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Help Nick Stay in Remission Safely

$38,066 of $150,000 goal

Raised by 626 people in 8 months
Created September 10, 2018

32829606_1536624526777547_r.jpegHelp Keep Nick in Remission with Non-Toxic Preventative Therapies


Nick is a bright, kind-hearted Junior Black Belt who loves music and art. He is also a boy scout and enjoys hiking and camping.  After a long year of hard work in school, all he could think about was spending the summer with his friends.

School ended on a Friday and just 3 days later, we ended up in the Huntington ER.  Nick was transferred that night to Cohen Children's. On June 30, in a meeting with a group of doctors and staff, Dr. Julie Krystal told us he had AML (Acute Myeloid Leukemia).  She said he had 90% leukemia blasts in his bone marrow. I challenged her on the diagnosis because test results seemed to show a different type of leukemia.  When I asked for a pathology report,  she toldme it wasn't available.  I asked for a second opinion, explaining I thought they were making a mistake and why. 
 
She said I could pursue a second opinion, but they would not delay treatment.  She also told me very clearly if I didn't sign consents immediately, she would call CPS, have me removed and give Nick the treatment anyway. Dr. Krystal stated the treatment for the first month would be the same regardless of the type of leukemia he had. This turned out to be false information. 
 
He began treatment for AML on June 30th.   Four days later, already into the wrong treatment protocol, I was provided a copy of the final pathology report which showed he had a very rare form of leukemia called MPAL.

Overnight, our whole world was turned upside down. Being a single mom, not having family nearby, has been pretty hard in not having consistent support (and sometimes none at all). After Nick was admitted to Cohen, I literally lived in the hospital with him, barely leaving his side.

Cohen Children's continued the AML treatment, even though it was not the standard of care for the type of cancer he had.  Nick had adverse reactions to several of the drugs and developed a life threatening bacterial infection and organ damage to boot. The chemotherapy was super intense and he lost over 20% of his body weight. It’s a miracle he survived.

After 30 days of not being able to eat, almost dying, and having severe adverse reactions to drugs, Dr. Krystal told us all signs pointed to him being in remission and he could go home.  She explained they would monitor him outpatient until his blood counts recovered and they could do a test called an MRD.   A Minimum Residual Disease test tells them the tiniest amount of cancer he might have, down to .01 cancer cells.  I met with the head of the department, Dr. Lipton and explained we would finish outpatient care, but would not be returning to Cohen for future inpatient treatments. I told him I would be pursuing second opinions at local hospitals, as well as around the country to determine where I wanted Nick transferred and would not tolerate a repeat of what transpired at the beginning where he was forced into improper treatment. He stated he understood and promised to give us time to transfer Nick's care after the bone marrow results came in.

Once Nick was discharged, we got straight to work on boosting his immune system with lots of organic fresh juices (70 oz daily), salads, and fresh fruits and veggies, along with alternative protocols and therapies. He began to look and feel much better.

I took him to other facilities in the area for second opinions, because there was no way I was allowing Cohen to do further in-patient treatment under any circumstance. They misdiagnosed him, gave him wrong treatment, threatened to take him away from the very beginning and messed up a procedure, among other things.  Dr. Wolfe, one of the heads of the department, at one point during the admission told me it was a courtesy they were providing any medical information to me about my child.  It was a terrible experience from start to finish.

On August 24, 2018 they performed a bone marrow aspirate for the MRD test they told us about.  We attended an outpatient appointment on August 29, 2018 where they reviewed the MRD results.  His treatment was "a complete induction failure" according to Cohen.  They told us his bone marrow was packed with 90% leukemia cells and peripheral blood had 57% leukemia blasts. We reminded them we were going somewhere else.

They called the police and CPS and told them Nick was dying. They stated he was in imminent danger, that his white blood count would continue to rapidly rise and as a result, Nick could die at any moment. They told CPS I was "refusing all medical treatment".

