Help Denila Fight Lymphoma
Here is my wife's story:
"My name is Denila and I am 29 years old. Two years ago, when I discovered a lump in my neck, I never imagined that my whole life would change completely. It was twelve days after my son’s fourth birthday, on March 24, 2014, that my doctor diagnosed me with stage IV Hodgkin’s Lymphoma. In the beginning, I simply refused to accept the diagnosis. How could I have cancer? No one in my circle of family and friends had this disease. But as I waited in the waiting room, I saw patients with bald heads, tubes attached to their nose and mouths and in great pain. Reality hit me hard. I was one of them.
As part of my treatment, I underwent six lines of chemotherapy, bone marrow biopsy, lung biopsy and numerous PET scans. I quit my job. Today, I can no longer look after my son the way I used to. I loved to bake cakes for my husband, but now I no longer bake. I had smooth and silky hair and I enjoyed dressing up and trying out new hair styles. Today, I am learning to deal with my complete hair loss. I can no longer enjoy the simple pleasures of playing outdoors with my son or go shopping to a mall, for fear of catching an infection. I miss having a good night's sleep. I try to be strong but I am human. On days when I am weak, I feel anguish and pain.
However, in spite of the tears, I have reason to cheer. I have been blessed with an incredible family. My husband has been my beacon of hope. No matter how hard it has been for me and for him, he always smiles. My mother has been by my side throughout my treatment. She’s the one who tirelessly attends to all my needs, be it preparing nutritious soups and juices or praying with me. My in-laws have also been extremely supportive. They look after my son and make sure that I get all the rest I need. They are old and it hasn’t been easy for them, but they have never complained. So many of my cousins and friends have reached out to me. And I am so grateful to my pastor for the encouragement he has given me. His sermons fill me with immense hope and strength to fight my disease. I desperately want to live for my son, my husband, my family. I have dreams of leading a normal life again and I trust in God that I will be healthy once more.
I am grateful that today, Hodgkin’s Lymphoma is one of the most curable forms of cancer. As part of my current treatment, I have been prescribed Brentuximab Vedotin. This is a prohibitively expensive drug, but it promises me new hope. Having exhausted my funds on chemotherapy, I am now depending on the kindness of friends and strangers. I would be extremely thankful to you, for any amount that you can contribute. No donation is too small. With your prayers and contributions, I know I can be healed."
I try my best to post the treatment updates in my facebook page -
PLEASE forgive me for not updating frequently. These past two weeks have been a roller-coaster with tests and travelling back and forth. But I do have some wonderful news to share with all of you. I had a PET scan on Friday and the results show that there is no metabolically active disease anywhere in my body right now. What this means is that the stem cell transplant has successfully eradicated my cancer cells. I’m really grateful to God for this miracle.
I was just thinking of all those PET scans I had before. I would go with soo much expectation and then my heart would break hearing the bad news, and watching my family deal with the pain. I will never forget what I have been through. I can't thank and praise God enough. He is the only one who held me through each and every moment. He was there when I was alone. When everyone else saw my smiling face he saw my aching heart. He was with me all those countless nights I slept crying. He gave me a wonderful family who stayed by my side through this battle. He gave me blessed friends who supported me and lifted me in their prayers. He gave me wonderful doctors and nurses. There are no words to explain how blessed I feel to have had all of your prayers and support.
I am admitted in the hospital now because of some side effects resulting from the transplant. This is called graft-versus-host disease or GVHD. Due to GVHD, the donor’s transplanted cells are treating my body as foreign and are attacking my cells. A little GVHD is actually good, because the donor cells will attack any cancer cells that may be remaining. But it is also quite distressing as for me it has caused severe itching and skin rashes on large parts of my body. I am being treated with steroids and am feeling much better.
Please do remember me in your prayers like you have always done. God bless each and every one of you.
I had fever two days back and was admitted to the hospital for tests. The doctors couldn't find anything conclusive and also my fever went away. So they discharged me. It feels so good to be posting this update eating yummy homemade food.
I am getting growth factor injections to improve my WBC count.
Thank you all for your kindness in supporting me throughout this battle. May God bless you with double fold blessings. Please do continue to remember me in your prayers.Thank You.
Her ICU expenses are piling up. We need another $12,500 to meet the expenses. Once again, we humbly request you to contribute any amount to help us. We will be ever grateful for your generosity.
Her condition has not improved. But nothing is impossible by our mighty God.
Please continue to uphold Denila in your prayers. We can't thank you enough for your prayers and support.
Denila stay strong.. Always Trust in God and dream big for the future.. You are such a gentle person and a wonderful mom whom i used to admire.. We pray for you to cross this struggle soon with the support of your family and friends.. You are and you will continue to stay as an inspiration to all of us.. God Bless.
Corrinne Henderson - you addressed someone named Bettina in your post. We have a dear family friend here in Alabama named Bettina. It's not a name I hear very often, and I was wondering if she is originally from Alabama, and had been married for many years to a doctor. If so, we are friends with the same beautiful person. (If you see this and answer, please answer on facebook. Just send a friend request and I'll answer. Thank you!
Awesome! I thank our Father in Heaven and His Son, the Christ(Messiah) for making this happen. Thank you all for your kindness and support. I am glad to find that this world still has a lot many souls who have the characteristics of God.
I just saw Bettina today and asked how you were doing. We are praying for healing, strength, wisdom, and peace. God bless you. Keep fighting! This battle belongs to the Lord.