Give hope to baby Beau

$46,810 of $50,000 goal

Raised by 422 people in 26 months

They say it takes a village to raise a child, imagine if that child was sick. What would it take to raise that child?


Hi, my name is Laura Funnell and I have created this go fund me page to support my sister and her young family through an extremely hard time. Here is a snippet of a story very close to my heart…..

On 15 February, my beautiful blue eyed nephew Beau was born. His first evening was spent like most healthy newborn babies, meeting the family, feeding, sleeping and crying when he needed something. 

From here Beau’s real fight begun….

An MRI found that he had a rare bleed on his cerebellum before he was born. 10 days later Beau was stable enough to be discharged home with support provided by the Newborn and Parent Support Service (NAPSS).

Less than 2 weeks at home an urgent consult was arranged with his pediatrician and Beau was instantly admitted back to hospital to be monitored for seizure like activity. 

The EEG results came back irregular and Beaus seizure like episodes became more frequent and fierce. The medication prescribed wasn’t working, so he was airlifted to the Sydney's Children's Hospital in Randwick.  

Beau has been cared for by his parents 24 hours a day since his seizures started. This has consisted of them taking it in turns to rest and sit by his bed or hold him to watch every move he made so it could all be documented. By the time Beau was admitted to the Sydney’s Children’s hospital he was having more than 40 large seizures a day, totaling over 300 infantile spasms, with most lasting between 7 -10 minutes.

Last week after every test imaginable, Beau was diagnosed with Ohtahara Syndrome- a rare, drug resistant, uncontrolled form of epilepsy. When you read about epilepsy many people with epilepsy can control their seizures with medications and many cannot- my nephew is someone whose epilepsy cannot be controlled.  

Due to Beau’s Ohtahara Syndrome and the generalised form of epilepsy that he has, his future is very uncertain. As a parent this news is heartbreaking and to hear that your child has an uncertain future is devastating. My sister and her partner have been through an emotional roller coaster at a time that should be filled with joy and complete happiness, however their outlook is an inspiration to all and they are doing everything possible to help Beau thrive and hopefully prove the medical world wrong.

I am hoping as a community we can raise much needed funds to assist the McClinton family with Beau’s uncertain future, that will consist of ongoing medical bills, therapy, in home assistance to help with his 24 hour care, travelling and accommodation costs for ongoing reviews in Sydney and medical equipment so that he can live his life at home with his family.

Beau is certainly the little super hero of our family who has endured way too much for a 12 week old baby. As my daughter Myah says, “We need to keep wishing on the stars to bring Beau home and make him better”. 

I have added a link for anyone interested in reading more about Ohtahara Syndrome.
http://www.epilepsy.com/learn/types-epilepsy-syndromes/ohtahara-syndrome
In a day of a sick child:
https://www.youtube.com/watch?v=2MFrTJpdzkk





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Today was Beau’s first hydro session. He kicked his legs himself and looked very relaxed during his session. Clearly he loves his hydro sessions. Once again you are kicking more goals Beau, Beau!!!
Unfortunately I can’t upload the video but the first photo is of him kicking.
Kick kick Beau!
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Beau had a wonderful 2nd Birthday. Thank you to everyone that sent birthday wishes.
Celebrating Beau’s birthday on the river
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Happy 2nd Birthday to our little superhero Beau. Wow 2 already. Hasn’t the time flown by. You have achieved so much over the past two years. We are all so proud of you and love you dearly.
#beauistwo #beausvillage
Birthday boy !
Cuddles for Beau’s Birthday.
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Beau has had a wonderful second Christmas at Tuross with his family. He is still fighting off his congestion but has been a real trooper as always. He has spent time at the beach with his feet in the sand and water. He wasn’t too impressed with how cold the water was and let his mum know. Beau and his family are certainly amazing and I admire them for the life they give their two boys. Beau, his parents and I thank you for your support, kind words and generosity since Beau has been born. It means a lot to us all and helps more than you will ever know. We hope you had a wonderful Christmas and 2019 is a year full of joy and happiness.
Santa is visiting in the fire truck
Merry Christmas
Beau and his big cousin on holidays
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Read a Previous Update
Kerrie
7 months ago
1
1