Here's what actually happened.  The facilities I had seen and spoken to in August  refused to take him when I followed up with them after the bone marrow results, stating they had spoken with Cohen staff and it was better if we stayed where we were. In the meantime, his white blood counts stabilized and his leukemia blasts in his blood reduced from 57% to 25%. 

Hmmmmm, so let's review....... Wrong diagnosis. Wrong treatment. Mistakes on procedures. Mistake on remission.  Mistake on prediction that his blood counts would rise rapidly.

CPS chose to use the doctor's allegations and ignore the documentation I provided them of what was actually happening.

According to CPS case files and interviews with staff, Suffolk County Commissioner John O'Neill made the decision to remove Nick without a court order on September 2, 2018, at 3:30 am.  Officers from Suffolk and Nassau counties, as well as a detective from Queens accompanied CPS workers and an ambulance.  CPS caseworkers told me they just needed to have him "checked out", but what they actually did was transport him to Huntington hospital, where he sat for almost 7 hours completely unattended or examined. I was shocked, especially when I was told he was dying.  

CPS emergency workers requested the ER doctors draw blood and do an exam and the head of the ER denied the request, stating Cohen had instructed him to not touch Nicholas. He was then forced back into Cohen, to be at the mercy of the doctors who already harmed him and committed malpractice.  I  begged CPS starting August 29, right up 'til the day they took him not to bring him back to Cohen. I pleaded with them to take him anywhere in the world but there because they had made so many mistakes on him and because Nick was afraid of them.

Once back at Cohen, I was escorted down by the head of security to a mandated meeting with heads of varying departments, where I was told I would be removed by police basically if I did anything at all they didn't like.  They explained they were under no obligation to provide me information about my child's medical care and not to ask. They posted 2 guards outside my son's room and at least one guard would follow him every time he walked the unit. He was a prisoner.  Nick was terrified.

CPS caseworkers promised me nothing would be done to my child until after court on September 5, 2018.  Late in the day September 3, 2018,  Dr. Krystal spoke with CPS and informed them Nick was in stable condition.  Later that day, after seeing his leukemia had reduced without additional chemotherapy,  CPS  was contacted and told if Nick wasn't given chemo immediately, he would die.

All consents for whatever Cohen wanted were faxed over and signed by CPS director Mark Clavin. Not one word was ever discussed with me. I left multiple messages for Mr. Clavin, but to date he has not ever returned a phone call.  Dr. Krystal walked in on September 4, 2018 and announced to Nick that she was putting a port in his body. He locked himself in the bathroom for about an hour.  He told her she couldn't do anything to him he didn't want her to.  She explained she could, even if by force and  he told her she was too small to force him. She told him "that's what security is for".  Dr. Krystal told Nick she "didn't want to have to drag him out and use force on him.....doesn't want to have to sedate him".  It was utterly disgusting. The surgery was completed and chemotherapy was done immediately. 

I tried for days to get Nick transferred anywhere.  Cohen blocked my attempts.  Finally, I was able to get Winthrop hospital to take him.  He was set to be transferred on September 11, 2018.  Doctors at Cohen tried to perform a procedure (lumbar puncture) and give him chemo right before they put him on the ambulance. I had a terrible feeling they would kill him. 

Fortunately,  I was able to get CPS to rescind their consent for the lumbar puncture, but it wasn't easy. When we arrived at Winthrop, blood work was drawn.  It was determined the procedure was not safe because of chemo he had been given the week prior which messed up his coagulation factors. Winthrop doctors explained he would likely bleed out if the procedure was done at that time.  Nick was given a plasma transfusion and two whole days passed before the procedure could be safely performed.   

During all of this,  CPS was breathing down my neck. They had custody of Nick and were challenging me on where I was living.  I had to make numerous court appearances,  find housing even though I wasn't sure what was happening with Nicholas, and deal with CPS meetings and phone calls.  Finally, at the last court date on October 9, 2018, Judge Whelan signed an order upon the agreement of all parties involved that we could move anywhere with Nick and treat him with doctors of our choosing.

