Help 4 Kids With JHD

This is me (Jacey) and my close family Virginia. We don't live by eachother and it was a last wish that I do a fundraiser with her, so we're online!! We both have juvenile huntington's disease. Its genetic progressive terminal. It kills within 15 years, and they're all just children. We're trying to help them with what they need. So many have passed away even at age 4. They have seizures and get completely stiff muscle spasms that can even rattle your lungs they need feeding tubes to be able to eat and drink things they have jerking and it's extremely painful. Trust me, I feel it it hurts so bad they call it a devils disease. There's not enough help for the kids but whatever we can do for them the better right? Please help us help them. Love,
Jacey and Virginia