Island medical campain for EA
Hola!! My name is Madestin Hedstrom and I'm island's mom. Island Martin Hedstrom was born in Dominican Republic on 07/26/07, with a rare medical condition called Esophageal atresia, type A. The reasons for that type of condition still medically unknown. He had approximately close to 200 surgeries since he was born; most of them outpatient but still had to go under anesthesia for each one them. Once again "as hopefully the last big procedure " he will need a new reconstruction of the esophagus, having a gastrointestinal pull up, colon interposition and a cardiovascular anastomosis, also a skin transplant from his chest to the neck; He will go for an induced coma for proper healing and comfort since he has hard time with narcotics.. wich a means that he can feel the pain even with medicine. We planned the surgery since he was 4 years old.. surgery suppose to happen on Tuesday the 29th but getting admitted on the 28th.. today I received a phone Called from the surgeon saying that we have to actually go to Boston children's hospital for this procedure.. they have experience with the procedure and is actually the #1 hospital in the world that deals with EA. Now this is sudden and unexpected and I don't have enough money for all of this. I still have to pay bills, posible airplane tickets, gas, food and a place to stay.. Here in Florida, he has medical insurance, families and friends that can a least help. In Boston we will be in good hands at the hospital but in our own. Im a single mother of 3 , with very little and my husband passed away in 2012 , before I even knew I was expecting our 3 child. I'm not sure for how long I will be off from work or away from my kids.. but I'm sure that things will be possible if I have your help. Everything happens for a reason, I think this is the best one for my son. With mother instincts and all the love in my heart for him I will do everything in my power to easy this journey . Love you guys.. thank you so much.! Blessings for all ❤️+ Read More
My baby ❤️ the surgery was a success!
Sorry for the graphic pictures.. I hope you can see what I was talking about.
Here we are! The time has come. Sorry that I took so long to write this; I will explain. Island will get admitted to the hospital on April 11th for a vowel cleaning, following next day for the colon interposition surgery. During the past medical evaluation, we discover that Island has a cleft trachea, a paralyze vocal cord *( it’s a probability that he might loose his voice completely after the surgery or might carry a breathing trachea for the rest of his life, just if the one that he has left gets ruined after surgery), problems with alveolus and lungs, tracheomalacia and many other things. I thank God for keeping me strong and him so positive. So many times I feel emotional and I just cry.. I have to.. I ask, why him? Why us? There is a plan and I know this shall pass. It’s been a crazy roller coaster for the past few months. Island was extremely ill between the month of January and February.. constantly in and out of the hospital. So many nights that we didn’t sleep and so much pain from him. Many fevers.. colon prolapse, major dehydration , hot flashes, he developed dumping syndrome, He also developed a few stomach ulcers and lost a ton of blood on stools. His blood level got to a 5.0.. even loosing consciousness.. can you imagine?? He had a few blood transfusions and we got him to a 7.9. Literally the most scary time of my life. After all that, our main focus became keeping him away from getting sick and bring up his weight for the surgery. A few months ago he was 48-49 pounds and now he is at 56-57 pounds, with a continuously feeding machine inside a backpack that he carries all the time. “Thank God he is healthy now“. I left my job last week to leave with him to Boston. I’ve been so busy getting everything ready, but still I have to pay for so many things. This is a very expensive journey.. I don’t give up on my hope. “Everything is gonna be alright “ I thank everyone that has put their donations and prayers towards the situation.. please, keep donating, praying and sharing.. anything helps. Thank you!❤️❤️