Tristan's Fight

I am seeking help from family, friends and strangers on Facebook to please help us in this time of need. We have always supported our family on our own but now we need help. We are desperate to help our son Tristan . If you know us you know how special he is. We have 5 children and unfortunately he was our only sick baby. He means the absolute world to us. Tristan was born with surge Weber glaucoma, port wine stain throughout his entire body even his brain, multicystic dyspastic kidney disease and epilepsy. He had really bad seizures at 9 months continue to have episodes until 2. At 2 he was hospitalized and put on anti- seizure medication which kept him stable. He is now 4 going on 5 and had to be hospitalized again. My poor baby had a grand mal seizure is in ICU and been having cluster seizures since it's been for 4 days. They put him under video ekg and it shows that even when his body isn't reacting physically he is catching them consistently throughout the day and night. They have lasted as long as 3 hours. I am at a cross roads as they have tried multiple medications and have not been successful. Today they gave my son a drug to temporarily paralyzed him and stop brain activity to stop all these episodes until they figure out what's next . Then they took a X-ray after sedation and saw something building in his lungs and there not sure if it's pneumonia or if fluid went into his lungs. It just been one scare after another for my little guy. At this point they have no solution and discussing possibly having brain surgery which only has a 50/50 chance of success of working. But I am seeking other alternatives for him instead of them taking pieces of his brain out without knowing if its going to work. We have research other possibilities but in order to do so we need help raising funds to relocate my family to Colorado where these treatments he needs are available for him. I am asking to please out the kindness of your hearts to help me provide my son with the proper care he needs and a better way of obtaining it.
With much love ,
Lil Manny , Aaliyah ,Emma,Kaleb,Marlene & me Manuel Rivera