Help Nick Stay in Remission Safely
Help Keep Nick in Remission with Non-Toxic Preventative Therapies
Nick is a bright, kind-hearted Junior Black Belt who loves music and art. He is also a boy scout and enjoys hiking and camping. After a long year of hard work in school, all he could think about was spending the summer with his friends.
School ended on a Friday and just 3 days later, we ended up in the Huntington ER. Nick was transferred that night to Cohen Children's. On June 30, in a meeting with a group of doctors and staff, Dr. Julie Krystal told us he had AML (Acute Myeloid Leukemia). She said he had 90% leukemia blasts in his bone marrow. I challenged her on the diagnosis because test results seemed to show a different type of leukemia. When I asked for a pathology report, she toldme it wasn't available. I asked for a second opinion, explaining I thought they were making a mistake and why.
She said I could pursue a second opinion, but they would not delay treatment. She also told me very clearly if I didn't sign consents immediately, she would call CPS, have me removed and give Nick the treatment anyway. Dr. Krystal stated the treatment for the first month would be the same regardless of the type of leukemia he had. This turned out to be false information.
He began treatment for AML on June 30th. Four days later, already into the wrong treatment protocol, I was provided a copy of the final pathology report which showed he had a very rare form of leukemia called MPAL.
Overnight, our whole world was turned upside down. Being a single mom, not having family nearby, has been pretty hard in not having consistent support (and sometimes none at all). After Nick was admitted to Cohen, I literally lived in the hospital with him, barely leaving his side.
Cohen Children's continued the AML treatment, even though it was not the standard of care for the type of cancer he had. Nick had adverse reactions to several of the drugs and developed a life threatening bacterial infection and organ damage to boot. The chemotherapy was super intense and he lost over 20% of his body weight. It’s a miracle he survived.
After 30 days of not being able to eat, almost dying, and having severe adverse reactions to drugs, Dr. Krystal told us all signs pointed to him being in remission and he could go home. She explained they would monitor him outpatient until his blood counts recovered and they could do a test called an MRD. A Minimum Residual Disease test tells them the tiniest amount of cancer he might have, down to .01 cancer cells. I met with the head of the department, Dr. Lipton and explained we would finish outpatient care, but would not be returning to Cohen for future inpatient treatments. I told him I would be pursuing second opinions at local hospitals, as well as around the country to determine where I wanted Nick transferred and would not tolerate a repeat of what transpired at the beginning where he was forced into improper treatment. He stated he understood and promised to give us time to transfer Nick's care after the bone marrow results came in.
Once Nick was discharged, we got straight to work on boosting his immune system with lots of organic fresh juices (70 oz daily), salads, and fresh fruits and veggies, along with alternative protocols and therapies. He began to look and feel much better.
I took him to other facilities in the area for second opinions, because there was no way I was allowing Cohen to do further in-patient treatment under any circumstance. They misdiagnosed him, gave him wrong treatment, threatened to take him away and messed up a procedure, among other things. Dr. Wolfe, one of the heads of the department, at one point during the admission told me it was a courtesy they were providing any medical information to me about my child. It was a terrible experience from start to finish.
On August 24, 2018 they performed a bone marrow aspirate for the MRD test they told us about. We attended an outpatient appointment on August 29, 2018 where they reviewed the MRD results. His treatment was "a complete induction failure" according to Cohen. They told us his bone marrow was packed with 90% leukemia cells and peripheral blood had 57% leukemia blasts. We reminded them we were going somewhere else.
They called police and CPS and told them Nick was dying. They stated he was in imminent danger, that his white blood count would continue to rapidly rise and as a result, Nick could die at any moment. They told CPS I was "refusing all medical treatment".
Here's what actually happened. The facilities I had seen and spoken to in August refused to take him, stating they had spoke with Cohen staff and it was better if we stayed where we were. In the meantime, his white blood counts stabilized and his leukemia blasts in his blood reduced from 57% to 25%.
