Liz's MS and T1Diabetes Fund
Liz achieved a First in her BSc in Psychology prior to her MS diagnosis and she has done charity work for the Samaritans and JDRF. She has so much to give to the world, so much to offer. Obstacles are constantly thrown in her way, but she continues to amaze me and everyone who knows her by continuing and growing stronger. This is one resilient woman!
Liz has an intravenous infusion of the medication Tysabri monthly. Whilst we endeavour to make this as stress-free as possible (her mum sends treat bags of sweet treats in the post a few days before - nom!), there is no denying that it is a challenging concept. These infusions will take place for as long as the medication continues to work.
Regarding her MS, Liz is affected from top-to-toe. She is plagued daily by symptoms, including visual disturbances (Nystagmus and Optic Neuritis), fatigue, chronic pain, balance problems, mental health difficulties.
At the end of 2014, Liz's estranged father passed away, leaving her financially insecure. Despite this, Liz kept going. She is now accessing the benefits she is entitled to, however these do not leave any disposable income outside of the cost of general living.
Liz uses a wheelchair to help manage her symptoms. One of the most common symptoms of Multiple Sclerosis is fatigue, which makes self-propelling a massive task as it involves so much strength and endurance Liz is reluctant to move into a mobility scooter, wanting to keep as active as possible. This fund will help Liz access more equipment. The Alber E-Motion wheels were recommended by a mobility expert. They are designed to give the user more freedom and control over their mobility.
A short video explaining the wheels can be found here:
A slightly longer video can be seen here, demonstrating the use of the wheels up and down hills:
If we could raise more than the amount to cover the cost of the mobility equipment, it could go towards funding the use of a Continuous Glucose Monitor. Liz's MS symptoms combined with her T1 Diabetes symptoms make for a hefty cocktail of uncertainty and confusion. It is consequently harder to manage her blood sugar levels, which would most definitely be aided by the use of a CGM. However, these are costly, averaging around £40-60 a week for the sensors needed.
It would also be amazing to take a trip to see a specialist Neurologist and get some up-to-date relevant guidance regarding Liz's MS. Although we are lucky enough to have access to a neurologist, we haven't had the best treatment from him.
Thank you for taking the time to read this :)
2 years ago today I was diagnosed with highly active relapse remitting multiple sclerosis. In the past year I've had 12 intravenous infusions and countless medical appointments...but I've also graduated, been offered three different jobs, been in the newspaper, a magazine and on the radio. MS may make everyday a challenge and bring an air of uncertainty for my future but it also makes me more determined.
I have Multiple Scars (sclerosis) and also More Strength!
HI my lovelies fantastic news i am so pleased for you over the moon you deserve it lots of love to you both would love to catch up at some point soon XxX
Hi Emily, Liz is a real true gem, she has done so well with you by her side, say hello to her mum from me & could you please tell Liz that I think of her allot & tell my new staff about her, it was a real pleasure to meet such a lovely women, hope you both have a great Christmas xx Alison
So pleased your getting closer to your target x