Hope for Nathaniel
$21,788 of $30,000 goal
Nathaniel has shared, and continues to share with us the greatest gifts of insurmountable joy and love that cannot be measured, let alone, described with words. I, personally, will forever be touched by what I can only describe as the purest form of light and greatness.
As we chart our uncertain course with Nathaniel, we have heard from countless friends and family who ask what else they can do. It leaves us humbled, as we have already received so much. We come from humble roots and I know my sister would never ask for help from our loving circle of supporters, however, I have seen and heard your requests to help my family.
In addition to this go fund me site, I will also set up a meal calendar for people who would like to make a meal for them so they can spend more time caring for Nathaniel.
Again, as all of you have given so much in the way of love, support, cards, gifts, and money over these years, I leave this here, as Char’s sister, at a time when I feel the need to support my courageous family.
Our story, almost three years ago.
The story about Nathaniel Allan Stolle starts when my sister and I were only kids. As young children my sister and I loved playing house with our Barbie's and creating a loving family. We played together and hoped the future would someday bring us the joy of having our own children to raise. As we grew older, people would ask what we wanted to be and Charlene's response was, "a Mom". Fast forward to 1996, Charlene and Keith were married and began their journey to become Mother and Father. For many years they tried to conceive but were not able. So, they sought medical assistance and endured five years of infertility treatments and later seven years of in vitro. Sadly, they could not physically create the child they always dreamed of and were diagnosed as the 1% of unexplained infertility. Without hesitation, they followed their hearts and faith to adopt and give a child born by another, the same love and care of the family they always wanted. For three long years they patiently waited for a child that would bring their long journey to fruition. On July 7, 2014, they finally got the call that they were chosen to become parents. Their long awaited blessing arrived July 15, 2014, and the child they had prayed for became the joy and highlight of their life. They chose the name Nathaniel and later found the name to mean "a gift from God", and he is! Keith and Charlene always said the child that was chosen for them would be a gift from God. We have all shared in the love and joy of this child given to us from Him. Nathaniel celebrated his first birthday July 15th, 2015, surrounded by his loving family and many friends that rejoiced in this long awaited gift.
On September 4, 2015, again, surrounded by the love of his family, we received the unimaginable horrific news that little Nathaniel has cancer, Alveolar Rhabdomyosarcoma. The cancerous tumor was found in his face, and a difficult surgery was performed, yet the physicians at the Cleveland Clinic could only remove 70%. We were told the type of cancer Nathaniel has is extremely rare and aggressive. The course of treatment will require 48 weeks of Chemotherapy, a second facial surgery, and radiation treatments.
I could go on about prognosis and future reoccurrences of cancer reappearing, but instead I prefer to talk about today and coming days we have with him and who he is and who he will become. He is our little warrior baby and we hope to give him all the love, support, and prayers from family and friends. His fight is our fight and with our faith in God, we know He will see him through this, and Nathaniel can overcome this battle for his life. We pray with God’s grace and strength He will give Nathaniel many more years of birthdays to celebrate and continue to be the gift and Blessing to our lives.
Fast forward to today, with a strong, Northwind blowing, I see about 20 or so Monarchs enjoying the fruits of their labor, devouring the nectar of the butterfly bush in my neighbor's yard. They made it to shore! One of many legs of their journey is complete!
The sorrow I had felt that day on the lake stayed with me until today, when I was given hope in the size of something smaller, yet bigger than me. It is through this experience, I think of Nathaniel, for he is what I considered the butterfly to be, small, defenseless, and up against what appears to be miles of obstacles. Despite having been through multiple tests requiring anesthesia, surgery, staying in an unfamiliar place, surrounded by unfamiliar people placing cold instruments upon his chest, 2 treatments of chemotherapy, with his third tomorrow, he exudes resilience. His smile rejuvenates me, his sleeping breath calms me, and his dancing brings celebration.
