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Help Prakash fight Glioblastoma

$60,451 of $80,000 goal

Raised by 261 people in 5 months
Hi Everyone,

I was diagnosed with Glioblastoma Multiforme  - the most aggressive form of Brain Tumor there is in November of 2016. I have chronicled in detail the journey since then at  http://www.braincancerchronicle.com/2018/02/the-story-so-far.html and subsequent blog posts.

Very recently, on June 20th, 2018, we were told from an MRI report that the tumor is back in a different part of the brain:  http://www.braincancerchronicle.com/2018/06/the-monster-rears-its-ugly-head.html

The tumor recurrence needs a brain surgery to be done in the next few weeks as surgery is the first line of defense against the tumor. Consequently, I will be unable to work and earn my living for a few weeks in the next couple of months.

Things have become even more difficult for me and my family as I got into an unfortunate accident resulting in a couple of broken leg bones last weekend:  http://www.braincancerchronicle.com/2018/06/a-moments-bad-judgment-leads-to-serious.html


As I have explained in this 5-minute video at Ignite Boulder recently, tumor recurrence is a highly likely possibility for a Glioblastoma patient, and multiple tumor recurrences over a few years - each of which will need a brain surgery to address - is likely to kill the patient in a few years. 

There is room for hope despite this dire prognosis as innovative and effective treatments are being investigated to cure/handle this terminal brain cancer. Most notably, Duke University announced on Tuesday, June 26, 2018, about the impressive results they have observed from the Poliovirus Therapy Treatment in Phase 1 clinical trial. 

I am seriously investigating the possibility of me enrolling in this treatment at Duke University in the very near future.  http://www.braincancerchronicle.com/2018/06/getting-serious-about-moving-to-durham.html

Also, hoping for more innovative and effective treatments to come along in the near future to further expected lifespan while dealing with Glioblastoma.

I am starting this fund-raiser to help me deal with Glioblastoma as effectively as possible while continuing to live as normal a life as possible.

Even while I was in full-health before the brain surgery and terminal cancer diagnosis, I was having difficulty making ends meet as a freelance Ruby on Rails Developer. This problem has been worsened since the surgery in November of 2016, with ongoing treatments, physical and mental limitations from surgery and treatments, lack of a stable income/disability insurance to cover for expenses while I was not able to work/find work, and other factors. The situation has worsened even further since early 2018 because of increased costs of living - increased healthcare premiums, increased rents, increased expenses for support and  unconventional treatments (supplements, diet changes, running marathons, counseling, etc.)

Almost every month since the original surgery in November 2016, I have faced a huge gap between my monthly income and the monthly expenses. I have been addressing these gaps with various strategies as follows:
* Start a fund-raiser: I had one fund-raiser last year and got a very encouraging response from my friends, family, and well-wishers in the numerous communities I have been fortunate to have been part of.
* Avoid/postpone paying bills: A big item in this category is my tax-filing for 2017. I filed for an extension and have not yet paid the taxes due for last financial year. Expecting the bill with penalties to be in the $15,000 range.
* Withdraw from my retirement savings account:  Earlier in March of this year,  my bank balance was close to zero and I decided to clean out my retirement savings account instead of making it a habit of starting fundraisers on an annual basis.  http://www.braincancerchronicle.com/2018/03/time-for-another-fund-raiser-to-help-me.html
* Charge everything to a Credit Card: There have been many big bills coming my way in the recent past from the treatments, as well as my wife's USMLE preparation work. Since all these expenses are unavoidable, I have been charging them to my credit cards. Consequently, I have raised a total of around $30,000 on credit card debts - $16,0000 on personal credit cards and $14,000 on a business credit card.
* Reach out to close friends for private donations: In the last couple of months, 7 of my friends have helped me out to a tune of $7,000 through private donations with my financial situation.

In addition to outlasting terminal cancer, I want to turn myself into a writer as I have been mulling around three memoir ideas:

1. Years 1 & 2 with terminal cancer: A chronicle of my journey with Glioblastoma since the initial diagnosis to surviving the first two years. Hoping to write a short, inspirational and educative tome on this topic.

2. How I turned myself from a 5-hour-marathoner to a 2.5-hour-marathoner and qualified for Boston Marathon as a middle-aged-man: Qualifying for Boston Marathon has been an inspirational goal for me for the past decade or so. I hope I will be able to turn myself from my current ability to finish marathons in 5 hours time-range to be able to finish in half that time, and document the process along the way in this memoir.

3. Dear Aisiri - A letter to my 4 year-old-daughter: I hope to be around through my daughter's childhood, growing up to be a strong and independent woman, and become a parent herself. If Glioblastoma were to make that impossible and force my daughter to grow up without a father during her important formative years, I hope to leave behind a document that she can fall back on for inspiration and hope in the years to come. 

Any help you provide through this fund-raiser will go a long way in helping me and my family deal with Glioblastoma with a very positive attitude and increase our chances of outlasting this monster. We thank you with immense gratitude for your help in our tough times.
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Thanks, everyone for helping out!

Today is the second anniversary of my Glioblastoma diagnosis. Wrote more about it at https://www.braincancerchronicle.com/2018/11/counting-my-blessings-on-second.html

I have been busy looking for a fulltime job after concluding that my freelancing career - the way I was going about it - isn't conducive for my cancer-fighting life. No success yet; but there are quite a few opportunities out there; will keep trying. I am signal-boosting this fundraiser as I need help over the next few weeks while my efforts at finding a job pay off.
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My Oncologist called today evening to inform us that Wednesday’s MRI - first one since my second craniotomy on July 19th, 2018 - shows only some post-op changes, and there is nothing to worry about!

Immensely relieved.

#Glioblastoma
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Had some good family fun today evening ahead of tomorrow afternoon's scheduled brain surgery.

http://www.braincancerchronicle.com/2018/07/a-calming-pre-surgery-task-on-day.html
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We had a follow-up appointment with the Orthopedic Surgeon today.

The X-Rays show that the metal plate and the screws put in place to fix my fractured left tibial plateau is firmly in place where it is expected to be. The surgery wound is healing well, with only a scary looking scar on the left side of my left knee as proof that some serious work has been done here.

I have been adviced to continue not putting on any weight on my left knee for another 4 weeks to let the whole thing settle up well and heal better.

So the knee surgery saga is at a logical end for now, with a long recovery period ahead before I can start walking/running.

That comes with a perfect timing ahead of the Craniotomy planned for Thursday, July 19.

Our hope is that the brain surgery would go as smoothly as the knee surgery, and with no serious side-effects. Fingers crossed. Prayers prayed.

Thanks, everyone for being there for us in our troubled times!
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$60,451 of $80,000 goal

Raised by 261 people in 5 months
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CK
$150
Corey Kohn
2 days ago
VB
$50
Vidhya B
11 days ago
$200
Elaine Ellis Reddy
14 days ago
$25
Anonymous
15 days ago
$25
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16 days ago
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16 days ago
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20 days ago
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25 days ago
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