Hope For Elodie

$6,305 of $16k goal

Raised by 110 people in 4 months
BN
Ben Nilsson
on behalf of Annie Nilsson
 VENTURA, CA
Elodie is a brilliant, beloved little girl who suffers from a condition  called intestinal lymphangiectasia. This is a digestive disorder where the lymphatic vessels supplying the lining of the small intestine are dilated and malformed. This leads to malabsorption of nutrients; chronic diarrhea and vomiting; a dangerously compromised immune system; and severe swelling of the face, abdomen and limbs.


Elodie's case is so severe that she currently cannot tolerate any food. Her sole source of nutrition is a special medical formula called Vivonex Pediatric. She's never tasted ice cream, pizza, or birthday cake. She receives extremely painful monthly inter-muscular injections of a drug called Octreotide that leave her limping and bruised for days. She has to endure frequent hospital stays, regular blood draws, and IV infusions. 


Although it is prescribed by her doctor and is a medical necessity, her insurance refuses to pay for her medical formula, Vivonex, and for her required supplements. The out of pocket cost for these is currently over $800 a month.

Additionally, her doctors have prescribed her a common medication called Sildenafil that has shown some promise treating complex lymphatic disorders, but her insurance is refusing to cover this as well. They have also refuse to recognize the medical necessity of her recent MRI at Stanford,  and have left her family with a bill for over $24,000

Any donations collected here will go toward paying for her formula, her medication, her out of pocket medical expenses, and toward spreading awareness of this heartbreaking disease.

A little help goes a long way in helping this darling girl get the care she needs.  Thank you from the bottom of our hearts!
+ Read More
A LinkedIn For Good campaign
Be the first to leave a comment on this campaign.

$6,305 of $16k goal

Raised by 110 people in 4 months
Created November 27, 2016
BN
Ben Nilsson  
on behalf of Annie Nilsson
YK
$30
Yutaka Kikuchi
2 months ago

We will support you as much as possible ‼

$30
Frauke Timm
3 months ago

Alles Gute aus Deutschland! Great wishes from Germany!

MM
$50
Maggie M
3 months ago
$30
Paul Waring
3 months ago
MB
$5
Marika Biolcati
3 months ago
$20
Anonymous
3 months ago
TS
$100
Tom Songs
3 months ago

Here's to a healthy Elodie From a lifelong Nilsson roadie

$10
Osiel Cruz
3 months ago
$10
Anonymous
4 months ago
MW
$20
Mark Waldman
4 months ago
Be the first to leave a comment on this campaign.
or
Or, use your email…
Use My Email Address
By continuing, you agree with the GoFundMe
terms and privacy policy
There's an issue with this Campaign Organizer's account. Our team has contacted them with the solution! Please ask them to sign in to GoFundMe and check their account. Return to Campaign

Are you ready for the next step?
Even a $5 donation can help!
Donate Now Not now

This campaign needs your support

Any amount helps!
Donate Now
Connect on Facebook to keep track of how many donations your share brings.
We will never post on Facebook without your permission.