Help With My HEART WARRIOR Daughter
This has been the worst year of our lives. My 11 year old daughter, Arianna, had a very high risk open heart surgery in August. She basically had to have part of her aorta removed and replaced with tissue from a cow. Thankfully, although she had about a 15% risk of not making it, and a 30% chance of being paralyzed, neither of those things happened. Her left vocal cord is paralyzed, however, as a risk of her surgery. She couldn’t speak at first, but they have done a few surgeries to help block her airway, but she continues to cough and choke. Since August shes has 2 more surgical procedures and is still in pain and having complications. During the Thanksgiving break things got more complicated when she began to suffer with PTSD from her surgery. She cries a lot, has panic attacks and mood swings, doesn’t sleep well, and can’t handle being around a lot of people. Her psychologist was forced to put her on homebound and pull her out of school. I’ve been getting docked pay this entire time, and it will continue, I don’t know how long she will be out of school, or how long I will be out of work to care for her, but she is most important, and I have to sacrifice my pay to be with her. Thanks for any help.+ Read More
I received a call last week and was informed that they will not be sending Arianna back to school until next school year. This does complicate things because I was really counting on her being able to return to school because I really need to return to work. We will have to be really creative in how to handle this because i don’t have any family here to watch her. I can’t afford to be docked at 100%, which will happen if I don’t return to work by April 9.
I received a call on Thursday and was told that they are not sending Arianna back to school this year. Instead, she will continue to do her work online and we will bring her for 2 hours, twice per week, to the Pupil Appraisal place to do her work there. We will have to be creative as to how to work this out. They think that this will help her to transition to school next year. I hope so.
Arianna had a pretty serious nightmare last night and stayed up for hours. She kept saying that she couldn’t go back to sleep because she would return to it. She doesn’t remember it now.