Help Iron Gideon fight Leukemia!
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The Adventures of Iron Gideon (more on how we came up with that name in a minute). This page was created to help with the current medical expenses and ongoing expenses for his treatment.
Gideon was a typical high energy, playful, somewhat mischievous 5 year old that had been in good health, nothing unusual there. Then in May of 2015 he developed chest pains with swelling and redness, with nothing turning up on the x-ray so it was dismissed. About a month later the pain returned even worse, more testing and this time again nothing turned up and were told he needed more rest until he felt better. They had tested for lukemia and the test came back negative to our relief. In August when these pains returned for the third time, we figured nothing much of it except that he had a fever and was a little off, pale. So we took him into his primary care where they sent him to the ER immediately. After multiple tests, an MRI, and seeing specialists they figured it was CRMO (Chronic recurrent multifocal osteomyelitis). It's a mouthful, but basically it's his body attacking his bones which accounted for the pain and inflammation.
A couple of weeks before his next appointment he was feeling tired all the time, looking even more pale, but they said that it was probably because of the CRMO. The day before the next appointment they wanted more blood work so we took him in. The following day we received the call, a call that you don't want to get. They said that there was something that turned up in the blood work, his counts were dangerously low, and he needed to go into Rady Children's Hospital in San Diego as fast as possible. They began immediate transfusions of blood and platelets, and started more blood work screenings. The next day we received the shocking news, they found lymphoblastic leukemia cells and he needed further testing. We were devastated, how could he go from having CRMO to having leukemia when he had already been tested negative for it. So many questions and concerns, waiting for the results to get back was agony. After a couple of days and a marrow and spinal fluid test we had the details we didn't want to hear. Gideon has ALL (Acute Lymphoblastic Leukemia), type B.
The news was a hard pill to swallow at first, but with the help of Rady Children's Hospital San Diego and further research we learned that with his age, and that we caught it so soon, there is a 90% chance to cure him in the next 3 1/2 years. There will be weekly visits to Rady Children's Hospital and a daily regime of medications, but we are all grateful for this, it is hope in the middle of bad news.
How we came up with the name Iron Gideon: he had a port surgically implanted into his chest and it reminded us of Iron Man. To help Gideon with his battle we have turned him into a new super hero to battle this cancer (the bad guy) in his body. The port is a device under the skin and has a tube into an artery, this allows them to insert an IV or draw blood or administer medication and not have to keep poking his veins over and over again.
He's been a trooper through this all, taking his meds and going through procedures with little complaint. His strong will and determination is an inspiration.
Thank you for reading our story and if you want to keep up with latest information check out our facebook page
https://www.facebook.com/The-Adventures-of-Iron-Gideon-904097989644686/?sk=info&tab=page_info
Any help is appreciated, Love and blessings,
The Robinson family
Gideon was a typical high energy, playful, somewhat mischievous 5 year old that had been in good health, nothing unusual there. Then in May of 2015 he developed chest pains with swelling and redness, with nothing turning up on the x-ray so it was dismissed. About a month later the pain returned even worse, more testing and this time again nothing turned up and were told he needed more rest until he felt better. They had tested for lukemia and the test came back negative to our relief. In August when these pains returned for the third time, we figured nothing much of it except that he had a fever and was a little off, pale. So we took him into his primary care where they sent him to the ER immediately. After multiple tests, an MRI, and seeing specialists they figured it was CRMO (Chronic recurrent multifocal osteomyelitis). It's a mouthful, but basically it's his body attacking his bones which accounted for the pain and inflammation.
A couple of weeks before his next appointment he was feeling tired all the time, looking even more pale, but they said that it was probably because of the CRMO. The day before the next appointment they wanted more blood work so we took him in. The following day we received the call, a call that you don't want to get. They said that there was something that turned up in the blood work, his counts were dangerously low, and he needed to go into Rady Children's Hospital in San Diego as fast as possible. They began immediate transfusions of blood and platelets, and started more blood work screenings. The next day we received the shocking news, they found lymphoblastic leukemia cells and he needed further testing. We were devastated, how could he go from having CRMO to having leukemia when he had already been tested negative for it. So many questions and concerns, waiting for the results to get back was agony. After a couple of days and a marrow and spinal fluid test we had the details we didn't want to hear. Gideon has ALL (Acute Lymphoblastic Leukemia), type B.
The news was a hard pill to swallow at first, but with the help of Rady Children's Hospital San Diego and further research we learned that with his age, and that we caught it so soon, there is a 90% chance to cure him in the next 3 1/2 years. There will be weekly visits to Rady Children's Hospital and a daily regime of medications, but we are all grateful for this, it is hope in the middle of bad news.
How we came up with the name Iron Gideon: he had a port surgically implanted into his chest and it reminded us of Iron Man. To help Gideon with his battle we have turned him into a new super hero to battle this cancer (the bad guy) in his body. The port is a device under the skin and has a tube into an artery, this allows them to insert an IV or draw blood or administer medication and not have to keep poking his veins over and over again.
He's been a trooper through this all, taking his meds and going through procedures with little complaint. His strong will and determination is an inspiration.
Thank you for reading our story and if you want to keep up with latest information check out our facebook page
https://www.facebook.com/The-Adventures-of-Iron-Gideon-904097989644686/?sk=info&tab=page_info
Any help is appreciated, Love and blessings,
The Robinson family
Organizer
Aj Robinson
Organizer
Moreno Valley, CA