All of this took place in the same period of time that I first saw the Monarch on the Great Lake. I am grateful for nature's lessons, every inch forward is progress, no being is without strength, no matter the size, every day's struggle bears tomorrow's fruit. I have hope. Hope for Nathaniel.
Gratefulness and Thankfulness for to you all for you all have donated so generously out of the goodness of their hearts to support our son..during this journey to cure his cancer.. Humbled by Every donation, every letter, card, gifts, and most of all the PRAYERS! The power of prayer has brought him and us through this,..and will continue to be our source of truth and strength..and we believe it is what has given Nathaniel his strong spirit and happy moments.. The grace of Our Lord and Savior, Jesus Christ..there is nothing more powerful or perfect..We are so grateful to God for bringing this baby boy into our lives..he has been the best part of both our lives..Keith and I are blessed to call him our son. Thank you for keeping us close in your thoughts and prayers and please know that every kindness you have bestowed upon us..we will never forget..God's Blessings to each of you..we are so appreciative of all the help, love, and support..
Hallelujah!! and Good Morning! We made it to Boston yesterday afternoon..if you have never driven into Boston..well..what an experience! The tunnels under the city..ummm, did not see that coming..but we survived..found the hospital in the process..so not a total loss of time. Nathaniel has done fabulous for his first big road trip ever..we are blessed by this lil guy! of course being in a car seat for 4 1/2 hours, left him up wild and full of energy at midnight still..ughhh! So today we are going to drive around, or float around with all this rain..and see the hospital, and get the lay of the land..tomorrow we have to be at hospital at 6am..for his 7am sedated MRI. Praying for no cancer to be found anywhere else..he has not been scanned since this began in September..hopeful the chemotherapy has prevented the spread of cancer..and shrunk what is in his face..Thank you all for the support and for following Nathaniel on his journey..we are so grateful for the love and help you all offer..so today is Family Funday on Sunday..before the next 5 days holds nothing but doctors, consults, tests, scans, sedation twice, and his big overnight chemotherapy..going to have fun memories today..as we --he will have a rough week..prayers needed for this week for sure.. Hugs to you all..and Make today the Lord's day..a family Funday for your family too.! God bless you all!
~ Gratefulness ~ To the random act of kindness, generosity, thoughtfulness and the overwhelming gift of donated vacation time from some very gracious fellow Cleveland Clinic co worker/s...that I will never how to Thank..or if they, he she ?? will ever know the gratitude, thankfulness and Humbleness we feel. God bless you for thinking of our son and taking time out of your life to share this most generous gift of time and money..The check of almost $3000, was more than my heart and soul could accept..we are without words..only tears of thankfulness.. ~ May God Bless you and your family ~..for you have so blessed us..this will be most helpful as we leave for Boston soon..and begin the next challenging and frightening treatment plan in order to Cure Nathaniel..this gift will ease and assist us as we live there for the next 3 months.. ROMANS 8:28 “And we know that all things work together for good to them that love God, to them who are the called according to his purpose.”
The kindness and generosity that has been shown to Nathaniel, Keith and I, makes us even more grateful and humbled this Christmas season..We have challenges and unknown outcomes for Nathaniel beginning in January. We leave for Boston in January and begin a whole new treatment plan at Boston Mass General. On arrival to Boston, he begins his work up and consults with the amazing Oncology Radiation Team. Nathaniel will first need a sedated MRI to see how the chemotherapy has been doing thus far, and to see if the cancer has spread; then the next day a consult with the Proton Radiation doctor, and he gets admitted for his overnight chemotherapy again, after a 2 week break from Christmas week. Then 2 days later he will be sedated again for a CT scan and the simulation mask will be made for his future radiation treatments. These treatments will be Mon-Fri: 5 days/week for 6 weeks.... Along with this he will still get his weekly outpatient chemotherapy and every 2 weeks his overnight chemotherapy. I know God will continue to give Nathaniel strength and courage as he fights for his life during this treatment regimen. We are Thankful to everyone who has donated to Nathaniel's Gofundme. There are no words that can express our deepest gratitude and overwhelming appreciation and sincerest Thankfulness to each and every person who has Prayed, Called, Written, Emailed, Texted and Donated regarding our son. God is Great and He will guide us and give us the strength as parents to be as strong and as brave as he is. We hope to return o Ohio and home sometime in March..barring no complications..This Christmas our greatest wish was to have Nathaniel healthy and strong..and he is!! So, we will have a blessed Christmas with family and we wish that for you and yours. God Bless all of you and May God continue to Bless us all and show us what the truest meaning of Christmas is...Love.. ~~ For God so loved the world He gave His only begotten Son, that whoever believes in him should not perish, but have everlasting life John 3:16~~ Amen....
