Inspire Stroke Care Centre
On the 27th of August 2018, my 55 year old father (Wayne) suffered a major Basal Ganglia Hemorrhagic Stroke. Before his injury, he was an extremely active high school PDHPE teacher.
We spent 3.5 weeks in ICU, and we are currently still in the ward receiving care. The original prognosis was that he would not survive the original bleed given its severity. He has pulled through, although it is still a long road of rehab and recovery.
We have been told that my dad will require 24 hour care. We had hoped to find a nursing care facility that focused on young acquired and traumatic brain injury (A / TBI) survivors, or even care targeted to younger people that don't fit the mould for 'aged nursing care'. However, this is not the case and in all of Australia there are no such care facilities.
Stroke does not discriminate, and can occur in any person, of any age - it is the third biggest killer in Australia's and one of the leading causes of disability, with 1 stroke occurring every 9 minutes and 30% of the survivors are under the age of 65 - with many leaving dependant children.*
In recent years, the stroke death rates have dropped significantly - due to medical improvements. This however, has lead to survivors, many with the same disabilities as my dad.*
Stroke aftercare is one of the most expensive there is, given needs of each survivor.
We have been informed that a bond is required for ANY aged care facility which varies between $200,000 - $700,000 plus at least $100 per day - which varies on the care required. None of these costs are covered by health insurance.
We understand that we are not the first, or the last family to have this happen, but we want to create a residential care facility specialising in direct support for young stroke and ABI and TBI survivors or any young person who has been put into the situation of requiring 24 hour support (Multiple Sclerosis, Motor Neurons, Spinal Cord Injury etc). Being cared for around other young people, can provide more mental stimulation and promote rehab, healing and interactions.
This is obviously not something we even thought of before we were in this situation, but we are devastated to hear of the amount of young survivors placed into aged care facilities.
Any donations to get our dream off the ground would be more than appreciated, and we are happy to speak with anyone regarding our journey or where we want to be heading with our dream.
Please feel free to email us on
Colleen (Wayne's Wife), Morgan & Bailey (Wayne's daughters)
Sunday Telegraph: October 28th - Daily Telegraph Link
2GB Alan Jones: November 1st 2018 - Alan Jones Link
A Current Affair: November 15th 2018 - A Current Affair Link
* Information retrieved from:
A quick update on our journey (since our last update).
Dad has started physio at his home now, along with the added physio we have hired for him. He has started moving more and more on his 'bad' side, so he will get there.
We've also started to try and get him to talk and even make random noises. This will help him down the track with relearning how to speak, and hopefully beat the aphasia.
If it doesn't work, dad has started learning sign language! We are focusing on one handed, one word signs so help him in his day to day life. Saturday morning in less than one hour we've taught him 'Thank you' and 'Hot', although he needs to still learning when and where to use it, the sign itself has been learnt! (And the doctors told us he would never learn anything!)
Our trivia night tickets are on sale and going like hot cakes! If you would like to come, please do we have some AMAZING donations, prizes and games to play on the night. Tickets are $50 for 1 ticket or $480 for a table of 10 - this price includes a light dinner. We would love to see you all, so we can share our stories of dad and you can tell us your stories too.
Please see the link for tickets :)
Also, don't worry if you don't have a full table, we can either join you with another table, or you can go at it alone!
We're looking forward to seeing on the night.
*Photo is of dad and Frankie (one of my dogs) on christmas.
We have been concentrating on our rehab with dad, and although it is a slow road, we are making progress and dad is making progress. Today we start acupuncture on dads paralysed side - we've heard good things from the results, so we figured why not give it a go while dad still has the movement.
The trivia night tickets have been released with a change of venue. The new venue is at Loyola Senior High School in Mt Druitt - next to Rooty Hill RSL.
We have some amazing prizes that have been donated, so please come and join us for a fun night of trivia and fund raising! Everyone is welcome, even if you've never met us before - we're a welcoming bunch of people haha.
Even if you can only have a small amount of people, we will join you with another small table for the night.
Thank you again for following our journey and supporting our cause. I've posted a new photo of dad on christmas with one of my dogs (Frankie) who came for a visit! Dad adores when the dogs visit him.
We have finalised the trivia night. It will be on Saturday the 16th of February at 6pm.
Please see the below link for the tickets and all details.
Dinner and nibbles are included in the ticket price.
There will be some amazing prizes for the winners of each round, lucky door prizes and games such a two up etc.
I am also currently tracking down some prizes that we will be able to use for silent auctions.
We have lots of super fun questions all set up and ready to go. I cant wait to see you there on the night!
Please bring all of your family, friends & colleagues! The more the merrier, and all money raised will go towards our dream of Inspire Stroke Care Centre - which we will be able to provide care for ALL young Australian's who require 24 hour care.
Even if you didn't know dad, and would still like to support us, please feel free - we are a very welcoming bunch of people.
Update on dad;
Dad has moved into a respite care, where we noticed he will be cared for with a few other young people - who would benefit from our centre!
Everyday he is getting better - small steps but he will get there! I have been hammering some math into him...he's not a fan, but I will not stop haha :)
Thank you again for your generosity and continued support. We read every single comment, many have made us tear up when reading about how he has helped so many young girls feel better about themselves in sport and driving them to continue on their path.
We just wanted to send out another thank you for all of your kind words and generous donations - to everyone who has known dad or not. We are extremely grateful that you have chosen to help us get our facility off the ground.
We are currently in the process of arranging a Trivia Night to help raise funds. This will be open to everyone - whether you personally knew dad or not. So we would love to see everyone on the night!
We hope that we will have some amazing prizes donated for the night, so you definitely won't be disappointed (If you are aware of any businesses that would be happy to donate, please get in contact with us!). It will be a great night to catch up with family, friends, old colleagues or school friends! Once this has all been confirmed we will do another update and facebook post for everyone to know!
If you have any information or would like to get in touch with us about dad or the trivia night please email us at email@example.com
An update on Dad and his progress;
He has been given more rehab in hopes to enhance the movement he has been showing in his right side (which is looking promising!).
Dad has taken small steps (for us) but they are big leaps in the road to his rehab. He has used his left hand to feed himself, had an arm and thumb wrestles. And when he finds something particularly funny/enjoyable - he does a little dance in bed!
Keep sharing so we can get the cause out to everyone! As we have discovered, this is not something you think about until you are in this position, or know someone in this position. We want people to be aware of what happens when a young person is suffering from a debilitating illness.
Thank you for you time!