We've got you Jason!

$39,270 of $70,000 goal

Raised by 147 people in 5 months
Jason is 39 years old, he has a wife, Anthea and two children - Brae, 14 and Georgia, 11.

Jason was sadly diagnosed with Motor Neurone Disease on 31 October 2017 and was told he only has 2-4 years to live.

Motor Neurone Disease (MND) is a progressive terminal neurological disease that destroys motor neurons in the brain and spinal cord. These are the cells that control essential voluntary muscle activity such as speaking, walking, breathing, and swallowing. The things we all take for granted.

This means that messages from Jason’s brain will gradually stop reaching his muscles, which will lead to weakness and muscle wastage. Each day in Australia, two or more people die from MND and more than two people are diagnosed with MND.

Jason’s diagnosis
Jason’s doctor told him that each individual takes their own journey with this disease, but in the next breath told him to create a bucket list and go live life, as life expectancy with MND is only 2 to 4 years. To say he and Anthea were completely floored is an understatement. 

Where your contribution is going
In retirement, Jason planned to travel Australia with his family. Unfortunately, these plans now need to be brought forward as Jason may be confined to a wheelchair within just a few short years.

Our goal is to raise money so he can get on the road sooner and get to making lifetime memories with his family doing what they all love.

Any donations will go towards buying a caravan, fuel costs, other essential travel needs plus ongoing medical expenses, so that Jason and his family can live their dream trip. 

We appreciate any donation
Jason is not the type to ask for help, so his family have set this page up for him.

If you know Jason, then you know that if you asked him for help he wouldn’t hesitate.

We’re grateful for your support.
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"For all you do, for who you are, we will be forever grateful you are in our life."

** Appreciation post **

Jason Smith Barefoot Bowls Fundraiser

Well what a successful night!
$9568 was the total raised which exceeded and smashed the original $5000 goal.

40 people enjoyed a friendly roll up of barefoot bowls, with a hint of competition!

We absolutely appreciate the support that we have received from this community.

We haven’t lived in Nyngan for over 20 years, and yet here we are surrounded by people whom have been apart of our lives in some way or another to show their support for Jason and our family.

Something that country towns do really well is to come together when someone’s in need and this is something that truely sets you apart from the city.

A massive thank you to Karina Dunn, Michael and Angie Bush, Todd and Rachelle Rope, Ron and Chantelle Findlay, Rhianna and Baden Powell, Wendy Clissold, Kaylene Donnelly and of cause our immediate family Jenny and Marc Fishpool and Liz, Pat, John and Diane Wynne. To the generous people who donated prizes etc, sold tickets, made salad and coffees, cooked bbq’s or participated in any way.

As we were not part of the organising committee, we are unaware of who’s done what. We want everyone who put in any effort into any fundraising for Jason, to know that we are truely grateful.

We try not to dwell to much on the diagnosis, cause Jason has too much to live for!

There have been many lessons learnt since that awful day in October:

1. Your mental health is important. Get help if you need it.
2. Meditation can change your world if you are open to it.
3. Don’t sweat the small things.
4. Live life to the fullest.
5. Make sure your insurances are in place before this happens to you.

If we can help just one person going through something similar with this bit of advice, so be it.

We are blessed to be surrounded by so many supportive people, here in Nyngan, in Canberra, the Motor Neurone Clinic, the ForeFront Clinic at RPA in Sydney and of course our families.

Thanks Nyngan!
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So a few things have happened in the last month or so.

Jason has finished work. He needed to do this as the stress he was putting himself under was affecting his well-being.

This changed our household primarily in three ways:

1. We now only have one car.
Surprisingly this has had minimal impact. Our good friend Erin takes me to (and most days from) work, and Jason drops all the kids to school (including Erin’s). We always seem to work it out when we need to be in two places at once.

2. Jason is now a house husband.
His life revolves around coffee, washing the clothes, cleaning the house and believe it or not going food shopping (imagine road rage in the supermarket aisle x 10). Surprisingly he has taken to it like a duck to water. I’ve been secretly training him for 23 years! Every now and again he goes on a man date to catch up with old colleagues or secretly purchase lures from Prestige Tackle.

3. His mobile phone
He went from 15 years of having a work mobile to switching to a personal phone. I still can’t remember his new mobile number!

Jason turned 40 in March, we had a smallish bbq birthday bash in our backyard. It was a great time to just chill, have a few bevy’s and catch up with friends.

We have attended a few medical appointments of late, all with positive results. So fingers crossed we continue on this path.

The Canberra Electrical Community held a charity golf day in support of Jason, but that requires its own update which I will report on soon.

Tomorrow we are heading out to Nyngan to attend a charity bowls day that is being put on to support Jason (Nyngan Bowling Club | Saturday 21 April 2018 | 4pm). We are looking forward to catching up with family and friends, some we haven’t seen for quite a while. It should be a good night.

The 21st April also coincides with our 17 th wedding anniversary. I plan to sleep in, wonder if Jason has gotten me a present????

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From the bottom of our hearts we thank you for your kind donations.
We have been so overwhelmed and humbled by everyone’s generosity.
We truely are supported by amazing people, especially our Canberra and Nyngan communities.

There has been tears, anger, anxiety, bewilderment and love, especially love.

Our pride has had to take a backseat since Jason’s diagnosis, and that has been a hard hurdle to overcome.
You don’t realise how life changing it is until you are living in it and how much it impacts you and the people around you.

We are well. Jason is well.

We have had to put some changes in place to minimise stress, and that seems to be making a big difference in Jason’s day-to-day life.

We are using the power of your positivity to our advantage. Our dreams are becoming a reality with your help.

Heartfelt thanks

The Smiths
The one and only yabbie caught that day!
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$39,270 of $70,000 goal

Raised by 147 people in 5 months
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