Justin's Medical co-pay'n treatment
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This is difficult for me to come and ask for aid. I managed to scrape by the last time a while back and barely managed to get my SSI back but right now that isn't enough to cover the co-pays and medical bills that have been stock piling up that my insurance has been refusing to cover.
For eight years I had been struggling with elevated liver function and the doctors tossing me around not knowing what to do for me and for a while I had no insurance my SSI was cut off and I was left scratching at the dirt trying to find my way. With the help of a decent lawyer I managed to get my ssi back, managed to get some sort of insurance and then after many doctors. Many, many of them. Some telling me I'm 'to young' to be this sick or it's in my head or it's because of depression or ptd from having been hit by a train in my younger years which caused the loss of my left foot.
I managed to find a nerologist and gastroentologist that actually listened to me, who read my blood work and issues copper testing. I'm currently 31 and thanks to them and genetic testing I have been diagnosed with Wilson's disease. The disease is inherited, meaning from day one of my life I've had this issue and the slow and steady build up of copper began . The disease if untreateded can lead to death with a slow and painful procress of copper poisoning. The liver cannot remove the copper on its own, so it sends it to other area's of the body. Brain, muscles, even bones. Siezures, memory loss, dementia, loss of motor controll and liver cirosis.
I wasn't diagnosed till I was 30, and symptons had already started showing when I was 19 but was daignosed with fatty liver. A misdiagnosis. So over time the copper kept building, kept accumulating and in the end it finally started manifesting in tremors, body ticks, muscle weakness and siezues. Copper deposits were found in my brain which with a chelation drug Syprine can slowly remove the overloaded copper from the body. But my insurance refuses to cover it, wanting my doctor to use an alternative that could cause far to many harmful effects on my body with it in its current state.
We went directly to the manufactuer, but even at reduced cost the price is still high. Not to mention that recently I have suffered a stroke. Do to the nature of wilson's disease you run the risk fo easy bleeding and do to an accident involving a siezure and me hitting the pavement, my neck hit the curb. Over a few days a clot had formed and managed to clog a vein in my neck which lead to the stroke. Currently my left arm is no longer able to function further preventing me from making what little extra money I could make to barely scrape by with all my medical debt and trying to afford to even feed myself even with public assitance from the state.
I need help with copays for hospital treatment and copay for the Syprine. Without it with my current copper levels my health will continue to deteriorate and my body will fail. I want to get better, I want to live as close to a normal life as possible and get my life back on track. To get therapy for the damage cuased by the stroke if it's possible but none of that can happen unless I reach my goal.
I need help. I wish I didn't need it, but any little bit helps and any little bit helps. Even information to help get propper treatment for this genetic disease since it's so rare.
The money will go towards the bills and my copay , it will help me continue fighting this disease and try to get through to a stable point to live and the funds are needed within the next month's time. I'll be trying my best to keep updated but it's hard with unstable hospital net.
For eight years I had been struggling with elevated liver function and the doctors tossing me around not knowing what to do for me and for a while I had no insurance my SSI was cut off and I was left scratching at the dirt trying to find my way. With the help of a decent lawyer I managed to get my ssi back, managed to get some sort of insurance and then after many doctors. Many, many of them. Some telling me I'm 'to young' to be this sick or it's in my head or it's because of depression or ptd from having been hit by a train in my younger years which caused the loss of my left foot.
I managed to find a nerologist and gastroentologist that actually listened to me, who read my blood work and issues copper testing. I'm currently 31 and thanks to them and genetic testing I have been diagnosed with Wilson's disease. The disease is inherited, meaning from day one of my life I've had this issue and the slow and steady build up of copper began . The disease if untreateded can lead to death with a slow and painful procress of copper poisoning. The liver cannot remove the copper on its own, so it sends it to other area's of the body. Brain, muscles, even bones. Siezures, memory loss, dementia, loss of motor controll and liver cirosis.
I wasn't diagnosed till I was 30, and symptons had already started showing when I was 19 but was daignosed with fatty liver. A misdiagnosis. So over time the copper kept building, kept accumulating and in the end it finally started manifesting in tremors, body ticks, muscle weakness and siezues. Copper deposits were found in my brain which with a chelation drug Syprine can slowly remove the overloaded copper from the body. But my insurance refuses to cover it, wanting my doctor to use an alternative that could cause far to many harmful effects on my body with it in its current state.
We went directly to the manufactuer, but even at reduced cost the price is still high. Not to mention that recently I have suffered a stroke. Do to the nature of wilson's disease you run the risk fo easy bleeding and do to an accident involving a siezure and me hitting the pavement, my neck hit the curb. Over a few days a clot had formed and managed to clog a vein in my neck which lead to the stroke. Currently my left arm is no longer able to function further preventing me from making what little extra money I could make to barely scrape by with all my medical debt and trying to afford to even feed myself even with public assitance from the state.
I need help with copays for hospital treatment and copay for the Syprine. Without it with my current copper levels my health will continue to deteriorate and my body will fail. I want to get better, I want to live as close to a normal life as possible and get my life back on track. To get therapy for the damage cuased by the stroke if it's possible but none of that can happen unless I reach my goal.
I need help. I wish I didn't need it, but any little bit helps and any little bit helps. Even information to help get propper treatment for this genetic disease since it's so rare.
The money will go towards the bills and my copay , it will help me continue fighting this disease and try to get through to a stable point to live and the funds are needed within the next month's time. I'll be trying my best to keep updated but it's hard with unstable hospital net.
Organizer
Justin Neuroth
Organizer
Ogdensburg, NY