Hmmmmm, so let's review....... Wrong diagnosis. Wrong treatment. Mistakes on procedures. Mistake on remission. Mistake on prediction that his blood counts would rise rapidly.
CPS, being an all around incompetent agency, blindly believed the doctor's allegations and ignored the documentation I provided them of what was actually happening.
According to CPS case files and interviews with staff, Suffolk County Commissioner John O'Neill made the decision to remove Nick without a court order on September 2, 2018, at 3:30 am. Officers from Suffolk and Nassau counties, as well as a detective from Queens accompanied CPS workers and an ambulance. CPS caseworkers told me they just needed to have him "checked out", but what they actually did was transport him to Huntington hospital, where he sat for almost 7 hours completely unattended or checked. CPS emergency workers requested the ER doctors to draw blood and do an exam and the head of the ER denied the request, stating Cohen had instructed him to not touch Nicholas. He was then forced back into Cohen, to be at the mercy of the doctors who already harmed him and committed malpractice. I begged CPS starting August 29, right up 'til the day they took him not to bring him back to Cohen. I pleaded with them to take him anywhere in the world but there because they had made so many mistakes on him and because Nick was afraid of them.
Once back at Cohen, I was escorted down by the head of security to a mandated meeting with heads of varying departments, where I was told I would be removed by police basically if I did anything at all they didn't like. They explained they were under no obligation to provide me information about my child's medical care and not to ask. They posted 2 guards outside my son's room and at least one guard would follow him every time he walked the unit. He was a prisoner. Nick was terrified.
CPS caseworkers promised me nothing would be done to my child until after court on September 5, 2018. Late in the day September 3, 2018, Dr. Krystal spoke with CPS and informed them Nick was in stable condition. Later that day, after seeing his leukemia had reduced without additional chemotherapy, CPS was contacted and told if Nick wasn't given chemo immediately, he would die.
All consents for whatever Cohen wanted were faxed over and signed by CPS director Mark Clavin. Not one word was ever discussed with me. I left multiple messages for Mr. Clavin, but to date he has not ever returned a phone call. Dr. Krystal walked in on September 4, 2018 and announced to Nick that she was putting a port in his body. He locked himself in the bathroom for about an hour. He told her she couldn't do anything to him he didn't want her to. She explained she could, even if by force and he told her she was too small to force him. She told him "that's what security is for". Dr. Krystal told Nick she "didn't want to have to drag him out and use force on him.....doesn't want to have to sedate him". It was utterly disgusting. Chemotherapy was done immediately.
I tried for days to get Nick transferred anywhere. Cohen blocked my attempts. Finally, I was able to get Winthrop hospital to take him. He was set to be transferred on September 11, 2018. Doctors at Cohen tried to perform a procedure (lumbar puncture) and give him chemo right before they put him on the ambulance. I had a terrible feeling they would kill him.
Fortunately, I was able to get CPS to rescind their consent for the lumbar puncture. When we arrived at Winthrop, blood work was drawn. It was determined the procedure was not safe because of chemo he had been given the week prior which messed up his coagulation factors. Winthrop doctors explained he would likely bleed out if the procedure was done at that time. Nick was given a plasma transfusion and two whole days passed before the procedure could be safely performed.
During all of this, CPS was breathing down my neck. They had custody of Nick and were challenging me on where I was living. I had to make numerous court appearances, find housing even though I wasn't sure what was happening with Nicholas, and deal with CPS meetings and phone calls. Finally, at the last court date on October 9, 2018, Judge Whelan signed an order upon the agreement of all parties involved that we could move anywhere with Nick as long as we were making sure Nick had medical care.
