281
281
9

Baby Girl Butterfly

$22,695 of $75,000 goal

Raised by 276 people in 6 months
Created November 15, 2018
Juliana Cervizzi
on behalf of Sandra Maxwell-Leone
34546048_1548687590733605_r.jpeg

34546048_1548687636783461_r.jpeg
A SERVICE DOG FOR BABY GIRL BUTTERFLY 

The precious, ahhhmazing little girl above, in the pictures, is truly an ANGEL! 

It is with my absolute pleasure and honor, I share with you, her story... The story of Nina Priscilla - Baby Girl Butterfly - in hopes, you can stand with me and my family to help Baby Girl Butterfly and hers.

Nina has atypical features of Autism.  Under the Autism umbrella, there is Angelman Syndrome - A rare neuro-genetic disorder.  Under Angelman's, there are two very rare syndromes, one of which is Pitt Hopkins, which affects 507 children in the world.   Nina appears to have an undiagnosed disorder that lies within the spectrum of Angelman's, Rett & Pitt Hopkins.  Doctors feel confident Nina has a syndrome not yet discovered and even more rare than Pitt Hopkins - Unfortunately for Nina, ALL this comes with life-threatening seizures, where she stops breathing.  It is taxing on her little body and today, more than ever, Nina needs our/your help.

While Nina suffers from chronic seizures, one night in October, everything changed.  Nina was lying in her mother's arms when she saw her eyes flickering, jaw locked,  lips turning blue and drool coming out of her mouth.  Her mother screamed, "Breathe!". 

During her latest hospitalization, doctor's explained Nina's seizures were coming in different forms and they weren't going anywhere.  Doctors said "Nina needs some relief and help, as all her meds could only do so much and that relief and help were going to come in the form of a four-legged family member, she needs a Seizure Alert Dog". 
The Seizure-Alert dog will be able to keep Nina breathing, help break the cycle when cluster seizures start AND alert family when Nina starts a seizure. The problem is, these dogs are extremely expensive.

Here is how the funds will be spent.

• Help pay for the dog and training which costs approximately $26,000.
• Help maintain the service dog (costs approximately $1,500-2,000 a year) 
• A fenced-in yard to keep the service dog and Nina safe ($10,000-12,000)

Please consider donating to provide relief for Nina and her family. Any assistance will go a long way so that we can help keep Nina breathing!

My name is Juliana Cervizzi. I am from North Reading, Massachusetts. I am a friend of Nina and her mother Sandra. Sandra , Nina's mother and beneficiary, is the only person who is authorized to withdraw funds from this campaign.


Please click on the link and watch the video below to learn more about Nina's story.  

http://sponsored.bostonglobe.com/franciscan-childrens/nina/


+ Read More
Family wants to extend a HUGE Thank you to everyone! They are overwhelmed by the thoughts, prayers and generosity you have shown them!

We are in countdown mode! Community counts, Kindness counts - Come join us for a great evening to come together for a great cause.

Go on link below to get tickets, go in to “discussion” and see some of the great raffle and auction items!

https://www.facebook.com/events/358375554714924/?ti=icl
+ Read More
Kings Bowling & Entertainment is doing a BIG fundraiser for Nina! Legacy Place.

Bowling for Baby Girl Butterfly
Saturday, May 4th 2019
5:30 pm -9:30 pm
More info. coming...
+ Read More
Thank you WBZ News Radio for covering Nina's story!! Check out my song, "butterfly", that was featured with the link below!
https://soundcloud.com/user-418009159/butterfly
+ Read More
Read a Previous Update

$22,695 of $75,000 goal

Raised by 276 people in 6 months
Created November 15, 2018
Juliana Cervizzi
on behalf of Sandra Maxwell-Leone
Your share could be bringing in donations. Sign in to track your impact.
   Connect
We will never post without your permission.
In the future, we'll let you know if your sharing brings in any donations.
We weren't able to connect your Facebook account. Please try again later.
BM
$500
brian mckeon
1 day ago
SC
$100
sue carr
4 days ago
SJ
$100
Sue Joyce
5 days ago
II
$25
Isabelle Ingram
7 days ago
JS
$250
Jeannie Sullivan
8 days ago
$50
Anonymous
9 days ago
SF
$50
Sheila Flynn
12 days ago
EH
$50
Eric Hanson
13 days ago
CM
$50
Christine Marini
14 days ago
MC
$100
Matt Cohen
14 days ago
or
Use My Email Address
By continuing, you agree with the GoFundMe
terms and privacy policy
There's an issue with this Campaign Organizer's account. Our team has contacted them with the solution! Please ask them to sign in to GoFundMe and check their account. Return to Campaign

Are you ready for the next step?
Even a $5 donation can help!
Donate Now Not now
Connect on Facebook to keep track of how many donations your share brings.
We will never post on Facebook without your permission.