At the same time, Nick finished out the chemotherapy protocol and doctors at Winthrop told us the MRD test was negative for any sign of cancer; that he was in remission.  They told us he needed three more years of chemo in order "to make sure the cancer didn't come back". Basically, they explained they were using it as a preventative now that the cancer was gone.  At that point, I chose to take him for non toxic preventive therapies I had researched with doctors from around the world.  These treatments are being used successfully on patients all over the world.  So we made the move to Florida to get Nick well and secured housing. Upon arrival, I took him immediately to one of a team of medical doctors I had set up who were overseeing his care.

Within five days,  CPS told us they didn't like the order they had agreed to and filed an emergency removal petition stating Nick was in imminent danger.  Dr. Weinblatt from Winthrop told the judge that Nick would die if he didn't get chemotherapy; that every day away from chemo was one step closer to his death.  Basically same story as Cohen. Very dramatic claims with no actual proof.  They had no interest in even looking at what we were pursuing, just like they didn't want to look at Nick's blood work when it was getting better without additional chemo. 

One might think doctors would stop and say "Wait what's going on here? This isn't typical. We need to look into     what is going on here."  They said "It's chemo or nothing."  They don't want to see what's right in front of them and evaluate. This, because that's all they know and it's the only tool in  their toolbox.  I get it. They go by these "protocols" regardless of what else is happening to the patient; even when children are clearly dying or experiencing severe adverse reactions to the drugs or damage to their little bodies, they forge on.  When autopsied, children who die during treatment show no signs of cancer. 

Fortunately, I am not as limited as they have to be. I can research and speak with doctors worldwide for treatments without limitation and this is what I have done. The information available is astounding.  It has taught me that chemotherapy is an outdated treatment which is highly unsuccessful.........something I don't want for Nick when he is in remission. Dr. Weinblatt testified that he had treated roughly 12-15 patients with Nick's type of cancer over his 40 year career. When asked how many lived, he said about 35%. He testified to the fact the industry does not have a tested proven protocol for this diagnosis. They are using a treatment for a different type of cancer on Nick-he is basically an experiment! and there is NO PROOF he even has cancer in his body. NONE.  ALL tests performed show CANCER FREE! Many of the drugs they are giving him are not approved by the FDA for use on children or for his diagnosis.

Please help me save Nick from being forced into toxic treatment which is highly detrimental and unsuccessful.  Save his life by helping us get him non-toxic preventative therapies which are working for patients all over the world!
 
We are currently in a serious court battle with CPS, who has ignored and discarded all information given by me to them about the doctors and the treatment and told me I will never be allowed to take him to doctors of my choice, because they think he should be getting chemo and their opinion is the only one going to count. I thought that was a very interesting perspective coming from an agency whose obligation is supposed to be the "BEST INTERESTS of the CHILD". Why would they not want to even look at the information? HMMMMM......

I want to thank you in advance for any generosity you can spare for this cause. No amount is too small.  The money will go to attorneys, non toxic preventative therapies, high quality foods, related medical expenses or whatever Nick needs to thrive, including housing and living expenses.

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I apologize for not updating earlier. Things have been super difficult and traumatizing.

We are at the 90 day mark of forced chemotherapy. From day one, I have asked for a trial. Everyone involved has dragged their feet and it appears as though the Court is purposely delaying proceedings in order to prolong Nick's forced treatment because the Judge does not agree with our choice of treatment.

This is a violation of my due process rights and my parental rights to choose medical treatment for my child. It is amazing to me that these people have no accountability or liability to my son for the damage they are inflicting upon him.