At the same time, Nick finished out the chemotherapy protocol and doctors at Winthrop told us the MRD test was negative for any sign of cancer; that he was in remission. They told us he needed three more years of chemo in order "to make sure the cancer didn't come back". Basically, they explained they were using it as a preventative now that the cancer was gone. At that point, I chose to take him for non toxic preventive therapies I had researched with doctors from around the world. These treatments are being used successfully on adults and some children (mostly because children are not allowed to utilize these treatments). So we made the move to Florida to get Nick well and secured housing.
Within five days, CPS told us they didn't like the order they had agreed to and filed an emergency removal petition stating Nick was in imminent danger. Dr. Weinblatt from Winthrop told the judge that Nick would die if he didn't get chemotherapy; that every day away from chemo was one step closer to his death. Basically same story as Cohen. Very dramatic claims with no actual proof. They had no interest in even looking at what we were pursuing, just like they didn't want to look at Nick's blood work when it was getting better without additional chemo.
One might think doctors would stop and say "Wait what's going on here? This isn't typical. We need to look into what is going on here." They said "It's chemo or nothing." They don't want to see what's right in front of them and evaluate. This, because that's all they know and it's the only tool in their toolbox. I get it. They go by these "protocols" regardless of what else is happening to the patient. even when they are clearly dying, they forge on. When autopsied, patients who die from treatment show no signs of cancer.
Fortunately, I am not as limited as they have to be. I can research and speak with doctors worldwide for treatments without limitation and this is what I have done. The information available is astounding. It has taught me that chemotherapy is an outdated treatment which is highly unsuccessful.........something I don't want for Nick when he is in remission. Dr. Weinblatt testified that he had treated roughly 12-15 patients with Nick's type of cancer over his 40 year career. When asked how many lived, he said about 35%.
Please help me save Nick from being forced into toxic treatment which is highly detrimental and unsuccessful. Save his life by helping us get him non-toxic preventative therapies which are working for patients all over the world!
We are currently in a serious court battle with CPS and the two hospitals. They are violating several of our Constitutional Rights.
I want to thank you in advance for any generosity you can spare for this cause. No amount is too small. The money will go to attorneys, non toxic preventative therapies, high quality foods, related medical expenses or whatever Nick needs to thrive, including housing and living expenses.
ALL WE WANT IS TO HAVE OUR CONSTITUTIONAL RIGHTS AND RELIGIOUS FREEDOMS UPHELD-TO BE FREE TO CHOOSE THE MEDICAL TREATMENT WE WANT AND KNOW IS BEST FOR NICK.. PLEASE WATCH THIS VIDEO:
First of all, I would like to thank all of you who have been working daily to help support Nick being freed from this mandated barbaric super toxic treatment.
Also, to all you who have donated money, prayed for us, or supported us in any way.
Nick is currently hanging in with the treatment they are forcing upon him . Not only are they blatantly violating our Constitutional Rights (Parental Rights, Religious Freedoms, Nick's own choice of medical treatment but now they are forcing treatments on him which have absolutely NOTHING TO DO WITH CHEMO OR CANCER TREATMENT.
The doctors are FAR from TRANSPARENT about what they are doing with Nick or what their intentions are. They REFUSE to give us the schedule for more than 7 days out and they change things on the schedule according to their convenience, NOT what is in Nick's best interest.
They are testing him (and the doctors never even told us) for other things and the plan is to give him FLU SHOT and VACCINES while he has no immune system in his body. Even the American Cancer Society nurses tell you this is not safe. Also, The flu-shot has been banned at the WHITE HOUSE!!!
In the First Lady’s case, her self-education led to her ban the flu shot among White House staffers, encouraging the use of natural immunity-boosters, instead of the ineffective and dangerous vaccine.
See here: http://archive.is/F0vor
CPS has been made aware of this and they told me they are mandating it anyway. MARK CLAVIN ONCE AGAIN MAKES A MEDICAL DECISION FOR MY CHILD WITHOUT EVEN TALKING TO ME OR CONSIDERING OUR POSITION OR THE DOCUMENTATION.
