Girl fights CRMO
Since Alyea was diagnosed with CRMO (a very rare form of bone disease) -she's learned to overcome its daily symptoms of facial pain, swelling and overall body aches...
After pain & swelling in her mandible bone for more then 8 months & trying to find a diagnosis, she visited over 7 different doctors before coming across a fantastic pediatric specialists & oral surgeon-- 9 months later, we have found a diagnose. Unfortunately medical bills are never ending, w/ multiple doctor visits over the past
17 months, along w/ hospital infusions, hospital stays for bone biopsy, & additional medications.
Soon a costly line of injections and oral medication may be prescribed that will help maintain the disease and give her the consistent comfort needed to continue living a pain free -active childhood.
While she continues training her favorite sport of Figure skating and has been a trooper through every blood draw, medication, infusion, CT, MRI scans or surgery, she looks forward to the day when the disease is at rest.
We hope to bring awareness & a cure to this rare chronic disease some day.
Thank you all for your prayers and generosity! We greatly appreciate your support ❤️
(Gina Z.)



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After pain & swelling in her mandible bone for more then 8 months & trying to find a diagnosis, she visited over 7 different doctors before coming across a fantastic pediatric specialists & oral surgeon-- 9 months later, we have found a diagnose. Unfortunately medical bills are never ending, w/ multiple doctor visits over the past
17 months, along w/ hospital infusions, hospital stays for bone biopsy, & additional medications.
Soon a costly line of injections and oral medication may be prescribed that will help maintain the disease and give her the consistent comfort needed to continue living a pain free -active childhood.
While she continues training her favorite sport of Figure skating and has been a trooper through every blood draw, medication, infusion, CT, MRI scans or surgery, she looks forward to the day when the disease is at rest.
We hope to bring awareness & a cure to this rare chronic disease some day.
Thank you all for your prayers and generosity! We greatly appreciate your support ❤️
(Gina Z.)



Some months have passed & Alyea has recently experienced an increase in flare ups in her arches, shins and Sacrum.
We are grateful that the pain comes and goes, only lasting about 3-4 days at a time, but we are patiently awaiting the news of new medication. She will becoming off methotrexate and starting w/ several days & months of infusions. More hospital visits are around the corner, but finding the right medication that will eventually send this chronic illness into remission is the goal!
CRMO is definitely an invisible disease & one that many may never understand...
As always-Thanks for the thoughts & prayers as we continue on this CRMO journey.
Spreading awareness this year is one of Alyeas wishes!!
crmoawareness.com
We are grateful that the pain comes and goes, only lasting about 3-4 days at a time, but we are patiently awaiting the news of new medication. She will becoming off methotrexate and starting w/ several days & months of infusions. More hospital visits are around the corner, but finding the right medication that will eventually send this chronic illness into remission is the goal!
CRMO is definitely an invisible disease & one that many may never understand...
As always-Thanks for the thoughts & prayers as we continue on this CRMO journey.
Spreading awareness this year is one of Alyeas wishes!!
crmoawareness.com



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