Thank you Laura for Beau's update. I think of Erin and her family often and you are a great support. It must be very hard on you all and I do hope Beau is recovering and getting better. Sending my love and best wishes to all the Fullerton family. Always in my heart xx

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Andrea Peat
14 months ago
1
1

Loving the pics of the little super hero xxx

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Jodie Paul
17 months ago
1
1

Sending lots of warm wishes to your family

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Kath Ryn
17 months ago
1
1

Such a beautiful photo. So pleased to see him smiling.

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Marilyn Graham
17 months ago
1
1

Gorgeous boy.❤️

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Andrea Peat
19 months ago
1
1

Wow ..love the smile . Gooooo Beau !!!!!

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Estelle Wilson
20 months ago
1
1

Beautiful photo - so pleased he is home again. What a little warrior Beau is.

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Lindsay Pepper
24 months ago
1
1

Beautiful boy ♥

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Estelle Wilson
24 months ago
1
1

Absolutely wonderful to see Beau's smiles!

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Katie Young
26 months ago
1
1

Always be part of Beaus village, always wishing of stars Love you all, love katie, rhyan, Charlie and Lincoln xxx

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Andrea
5 months ago

Happy birthday to this super hero. Often think of you guys. Love the updates xxx

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$46,810 of $50,000 goal

Raised by 422 people in 26 months
Created May 11, 2017
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$50
Anonymous
4 months ago
RH
$50
Rebecca Hotchkis
4 months ago

Go Beau! keep it up :) love Podiatry Professionals

KF
$50
Katharine Finlayson
5 months ago

Happy Birthday Beau! You have grown so much. xx

$60
Anonymous
5 months ago
JS
$100
Judith Shanahan
5 months ago

Happy Birthday Beau

CB
$500
Catherine Best
5 months ago
MF
$132
Martin, Baldacchino, Compton and Williams families
6 months ago

Wishing on all the stars in every universe Super Beau. Have a lovely Christmas with your beautiful family ❤️

TD
$100
Tracey Davis
7 months ago
PM
$50
Premier Early Learning Moruya
7 months ago

Wishing on all the stars in every universe Beau, for you and your beautiful family xx

TF
$100
The Reddans and Williams family
7 months ago

Wishing on the stars Beau Beau xxx

Kerrie
7 months ago
1
1

Thank you Laura for Beau's update. I think of Erin and her family often and you are a great support. It must be very hard on you all and I do hope Beau is recovering and getting better. Sending my love and best wishes to all the Fullerton family. Always in my heart xx

+ Read More
Andrea Peat
14 months ago
1
1

Loving the pics of the little super hero xxx

+ Read More
Jodie Paul
17 months ago
1
1

Sending lots of warm wishes to your family

+ Read More
Kath Ryn
17 months ago
1
1

Such a beautiful photo. So pleased to see him smiling.

+ Read More
Marilyn Graham
17 months ago
1
1

Gorgeous boy.❤️

+ Read More
Andrea Peat
19 months ago
1
1

Wow ..love the smile . Gooooo Beau !!!!!

+ Read More
Estelle Wilson
20 months ago
1
1

Beautiful photo - so pleased he is home again. What a little warrior Beau is.

+ Read More
Lindsay Pepper
24 months ago
1
1

Beautiful boy ♥

+ Read More
Estelle Wilson
24 months ago
1
1

Absolutely wonderful to see Beau's smiles!

+ Read More
Katie Young
26 months ago
1
1

Always be part of Beaus village, always wishing of stars Love you all, love katie, rhyan, Charlie and Lincoln xxx

+ Read More
Andrea
5 months ago

Happy birthday to this super hero. Often think of you guys. Love the updates xxx

+ Read More
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