Week 16 of chemotherapy! Nathaniel is going to knock this out and we plan to go home tomorrow,Pray for No fevers; my little warrior baby needs to be home for Santa ! But if not as long ago we are together that is all the Christmas we need! God is Great!! And Nathaniel is so full of energy and feeling like a regular 17 month or,after a two week break from chemotherapy. Thank you for the love ❤ support and as always the Prayers!
Everything we have is from God. And we should be praising Him and thanking Him at Christmas—thanking Him for Jesus." -Charles F. Stanley
12/14/2015 Cleveland Clinic Children's Hospital Christmas
12/16/2015 Sooo, sitting at home, and our local Police Department pulls into my drive..umm, so a few things go through my head..did something happen? and they are coming with bad news..umm, did I get caught speeding..and they have come to get me.. or maybe they are just turning around in the drive..well, definitely not turning around as they came to the door..to "Wish us a Merry Christmas, as it was told to them from friends of some friends that told a little birdie..we had been going through a tough situation with our son, Nathaniel..and that on behalf of our local Police Department and Shop with Cops..they wanted to spread some Christmas Cheer to us, and for Nathaniel..they handed us a card, wished us all well on this challenging journey, and offered if we needed anything to not hesitate to call them..I was speechless once again..and full of tears and gratitude and humbleness..I have been home sick with a cold, and told them I wanted to to give them a hug, but did not want to get them sick..Keith and I stood there with Nathaniel, with tears in our eyes, expressing our thankfulness to them, and how thoughtful this was, and how we appreciated this kind gift..They said No thanks is needed..we hear you are some special people t too and very giving and now it is time for you to receive.. I truly cannot believe how many people have reached out to us..but then again, we do know we are so Blessed to have some many Awesome and Wonderful Family and Friends in our lives..and family and friends of friends that have reached out to us and given so much love and support-emotionally, verbally, financially and most of all spiritually. When the officers left and we Wished them a Safe and Merry Christmas..I opened the card to find a $500 gift card to Walmart..I am without words still..as I type this. It is so hard to receive..when all you want to do is give back..which when this is over..we have so much to give back to and be of service to others again.. We have been on a terrible journey, but in spite of this cancer..we have had so many blessings and Goodness shown to us, in the ways God wants us to be..to be full of love, gratefulness, humbleness and to honor Him in names sake..God is Great and so he continues to show us the goodness of others, even more so during this most of Holy times..because Jesus is the Reason..not gifts, or material things..but the Love He has for us..and wants us to have for each other..We truly are blessed for knowing and truly experiencing God's love and the love of others..
Check out the pictures from Cleveland.com when the Cleveland Cavaliers visited the Cleveland Clinic Children's Hospital yesterday. Nathaniel Stolle is the first picture and the last picture. Thanks cleveland.com. #CavsGiving
Thank you once again to so many friends and friends of friends/family that offered such generous gifts to Nathaniel! Thank you to my ole SICU crew(wonderful friends and coworkers) who gave a generous loving supportive gift donation for Nathaniel's care. You all are so kind and thoughtful and there are no words to express enough THANK YOU's.. Only tears of gratitude.. And blessings to you and your family.. Thank you to a coworker and her family/ friends for donating a gift donation that was so meaningful and touching, as they are forgoing Christmas gifts to one another and gave that $$$ to support my son! So many people have reached out to support Nathaniel in so many ways love, kind words of support of hope, gifts, donations and most of all prayers! For which All things are possible with God! We are so humbled and grateful for you all, that God has put in our lives! God bless you all!
