Help With My HEART WARRIOR Daughter
This has been the worst year of our lives. My 11 year old daughter, Arianna, had a very high risk open heart surgery in August. She basically had to have part of her aorta removed and replaced with tissue from a cow. Thankfully, although she had about a 15% risk of not making it, and a 30% chance of being paralyzed, neither of those things happened. Her left vocal cord is paralyzed, however, as a risk of her surgery. She couldn’t speak at first, but they have done a few surgeries to help block her airway, but she continues to cough and choke. Since August shes has 2 more surgical procedures and is still in pain and having complications. During the Thanksgiving break things got more complicated when she began to suffer with PTSD from her surgery. She cries a lot, has panic attacks and mood swings, doesn’t sleep well, and can’t handle being around a lot of people. Her psychologist was forced to put her on homebound and pull her out of school. I’ve been getting docked pay this entire time, and it will continue, I don’t know how long she will be out of school, or how long I will be out of work to care for her, but she is most important, and I have to sacrifice my pay to be with her. Thanks for any help.+ Read More
Today makes 1 year since Arianna went to pre-op for the surgery that would be a turning point in her life. I didn’t mention it to her though, because she’s just recovering from a PTSD relapse.
Another Arianna freak out and panic attack this morning. We are going to try to make her go to one class while I wait. We’ve been talking to her vice principal for a long time and that's our attempted compromise for today. She doesn't want to go but we will try. He just walked her to art class while I wait. We are taking it one class at a time today and she knows that I'm here. That's the only reason she agreed. I’m sitting in the office waiting. I’ll wait here all day if she’ll go to all of her classes.
They putting her on lexapro and meds to help her sleep (but the sleeping meds are only for on the weekdays). We will attempt school again.
So i brought Arianna to her psychologist at 1. He wants her to try to go to school tomorrow. I hope that she can so i don’t have to miss again. He Believes that the “voices” are her own thoughts. We may put her back on medication but are waiting to hear back from him about that. It’s her PTSD. That’s it. She may get back on meds. We going to bring her to a new psychiatrist. She was not willing to talk to anyone much or hang out with anyone much once we got home but I just managed to get her to play about an hour of Mario Bros and we laughed and had a blast. I’ll take it,