The Court has not yet given us a trial. THREE MONTHS OF FORCED MEDICAL TREATMENT WHICH HAS AND CONTINUES TO HARM NICK. A couple of weeks ago, the chemo Dr. Weinblatt forced on him caused a reaction in which his throat closed and very little air was able to pass until they stopped the chemo and administered benadryl. He wrote it up that Nick had a "sensation" in his throat and that's it! Never mentioned his inability to breathe or anything. When questioned, he completely denied anything happened with Nick's breathing. Thank God I was there to witness the whole thing. Nick told me later he thought for sure he was going to die because he couldn't barely get air.

My attorney stepped off the case Jan 4, just 4 days before the Jan 9 trial date. This trial could have been over with by now!

This move put Nick further in harm's way for another 30 days, delaying the trial by a minimum of one month's time.

That's the BS which has transpired since last I wrote. The Judge let him off the case just 4 days before trial (which is unheard of!)

I have bills totaling over $100, 000 for attorneys who have made virtually no progress on this case in three month's time. That is separate from Nick's medical bills, food and other things he desperately needs right now.

Please share the link to the gofundme page:
https://www.gofundme.com/help-nick-get-healthy-again

So all the trial dates were put off again and everyone goes on with their lives without concern or care for Nick. It is so disgusting to continue to have to face the truth, which is no one cares about Nick. Not CPS, Not the COURT, not the DOCTORS, not the ATTORNEYS (except Nicholas' attorney).

Nick has had it and so have I. I have asked CPS and Dr. Weinblatt on several occasions to work with me to come up with a viable solution which will be in Nick's best interest. They refuse each time. CPS refuses to speak with me even though I have requested meetings with the decision makers. Oddly enough, this case had been handled directly and/or decisions made only with approval by Suffolk County Commissioner John O' Neil and now Dennis Nowak, who was also involved from beginning. I sure would like to know why the Acting Suffolk County Commissioner is personally handling Nick's case if there are no politics involved and no other agenda in direct conflict with Nick's best interest.

I desperately need to find another attorney who will fight for us help get the chemo stopped ASAP.

Nick had another test last week, which shows there continues to be no sign of cancer in his body. He is in complete remission, cancer-free! When I took Nicholas to his appointment two days ago, he told Dr. Weinblatt he was not allowing Dr. Weinblatt to touch him anymore because he doesn't feel comfortable and that he is not consenting to the treatment. Dr. Weinblatt told him he would call CPS and referenced something about a change in custody. I sure would like to know how Dr. Weinblatt has inside information into what CPS is planning.

As if all of this isn't bad enough, Dr. Weinblatt has been slandering me for weeks to colleagues and staff in the office so that when I am there, it is awkward for everyone. He has been inaccurately noting the medical record about me as well.

When is JUDGE HUGHES GOING TO DO THE RIGHT THING BY NICK AND RELEASE US from being prisoners of New York State and Dr. Weinblatt - a doctor who says he can't make a move without contacting CPS? My last attorney said it would never happen. Other attorneys I have contacted in order to get help tell me they won't touch this case with a ten foot poll because it is so corrupt.

I am going to ask everyone for their prayers right now. The trial is going to be coming up hopefully in February and I may ask for your support at that time via writing in or signing petitions, etc if you feel it resonates with you.

Please sign and share the change.org petition as well:
https://www.change.org/p/andrew-m-cuomo-support-nicholas-right-to-choose-non-toxic-treatment

Thank you in advance for being a wonderful support to us during this terribly devastating and injurious situation which has gone on for way too long.

God Bless all of you. Enjoy your weekend.
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First I wanted to wish everyone Happy Holidays! We are super grateful to everyone who supported Nick and me in any way, shape, or form. I am beyond tired and I can't tell you how difficult things have been. Your prayers and support have been extremely helpful.

To date, I do not have custody of Nick. The condition of CPS returning him to me is for me to agree and consent to give him chemo, which will hurt Nick and our case long term and they know it, which is why they are making it impossible. I requested they put language into the agreement to accommodate the fact I do not believe this is in his best interest. I explained if I am mandated by a court to do so, I will comply with a court order but will not agree to give chemo voluntarily.