Today I had my 8th chemotherapy treatment. Doctor Anderson said I am looking wonderful! We are now having to have the trio of chemotherapy every 3 weeks, instead of every month; as this is the next phase of his treatment plan. I am feeling good and being a typical 15 month old
We would like to THANK you all for your gifts of support. The thoughtful and generous donations will be very helpful and utilized when we travel to Knoxville, Tennessee for Nathaniel's specialized radiation treatments and his concurrent chemotherapy treatments that will take place at East Tennessee Children's hospital. We do not know yet when we will be going, but it will be a very long process : Six weeks of radiation-Monday through Friday, while receiving his chemotherapy weekly also. This will be quite a journey not only for us as a family, but for our sweet son most of all. Thank you and God Bless you all for the love, prayers and support.
Today is my 5th week of Chemotherapy and I am doing great! God's grace and strength and all of your prayers is what is giving me the energy to fight cancer and Stay Strong! Waiting for my chemotherapy medication,and then we meet the radiation oncology MD today,to hear about the next step of my treatment to beat this cancer! Thank you for thinking of me and praying, we all appreciate the love ❤ and support!!
Nathaniel is now offering updates : My mommy updated below on how my day went today...which was not a very fun one.. For me or her...I had to have a shot in my leg to build up new white blood cells to fight off infections. Both mommy and me and daddy are doing better now.. I was good once the burning was over in my leg. Good thing I still have chunky baby thighs. Mommy did a good job but I know it made her sad, but once I started playing with my toys again and getting into stuff, she felt better because I was back to being Me! Thank you everyone for praying for me and asking God to protect me, I think your prayers are working, because I am doing great! God bless you all!! Time to go and take a nap
Per Nathaniel: So my mommy gave me my shot today and it hurt not only me but both my mommy and daddy. Mommy gave me a big hug and held me until I was better. I'm going to get this shot once every 3 weeks for neutropenia caused by the Chemotherapy lowering my Neutrophils. Neutrophils are key components in the system that defend against infection. An absence or scarcity of neutrophils (a condition called neutropenia) makes me vulnerable to infection. After my chemotherapy, the ANC is usually depressed and slowly rises, reflecting the fact that my bone marrow is recovering and new blood cells are beginning to grow and mature. In practical clinical terms, a normal ANC is 1.5 or higher when talking in hundreds; a "safe" ANC is 500-1500; a low ANC is less than 500. The shot I get starts my bone marrow right away. It's called Neulasta. Neulasta •This medicine is used to stimulate the growth of "healthy" white blood cells in the bone marrow, once chemotherapy is given. White blood cells help the body to fight infection. This is not a chemotherapy drug. •This medication is usually given at least 24 hours after chemotherapy to stimulate the growth of new, healthy, white blood cells (WBC). Common side effects are bone pain and pain at the injection sight. I know this is important and just another thing I have to be brave enough to undergo.
