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Help Jacob Fight ALS #GlasowStrong

$38,863 of $300,000 goal

Raised by 432 people in 3 months
My name is Jacob Glasow.  I am a 36 year old, father of 5 amazing children (ages 13, 10, 8, 7 & 3) and married to the love of my life, Sheena.  On July 12th, 2018... my wife and I received news that turned our lives upside down...  the life altering diagnosis of Amyotrophic Lateral Sclerosis (ALS), also known as Lou Gehrig’s disease.  ALS is a horrible disease, robbing its victims of the ability to walk, dress themselves, talk, swallow, and ultimately breathe. All while leaving the mind perfectly intact. Already, I’ve seen changes in my speech, I have twitching in my arm and leg muscles & am losing strength in my left hand and most recently, my smile has changed.   ALS has no cure and no effective treatment. The average lifespan from diagnosis is three to five years. I’m not sure what my journey will bring because every individual’s experience with ALS is different, meaning there are a lot of unknowns for me and my family. What I do know is that we're focused on doing everything we can to fight this disease and delay its progression into the more debilitating stages for as long as possible. As difficult and devastating as this diagnosis is, we remain positive and hopeful that through faith, hope & love, we will make it through this journey. A little about me: I’m an outdoors enthusiast and enjoy many activities like fishing (both open water and ice), hunting of all kinds & I especially love spending time with my family.   I am an easy-going, fun-loving guy who just enjoys the simple things in life... A cold beer, a steak on the grill hanging on the front porch with my family, watching my kids play in the yard, a bonfire with friends...    One of my biggest fears on this journey is that my family will face extraordinary medical and incidental expenses. ALS treatment is not completely covered by insurance and estimates for medical costs alone range from $200,000-$300,000 EACH YEAR, covering ventilation, feeding tubes and in-home care. Additional large expenses may include modifying ones home for greater accessibility, wheelchairs, lifts, a specialized van, long-term clinical trials, aides/in-home nursing and technological devices to offset muscle paralysis. No one knows how long my fight will last, but I’m determined to  battle longer than the average person, and I plan to be in the 10% of statistics that are here for another 10+ years. Unfortunately, this could leave a tremendous financial burden on my family & I cannot bear the thought of that. My wife, Sheena - who is a stay at home mom, and I have dedicated our lives to raising our  5 children and love our small, tight community in Reedsville, WI.  We are the average small-town family... our kids love playing outside and adventuring, riding their bikes, making forts in the yard and on the normal weeknight, you'll find us attending their baseball/softball games and sporting events in our community.  Outside of my full time job at Miron Construction, I also serve as a volunteer firefighter for the last 12 years for the Village of Reedsville.   For those of you who are able to donate and help us face this growing mountain of expenses, we are deeply grateful. Your contributions are helping me to face this sad and difficult disease with dignity and pride. With Love,  The Glasow Family  (Jacob, Sheena, Mya, Ella, Grady, Hunter & Knox) A message from Jacob's wife, Sheena: We do not know exactly what our future holds but we REFUSE TO GIVE UP HOPE... he is strong...he has so much to fight for... so many people standing behind him... and we will exhaust all efforts to do whatever it takes to keep him strong and fighting! The kids do know what's going on and know that we are going to fight as a family, pray and keep hope to keep Daddy here for as long as we possibly can. We know we will need to lean on friends and family (which is definitely not a skill of mine) through this journey and we thank you all from the bottom of our hearts.  We want to enjoy each day as much as we can, make amazing memories... and make the most of times with our 5 beautiful children, friends and family.  Your donations will help us to do just that...while making it possible for Jacob to explore all options to FIGHT to be here as long as possible.   Your support, love, prayers, conversation and help is always welcome & appreciated...  #GlasowStrong
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Always hand in hand through this fight!
#GlasowStrong
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Part of our new therapy! Here's what our routine looks like:

<3 Infrared healing pad...needs to be done for 20 mins (AM & PM), 2x a day, everyday...
<3 Brain stimulation 3x a week...
<3 Infrared light therapy to Wellness Points daily
<3 Detox 3x a week
<3 Frequency testing each week (frequency chips 24/7 unless showering)
<3 Daily OT & PT
<3 Weekly 30 min professional massage with coconut oil
<3 Supplements 2x a day
<3 C-PAP nightly for sleep apnea
<3 Diet high in healthy fats, protein & veggies...avoiding simple carbs, 2400 cal/day
<3 Daily walks & staying active

Jacob is still working full time, we've got 5 kiddos so there's everything that comes along with managing a family of seven (from meals to laundry to homework to sports etc)... & I run my own business from home...so it's definitely a lot to fit in a day, but we are not giving in...we refuse to sit back and let ALS define US! We will instead FIGHT! Hope is everything! Faith is everything! And a sense of humor is A MUST! (or we'd go crazy! Lol)

<3 Fingers crossed Duke is "our place" where we can continue with healthcare, explore more options and contribute to research...if so, we will continue to make trips to NC to see Dr. Bedlack as Jacob's primary ALS doctor and his neurologist at Neuroscience Group in Neenah for anything in between closer to home.

We continue to be overwhelmed by your support... we love you all and cannot wait to celebrate this fight with all of you - our army - at the benefit on October 20th! (Reedsville Fireman's Park, 1pm-Midnight)

#GlasowStrong
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We head to see Dr. Richard Bedlack at Duke ALS Clinic in North Carolina at the end of October! So excited! Ready for a change of pace and someone who is in line with our way of thinking! We choose to FIGHT #GlasowStrong!!!
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<3 <3 <3

We know there is a PURPOSE to our journey... and we intend to continue to share our story...bring awareness to, advocate for & educate about this disease they call ALS. THIS is OUR PURPOSE!

If you currently walk, or have walked, together with us on this journey (patient, caregiver, family or friends too!) ...we want you to know that you do not have to be defined by a diagnosis... you do not have to settle for 3-5 years...you do not have limited treatment options... YOU can choose...YOU can be a warrior...a fighter...a survivor! Why not YOU?!

Let's start a movement... let's band together and FIGHT! This is your chance to change the world!

WE each get to decide how our story will end ...and, together, WE can find the cure!!!! <3

#GlasowStrong

https://www.wearegreenbay.com/news/local-news/the-fight-of-his-life-reedsville-fire-fighter-faces-off-against-als/1475766453
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$38,863 of $300,000 goal

Raised by 432 people in 3 months
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