Help Arthur Bernstein Fight ALS

$17,553 of $500,000 goal

Raised by 140 people in 6 months
Hello Everyone,

Thank you for taking the time to read my Fathers ALS journey.

In 2013, my Dad  Arthur Bernstein, received the life altering diagnosis of Amyotrophic Lateral Sclerosis (ALS) – a disorder that robs its victims of the ability to walk, talk and ultimately breathe. ALS has no cure and no effective treatment and the disease is terminal. For my Dad, the first sign of weakness began in his left ankle. The disease has now spread throughout his entire body, leaving him paralyzed from the neck down. He can no longer breathe on his own and is bound to a bed and wheelchair 24 hours a day.

Each day has its share of struggles and fears. About five weeks ago, I received a phone call that my dad was in the ICU after he aspirated on a sip of water and stopped breathing. He was later intubated and eventually a tracheostomy was performed.

In the five years since his diagnosis, my family and I have made the necessary changes to make sure our Dad is as comfortable as possible. However, the days ahead will be extremely difficult as well as expensive and we can no longer do it alone - We now need a trained professional that is well versed in tracheotomy care in the house 24 hours a day. The cost of 24 hour care is truly staggering and outside of the purview of insurance. This will cost us an extra $250,000.00 a year. The goal of $500,000 will give us approximately two years of care.

As hard as it is to ask for help, it has come to the point where we have no other choice. We refuse to allow money to be the reason my Dad cannot stay alive. He has expressed time and time again that he wants to keep fighting this insidious disease. My Dad refuses to give up on us. And we refuse to give up on him. We are asking for any help that you can offer us to give my Dad the best chance possible to stay alive until an effective treatment or cure for ALS is found. No donation is too small.   

If everyone could please share this Go Fund Me page and say a prayer for my Dad, even if you cannot make a donation, it would mean the world to my family. On behalf of myself and the whole Bernstein family I would like to thank our community for taking the time to hear our story, God bless.

With Love,
The Bernstein Family.
+ Read More

$17,553 of $500,000 goal

Raised by 140 people in 6 months
Your share could be bringing in donations. Sign in to track your impact.
We will never post without your permission.
In the future, we'll let you know if your sharing brings in any donations.
We weren't able to connect your Facebook account. Please try again later.
Christine Zaffarano
13 days ago
Tashia Norm Kravitz
14 days ago
Erica Krodman
1 month ago
Derek Shakhshire
1 month ago
Alex Daniel
2 months ago
Pam Martinez
4 months ago
Myrna Venokur
4 months ago
Jeff Cutler
4 months ago
Deborah Katz
5 months ago
Egidio Balzola
5 months ago
Use My Email Address
By continuing, you agree with the GoFundMe
terms and privacy policy
There's an issue with this Campaign Organizer's account. Our team has contacted them with the solution! Please ask them to sign in to GoFundMe and check their account. Return to Campaign

Are you ready for the next step?
Even a $5 donation can help!
Donate Now Not now
Connect on Facebook to keep track of how many donations your share brings.
We will never post on Facebook without your permission.