CPS and the Court refuse to do this. They ask every time if I am under duress, which to me is so dumb. Of course I am agreeing under duress to anything they are doing. What other choice are they giving?! NONE!

We are beyond the 60 day mark for forced chemo and trial dates which are supposed to be timely. Nick is hanging in as best as he can but he is not really doing well in the big scheme of things. He is such a smart child and when anyone lies to him he knows it instantly.

Dr, Weinblatt of Winthrop Pediatric Associates is the sole reason Nicholas is being forced into this treatment designed for a different type of cancer , which has never been tested or proven successful for his diagnosis. Dr. Weinblatt is the sole reason Nicholas was taken from my care and custody. There was a court order which CPS agreed to on October 9th issued by Judge Theresa Whelan which gave us permission to go anywhere we wanted with Nicholas because he was in remission.

Dr. Weinblatt didn't like that and threatened to call the police if CPS didn't intervene and remove him from the team of doctors who were overseeing his care.

Nicholas and I have informed CPS, the attorneys and Winthrop hospital staff (Dr. Weinblatt included) on numerous occasions over the past 60 days that Nicholas does not want Dr. Weinblatt touching him or doing anything to him. Nick has stated that he hates Dr. Weinblatt and it causes him tremendous anxiety and stress when forced to face and interact with Dr. Weinblatt. He feels violated every time he is forced to have Dr. Weinblatt touch him or examine him, or even have to speak with him, etc.

Because our requests fell on deaf ears for so long, Nick's guardian finally agreed to ask for something to be done and even that failed. Dr. Weinblatt's position remains the same. He is not going to make any changes regardless of the negative impact to Nicholas.

So I asked almost 3 weeks ago for Dr. Weinblatt to write a medical summary so I could get Nick transferred out of Winthrop to somewhere he could feel safe and comfortable. Dr. Weinblatt refuses to write a summary that does not include extraneous information about his opinion of me, all of which is untrue and slanderous. It's amazing how these doctors can literally keep a child hostage and obstruct them from going anywhere else. You have to wonder what the heck is in it for them (and CPS) that they would hold on to a child so tightly.

I even tried transferring his care to a very experienced oncologist and CPS' attorney told me he wasn't a "real doctor"...that he was only board certified in oncology and that didn't count. (this supposedly coming from Dr. Weinblatt) I often wonder if they hear themselves talk and just how crazy they appear. It is truly scary.

The psychologist at Dr. Weinblatt's office said she can't do anything about the situation because Dr. Weinblatt is her boss and it's up to him whether or not he makes the change, even though the psychologist knows it is not in Nick's best interest to have the person solely responsible for taking Nick away and forcing treatment he doesn't want, in his face daily. Dr. Weinblatt is hostile many times toward Nicholas and me, especially when we have questions or concerns about Nick's treatment and the terrible side effects the drugs are causing him. Nick gets very angry when Dr. Weinblatt does this to us. There are five other doctors in the office and they could easily see Nicholas if Dr. Weinblatt wanted them to. We truly believe at this point, Dr. Weinblatt is enjoying torturing Nicholas. He pretends to be nice but it appears as though he is actually quite the opposite. His "nice" is all a show.

On another note, things are becoming increasingly difficult because the organizations who help families when their children are diagnosed with cancer have been saying they can't provide help because I don't have custody. This makes it very difficult for us to survive. I spend all my days taking care of Nick, taking him back and forth to treatment, to tutors, supporting him after treatment when he is not well. When I am not doing that, I am researching solutions, talking to people and trying to help get Nick out of this disgusting mess. I am the one solely responsible for his care in every way, including financially.

The key players involved seem to have their own agenda - whether it be their schedules, jobs, politics, money, vacation, convenience, their own discomfort of going against the grain or whatever the case may be. I have no agenda or other priority than looking out for my son's best interest. It infuriates me that none of the key players have the ability or willingness to do the same.