Per Nathaniel: I've over heard there's going to be a lot of talking next week about my radiation treatment. Dr. Anderson wants me to go to a special place in Knoxville TN. There they have a better treatment for me called Proton Therapy. http://provisionproton.com/ What is Proton Therapy? The Provision Center for Proton Therapy is the first of its kind in Tennessee and only the second in the Southeast. They provide the perfect combination of personalized, comprehensive patient care and leading-edge technology, offering one of the most advanced cancer treatments in the world. I'm so glad. Proton therapy is an advanced form of radiation therapy that uses a single beam of high-energy protons to treat various forms of cancer. Just as with conventional radiation therapy, proton therapy treats tumors by directing radiation into the tumor site where doses of radiation destroy cancerous cells. However, unlike conventional radiation therapy, in which x-ray beams deposit their energy into the healthy tissue before and after the tumor site, physicians can control the timing and dosage of energy from protons, which allows the maximum energy deposited directly into the tumor, reducing damage to nearby healthy tissue and thus limiting negative side effects. This I hope will reduce the damage to my face as I grow. With regular radiation therapy my cheek bone marrow will be destroyed and not grow anymore. Also there is a possibility of me going blind in that eye on that side of my face. How It Works Their treatment rooms use pencil beam and uniform scanning, which further increases the precision of radiation, reducing overall treatment time and allowing the tumor to be directly targeted with aggressive doses of radiation in a safe way. Cancers that they Treat at Provision are: Prostate Cancer Breast Cancer Brain Cancer Head and Neck Cancer Hodgkin Lymphoma Pediatric Cancer Lung Cancer Pancreatic Cancer and my kind of Cancer Sarcoma Bone and soft tissue sarcomas are cancerous regions that can begin in any part of the body. Found in both children and adults, about 60 percent of sarcomas begin in an arm or leg, 30 percent in the abdomen and 10 in the head or neck. Rare in adults – accounting for 1 percent of all adult cancers – sarcoma is most often found in children, representing about 15 percent of all pediatric cancers. I have heard I may be there for a long time getting this treatment.
We love you Connie, my sweet sister for doing this for Nathaniel..WE are so humbled, grateful and just overwhelmed by the love, prayers and support for our sweet little boy who has become our "warrior baby" as he fights the battle for his life.. ~~May God Bless you all as He has Blessed us with this perfect beautiful boy~~ We Thank God He gave us Nathaniel and know God has His hand in Nathaniel's life, His Grace has brought him through his first week of surgery, PET scans, Mediport placement, Bone marrow biopsy and then Chemotherapy..all in a matter of 6 days. He has Chemotherapy again Monday... What a brave little warrior..with all of us praying and God by his side, Nathaniel has Hope to beat this Alveolar Rhabdomyosarcoma. In Jesus' name, We Praise and Thank Him for our Precious Gift from God~~~
Good Morning..and all we can say is God is Great and His Love is even Greater! Nathaniel had his second round of Chemotherapy yesterday..and thus far, he is doing wonderful..We are so happy and grateful he is without any side effects yet..but he is neutropenic: meaning his counts have dropped from the chemo and we now must be wary of any type of infection as it could pose serious health issues..and so it begins.. ~We are so grateful and blessed to have such an amazing support system of Love and Prayers and now generous overwhelming kindness and thoughtfulness with this GoFundMe.. We truly are shocked and forever Thankful for everyone who has supported our son and continues to Pray and Give us Love during this unchartered journey of Curing Nathaniel. We met the leading Sarcoma doctor in the United States yesterday and we know Nathaniel is in the best place at the Cleveland Clinic Children's Hospital. The chemotherapy is not without risk, but what is yet to come the radiation treatments will be Nathaniel's biggest challenge yet..and that process will hold more concern and long term ill effects than we yet can foresee..so we take ~One day at a time~ and try to not look too far into the future..and be Grateful for each day..We are so Appreciative to all of our Family, Friends and Friends of Friends whom we have never met that have given so generously from their heart to our sweet son..Please Know there are no words to express how we feel to you all, but know our tears of love for Nathaniel goes beyond him and for you all. Out of this horrible event in our lives we have been given the greatest gift..Love..by all of You..God Bless you and Make each day count with those you love, for we never know the plan God has for us all.. ~~ Trust in the LORD with all your heart, and do not lean on your own understanding. In all your ways acknowledge Him, and He will make straight your paths~~ Prov. 3:5&6
Thank You All for the Prayers, Hope, Support and most of all the ~~LOVE~~ for helping our sweet son..Nathaniel will know one day how much Love was shown to him and how many have given him love- even though they have never met him..So grateful for everyone's generousity and kindness.. God's Blessings to you all today and every Day!!