EVERY STEP, THEY DEMONSTRATE THEIR GROSS INABILITY to make a decision in NICK'S BEST INTEREST.
I am approached every day with new stories from people all over the country and now the world with stories of how their children with leukemia have died unnecessarily from forced chemotherapy at the hands of the doctors who have no liability or accountability. They KNOW THEY ARE MURDERING THESE CHILDREN AND THEY DO IT ANYWAY BECAUSE THEY ARE MAKING ON AVERAGE $1.5 million dollars for each child. It's all about the money and the experimentation. Nick is an experiment. They don't have a proven protocol for Nick's diagnosis.
The Nuremberg Code prohibits medical experimentation to be forced upon anyone. But they are doing anyway-against Nick's will and against both of his parents' wills.
Please continue to help spread our story, and please sign our new petition to FREE NICK from THIS TERRIBLE SITUATION WHICH IS PLACING HIM IN HARM'S WAY DAILY and SLOWLY KILLING HIM. Here's the petition:
Yesterday, November 15, 2018 Nicholas was given another dose of chemo, as he is daily. They give him chemo through pills, IV, injections, and even into his spine so it goes directly into his brain! Basically every way they can administer and kill his little body they are doing it! CPS is ALLOWING AND ASSISTING THE DOCTORS IN DOING THIS. THEY are in cahoots with the doctor perpetrating a CRIME and they need to be exposed and held accountable.
Nicholas also spent FIVE HOURS GETTING BLOOD TRANSFUSIONS so he wouldn't die. They have destroyed his body so much that it can no longer produce its own red or white cells or platelets. He spent EIGHT HOURS SITTING IN A ROOM getting chemo to further destroy his body and then 5 hours of blood to "supposedly helping him" when they are the ones KILLING HIM!!
He has NO CANCER IN HIS BODY. NONE. THEY ARE KILLING HIM AND SUFFOLK COUNTY CPS IS WORKING WITH THEM TO DO IT. NO ONE IS ACTING INDEPENDENTLY. They are all in this together, helping one another on every front!!!!
While Nick was in a room hooked up to chemo and blood for EIGHT HOURS, I was in court begging JUDGE HUGHES TO SAVE HIS LIFE AND STOP THE CHEMO IMMEDIATELY.
JUDGE HUGHES doesn't feel this is an emergency and denied our application to SAVE NICK FROM FURTHER IMMINENT HARM, EVEN THOUGH HE WAS GIVEN AMPLE EVIDENCE AND A SWORN STATEMENT FROM A DOCTOR OUTLINING THE IRREVERSIBLE HARM TO NICK, ALONG WITH PROOF!
SO, today, Nick will have TOXIC CHEMO PUT DIRECTLY INTO HIS BRAIN. It crosses the blood brain barrier and directly attacks the healthy brain cells. Nicholas already suffers from issues since the chemo started and things will just get worse from here. They will continue the daily chemo and next Wednesday ANOTHER DOSE OF CHEMO DIRECTLY TO HIS BRAIN.
Suffolk County Assistant County Attorney Jacob Kutnicki refused to accept service on our emergency petition (tried to anyway), even though Judge Whelan witnessed it in her own courtroom. The corrupt tactics this agency and all of its representatives will go to in order to ensure Nicholas' continued harm and possible death is UNREAL!
DENNIS NOWACK to date STILL REFUSES TO SIT DOWN AND SPEAK WITH ME OR ALLOW ANY INFORMATION ABOUT THE TRUTH OF WHAT IS GOING ON WITH NICHOLAS BE HEARD BY HIS AGENCY. They simply do not want to know anything in order to ensure Nick's safety and well being.
