven months from 4 surgeries earlier this year from double spinal fusion to double knee surgery. His muscles atrophied and he is weak. He is a miracle and we were told he would never live. Jack goes to a progressive school where he is very smart and liked by all of his peers and friends. He is very smart and extremely funny and witty and shy and emotional and ask questions why this happened to him. I ask those same questions. Jacks story has been incredibly heartbreaking, long, miraculous, disastrous, costly and tearful and joyful. Jack is an incredible fan of baseball, especially his beloved Cardinals. Jack needs your help. He is going to a very costly rehab facility in St. Louis to learn to walk again, build up his strength and start his life again as a teenager. He has a lot of life to live, and give. Please help and please share this story with your friends and family. Thank you.+ Read More
Hi!! Just wanted to give an amazing update on Jack. Jack is 17 and finishing his junior year in high school. Less than 2 months ago Iack had total hip replacement surgery to help him walk. And it was a huge amazing success!! For the first time in 2 years and 4 months, Jack is walking the halls on his own without a walker or canes. He is sooo happy and confident again. He has had a very long 2 years and countless therapies almost daily to help him. We found a miracle worker once again at Duke University who said he could help Jack when so many could not. What a blessing he is!!
15 years ago today doctors told us Jack would not live past the age of 3, now he’s 16. Jack has had really good news from doctors this week! He is still using the aid of walking sticks and making progress every day. He works out everyday with therapist or David and I for two hours. He is a smart, funny, witty and intuitive teenager. So proud of him. Thank you everyone for your support.
Wanted to share a picture of Jack working out on treadmill with his therapists. Jack continues with 2 hours everyday no matter what . He is so determined. He uses walking sticks everywhere he goes and uses walker for long distances. He's amazing. Thank you everyone again for all of your support and tHoughts!