Safer sleep for Jack

£3,722 of £3,500 goal

Raised by 121 people in 37 months
Jack is a fantastic little boy with such a cheeky but incredibly lovable character. He has no fear, alongside his other niggles he needs a fair amount of supervision to keep him safe. As you may or may not know, Jack has had issues with his development since birth which affects everything from his walking to the things he can eat and the way he eats, although these are not severe lots of little niggles can be exhausting. His sleeping arrangements are his latest challenge and although OT can arrange for a specialist bed for him we don't feel this is the best solution and have sourced our own alternative. Jack's night time habits are a cause of concern for us, during a recent nights stay in the children's ward it took two of us (nurse and mummy) to restrain Jack to prevent him from harm. These spells have been happening for many months now, but as Jack is getting bigger and stronger it is hard to stop him from hurting himself against the bars/floor or walls etc when he is very angry. Jack also regularly bangs his head in normal sleep hard enough for us to hear downstairs and sometimes hard enough to bruise. Jack is a bit of a thrill seeker, thanks to his Feldenkrais sessions for his movement he is quite a good little climber, this is fantastic to see but also leaves Jack quite vulnerable to falls which happen quite often, being able to create a safe space in his bedroom where we can help minimise that risk would be great. The NHS have been fantastic in supplying equipment for Jack, what we feel best meets Jack's needs probably won't be fully funded by the NHS so we would like to try to fundraise towards this. The purpose of this fund is to enable us to be in a position to give Jack as near to a normal lifestyle as possible starting with the need for a specialist bed and other equipment for his bedroom. The bed we are looking at is a safety sleeper, this is a portable special needs bed a bit like a tent frame with soft mesh sides. This takes a full size single mattress that would also enable one of us to be able to snuggle down with Jack should he need reassurance. The bed is portable and folds down into a travel case which would mean we would be able to stay away with a known safe environment for us and Jack. This bed costs nearly £3500. Any donation no matter how small would be such a great help and would make a real difference to Jack.
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Well... This will be the final update. We finally have the Safety Sleeper bed after a long wait. We have decorated Jack’s room and installed the bed for him today and he is very excited.

We can’t thank you all enough for your very kind donations because without them Jack won’t have his ‘special new tent bed’.

This is going to make such a difference for Jack and we can even take it on holiday with us.

Thank you all so much.

Lee, Donna, Ellie and Jack.
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Just a quick update for everyone. We have placed the order for the bed. We've been liaising with a UK based distributor and they have taken payment and confirmed they will be placing the order to the American manufacturer next week! Photos to follow when we receive it.

Thank you all so much for your kind and generous donations. You have all made such a difference for Jack.
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Well... we did it! Just over 4 hours but would have been nearer 3-3.5 if we hadn't had to queue and I didn't pick up an injury at the second obstacle and 1st Mile! We all finished the full 10.5 miles and then I got stitched up!

Thank you everyone for the amazing donations. It really has made taking on this epic event worthwhile and the whole team really appreciate it.

You have all helped make a massive difference for Jack.

Thanks again

Lee, Donna and Jack.
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Only two days to go and I will be taking on the challenge of Tough Mudder Midlands 2017! This is one of the last things I would ever have done, I hate getting wet and dirty so to be thrown down mud banks and in to ice pools of muddy water isn't my idea of a good time but I'm strangely looking forward to it now. All in a great cause to try and raise money for Jack. Surely it's got to be worth a £1 or 2 to see me take on this challenge. Honestly anything you could spare will help make such a difference for Jack.
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£3,722 of £3,500 goal

Raised by 121 people in 37 months
Created June 25, 2016
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WJ
£15
wayne jones
25 months ago
IS
£50
Irene Smith
25 months ago (Offline Donation)
FS
£50
Fiona Sankey
25 months ago
SB
£232
Staff at Kendall Kingscott Architects, Bristol
25 months ago (Offline Donation)
LH
£50
Lisa Hankins
25 months ago (Offline Donation)
RS
£100
RS Components Staff
25 months ago (Offline Donation)
PW
£10
Purnima Wilkinson
25 months ago (Offline Donation)
SM
£15
Sam Maitland
26 months ago
BC
£30
Ben Cripps
26 months ago
DP
£100
Dot's Pantry
26 months ago (Offline Donation)

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