Suffolk County CPS has made it CLEAR. They do NOT want NICK to be ok. THEY DO NOT WANT to allow us to pursue proven non- toxic treatments. They want him to suffer and die and every choice they make brings him one day closer to death! CPS NEEDS TO BE HELD ACCOUNTABLE FOR WHAT THEY ARE DOING. AT THE MOMENT ITS ATTEMPTED MANSLAUGHTER. IF NICK DOESN'T GET OUT SOON, IT WILL BE MURDER BUT MARK CLAVIN, DIRECTOR OF FAMILY AND CHILD SERVICES SAID HE DOESN'T CARE WHAT HAPPENS TO NICK. HIS EXACT WORDS WHEN ASKED TO SETTLE THE CASE OR LOOK AT THE INFORMATION BEING PROVIDED BY THE PARENTS "Let her sue us!" So his position basically is let the mother sue us after her kid is dead and what do we care. This guy is unreal!
At this point, Judge HUGHES is right there with them, choosing to intentionally harm Nick, even though he has information and proof that is what is happening.
Why don't they just come to the house, tie my hand behind my back and a gun to my head and force me to watch while they slowly torture and kill my child? OH wait, that is what they are doing! AND ALL UNDER OUR FEDERALLY FUNDED CHILD PROTECTIVE SERVICE AGENCY! THROUGH OUR "JUSTICE" SYSTEM. WHat a JOKE!!
I say we need REAL "JUSTICE FOR NICK" !!!
She is also allowing me to stay at her house as well. I have unrestricted visitation with Nick but I do have curfews and geographical limitations. They don’t want me leaving Suffolk County with Nick. They are treating us like prisoners and convicted felons. GUILTY BEFORE BEING PROVEN INNOCENT. It’s really weird because aren’t we supposed to be INNOCENT until proven guilty according to the law?
Somehow the system doesn’t seem to understand how screwed up it is. Assistant County Attorney Jacob Kutnicki told me yesterday I was nothing special. On the record, he stated in sum and summary “Your Honor, Ms Gundersen is not special. She is no different, nor is this case different than any other case before Your Honor involving my client” (CPS)
What a blatant demonstration of ignorance! This case is extremely unique and highly unusual. It is horrific the County Attorney is not able to recognize this fact.
It was one of the worst days of my life.
This matter simply is not being handled appropriately. It should be EMERGENT by the mere fact my son is being forced into a toxic treatment designed for a different type of cancer and neither of us want it! He is being damaged every day he is forced to have biohazard chemicals pumped into his body!
I had to stand there for 15 minutes while all parties "discussed the conflicts on their calendars for date in mid to late December for this trial to be heard. I was in utter shock- like WTF!!! They go on about their business while y sons life hangs in the balance and no one bats an eye! At this point, Judge Hughes has evidence that demonstrates Nicholas is actually in danger by receiving this treatment and he is blatantly ignoring it.
I would like to know-who is going to answer for the damage on all levels to my child; mental, emotional, and physical abuse.
At this point in time JUDGE HUGHES IS 100% responsible for what is going on and I think it's time we let him know we do not agree by continuing to make our voices heard: ie signing the petition, showing up in lawful protest at the courthouse, and writing letters to our local government officials. The whole world is watching at this point. Reporters are present at every court date.
I asked the new acting Commissioner for a face to face meeting, either with or without attorneys. His choice. No response. I again asked for the meeting Friday directly to Assistant County Attorney Jacob Kutnicki. I have heard nothing. I never got a response from Steve Bellone's office either and it's been weeks since I first reached out.
At what point did we become so lost, we would hold a child down and FORCE TOXIC CHEMICALS INTO THEIR BODIES AGAINST THEIR FREE WILL? This is something out of a horror movie from years long gone we believe is in the past. I am here to assure you it is happening now!
Chemotherapy has not been tested against non-toxic treatments, therefore chemotherapy should not be a mandated treatment...... especially once there is no sign of cancer in the body!
I will be posting more tomorrow. Thank you for the continued support, love, prayers. Please continue to share our story, gofundme, petition on change.org. (see previous update) Without your support we wouldn’t have made it this far!
Blessings to all of you......Candace and Nick