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Help Heidi Bluemel Fight Multiple Sclerosis
0% complete
$3,545 raised of $100K
25 donations
If you know Heidi, you know there is no value that can be placed on her life. She has fought and continues to fight a beautiful fight. We’re so proud of who she is and who she has become, and now, we are turning to GoFundMe to help us prolong Heidi’s life. Thank you for taking time to read this and thank you in advance for whatever help you may provide for Heidi, the beautiful person we all love so much.
Heidi Bluemel, our beautiful 36-year-old daughter, is fighting a terrible disease called Multiple Sclerosis, or commonly called MS. It is heartbreaking for Heidi’s family and friends to watch her struggle to feel good, trying to get her body to cooperate, struggle with her memory, with her hands, feet and legs hurting all the time. Living with the pain and suffering every day. Heidi is a mother of 2 wonderful children; a beautiful daughter that is 12 and a handsome son that is 9. Because of the MS, she was told not to have any more children. She has a loving husband, Brandon, who cares for and supports her.
Immediately after the birth of her second child, Heidi was diagnosed with MS. At age 27, Heidi was younger than the average diagnosis. Rather than fall into depression and despair, Heidi fearlessly faced her new reality, and she attacked it straight on. She began treatments while juggling the responsibilities of motherhood, wife, and business owner. Heidi has endured her sickness with a smile, strength and with the tenacity she is known for. No matter how many days she spent in the hospital being poked, prodded and attached to a machine, and how many nights she spends sick, with blistering headaches, body pains, feeling her body slowly breaking down, she always greets others with her sweet smile, gives a warm hug, and always stands ready to help others. No matter how she is feeling, the people in Heidi’s life have always felt her love and concern for them.
No matter how hard she fights, the MS always comes out swinging even harder. Only a short time after her original diagnosis, Heidi discovered she also carried what is known as the JC virus, which further increased her risk in fighting the effects of Multiple Sclerosis.
Heidi has undergone every treatment available to her; Tecfidera, Copaxone, Kasempa, and most recently Tysabri. Her Tysabri treatments have slowly stopped working for her. The lesions on her spine, neck and brain continue to grow, and as they grow, they have a horrible effect on her body, essentially attacking itself until she will be forced into a wheelchair.
Now that her Tysabri treatments are no longer effective, Heidi is left with no other options for treatment, EXCEPT ONE; Stem-Cell Transfer Therapy. This Stem Cell treatment uses Heidi's own stem cells. This therapy could stop the MS in its tracks and provide Heidi with some sense of normality. It will likely put the MS into remission and lengthen her life, as it has done for previous MS patients who’ve received this therapy. Heidi visited the Hospital in San Diego where these life extending treatments are performed, and thankfully, she has been approved for the treatment! This is a huge blessing for Heidi and her family, as she literally has no other available options. But with that approval came another disappointing obstacle. Her insurance provider deemed the stem cell treatment as experimental, and despite the truly miraculous success of this limited treatment, and that other insurance companies are paying claims for their MS patients, her claim has been denied. Not just once, but twice. Regardless of whether her insurance claim is ever approved, Heidi NEEDS this treatment! Heidi faces a multiple six-figure treatment bill when all is said and done. That is why we are trying to raise money to help with the down payment towards this treatment.
Heidi could never be defined by one word. Wife. Mother. Daughter. Sister. Friend. The list goes on, yet these positive words are only a part of who she really is. She’s a confidant, a successful entrepreneur, a fighter, and an inspiration to so many. She has accomplished so much, and she’s helped so many others achieve their goals and dreams through her generous, tireless service. However, Heidi’s most inspirational trait is her battle to never be defined by a single word, victim. And this is the essence of her battle with Multiple Sclerosis.
Please help Heidi continue to fight her battle with Multiple Sclerosis.
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