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Hugs For Hailey

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Hailey Terrell is 8 years old and lives in Painesville, OH. She was born with Goldenhar Syndrome. Goldenhar Syndrome is a rare congenital defect characterized by incomplete development of the ear, nose, soft palate, lip, and mandible. She has had five surgeries in her eight years so far. On June 19th, she will be having her first major facial surgery. It is an 8 hour surgery and requires a two week stay in the hospital. Once she leaves the hospital, it will be a 4-6 week recovery. During this time, her mom will be taking off work to care of Hailey. She will not get paid time but she always says “family first”. Hailey is a big fan of InCahootz and can be seen at most gigs dancing her little heart out! BoDMA is holding this ride-a-thon to raise money to help with medical bills and other expenses.

*for more about Hailey you can visit   https://tinyurl.com/HugsForHailey2018

Organizer and beneficiary

Michael Kitis
Organizer
Eastlake, OH
Ryan O'Neil
Beneficiary

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