I know all of you have done so much to support us and we are truly grateful. As the New Year approaches, I am going to request you continue to pray for us-for Nick to be released from this traumatic chaos and torture. Pray he be released back to my care and custody so I can take him to the team of doctors and the environment we know without any doubt are in his best interest.

If any of you are familiar with or can provide referrals to organizations who would be willing to help support us right now, it would be greatly appreciated. Please send any info through the FB page about Nick.

https://www.facebook.com/justicefornickny/

Please continue to share the gofundme and the petition showing your support for Nick's freedom to choose what's in his best interest.

https://www.change.org/p/andrew-m-cuomo-support-nicholas-right-to-choose-non-toxic-treatment

Thank you so much in advance. Happy 2019 to all of you! :)
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I cry every day at what they are doing to my child. I just want him home with me and all he wants is to be free and happy and in my care and custody.

ALL WE WANT IS TO HAVE OUR PARENTAL RIGHTS AND RELIGIOUS FREEDOMS UPHELD-TO BE FREE TO CHOOSE THE MEDICAL TREATMENT WE WANT AND KNOW IS BEST FOR NICK.
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Well, another long week of this-

First of all, I would like to thank all of you who have been working daily to help support Nick being freed from this mandated barbaric super toxic treatment.

Also, to all you who have donated money, prayed for us, or supported us in any way.

Nick is currently hanging in with the treatment they are forcing upon him . Not only are they blatantly violating our Constitutional Rights (Parental Rights, Religious Freedoms, Nick's own choice of medical treatment but now they are forcing treatments on him which have absolutely NOTHING TO DO WITH CHEMO OR CANCER TREATMENT.

The doctors are FAR from TRANSPARENT about what they are doing with Nick or what their intentions are. They REFUSE to give us the schedule for more than 7 days out and they change things on the schedule according to their convenience, NOT what is in Nick's best interest.

They are testing him (and the doctors never even told us) for other things and the plan is to give him FLU SHOT and VACCINES while he has no immune system in his body. Even the American Cancer Society nurses tell you this is not safe. Also, The flu-shot has been banned at the WHITE HOUSE!!!

In the First Lady’s case, her self-education led to her ban the flu shot among White House staffers, encouraging the use of natural immunity-boosters, instead of the ineffective and dangerous vaccine.

See here: http://archive.is/F0vor

CPS has been made aware of this and they told me they are mandating it anyway. MARK CLAVIN ONCE AGAIN MAKES A MEDICAL DECISION FOR MY CHILD WITHOUT EVEN TALKING TO ME OR CONSIDERING OUR POSITION OR THE DOCUMENTATION.

EVERY STEP, THEY DEMONSTRATE THEIR GROSS INABILITY to make a decision in NICK'S BEST INTEREST.

I am approached every day with new stories from people all over the country and now the world with stories of how their children with leukemia have died unnecessarily from forced chemotherapy at the hands of the doctors who have no liability or accountability. They KNOW THEY ARE MURDERING THESE CHILDREN AND THEY DO IT ANYWAY BECAUSE THEY ARE MAKING ON AVERAGE $1.5 million dollars for each child. It's all about the money and the experimentation. Nick is an experiment. They don't have a proven protocol for Nick's diagnosis.

The Nuremberg Code prohibits medical experimentation to be forced upon anyone. But they are doing anyway-against Nick's will and against both of his parents' wills.

https://history.nih.gov/research/downloads/nuremberg.pdf

Please continue to help spread our story, and please sign our new petition to FREE NICK from THIS TERRIBLE SITUATION WHICH IS PLACING HIM IN HARM'S WAY DAILY and SLOWLY KILLING HIM. Here's the petition:

https://www.change.org/p/andrew-m-cuomo-support-nicholas-right-to-choose-non-toxic-treatment
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Raised by 626 people in 8 months
Created September 10, 2018
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