Girl fights CRMO
Since Alyea was diagnosed with CRMO (a very rare form of bone disease) -she's learned to overcome its daily symptoms of facial pain, swelling and overall body aches...
After pain & swelling in her mandible bone for more then 8 months & trying to find a diagnosis, she visited over 7 different doctors before coming across a fantastic pediatric specialists & oral surgeon-- 9 months later, we have found a diagnose. Unfortunately medical bills are never ending, w/ multiple doctor visits over the past
17 months, along w/ hospital infusions, hospital stays for bone biopsy, & additional medications.
Soon a costly line of injections and oral medication may be prescribed that will help maintain the disease and give her the consistent comfort needed to continue living a pain free -active childhood.
While she continues training her favorite sport of Figure skating and has been a trooper through every blood draw, medication, infusion, CT, MRI scans or surgery, she looks forward to the day when the disease is at rest.
We hope to bring awareness & a cure to this rare chronic disease some day.
Thank you all for your prayers and generosity! We greatly appreciate your support ❤️
(Gina Z.)



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After pain & swelling in her mandible bone for more then 8 months & trying to find a diagnosis, she visited over 7 different doctors before coming across a fantastic pediatric specialists & oral surgeon-- 9 months later, we have found a diagnose. Unfortunately medical bills are never ending, w/ multiple doctor visits over the past
17 months, along w/ hospital infusions, hospital stays for bone biopsy, & additional medications.
Soon a costly line of injections and oral medication may be prescribed that will help maintain the disease and give her the consistent comfort needed to continue living a pain free -active childhood.
While she continues training her favorite sport of Figure skating and has been a trooper through every blood draw, medication, infusion, CT, MRI scans or surgery, she looks forward to the day when the disease is at rest.
We hope to bring awareness & a cure to this rare chronic disease some day.
Thank you all for your prayers and generosity! We greatly appreciate your support ❤️
(Gina Z.)

Hello family & friends! We can’t believe it’s almost Easter timer! Alyea is looking forward to spring!! She enjoyed some sunshine this afternoon & hopes the warmer weather is here to stay!
She’s had a couple new flare ups, one in her Sacrum, & one that seems to be either a flare or a pretty intense migraine. She experienced extreme pain in the back of her head for a couple hours- it was a dull pain, warm & sensitive to the touch for a few days.
We are grateful & hopeful as Alyea begins a new line of treatment-
For the next several months she will receive infusions in hopes that this medication will be a quicker remedy to the on going flare ups.
While she has days of less pain & is able to take part in activities, there are still those days where she is too depleted to finish a practice, & too tired & sore to stay on her feet for more then an hour or two at a time.
Thank you again for everyone’s continued thoughts and prayers as we await remission & take one day at a time. #stayinghopeful
She’s had a couple new flare ups, one in her Sacrum, & one that seems to be either a flare or a pretty intense migraine. She experienced extreme pain in the back of her head for a couple hours- it was a dull pain, warm & sensitive to the touch for a few days.
We are grateful & hopeful as Alyea begins a new line of treatment-
For the next several months she will receive infusions in hopes that this medication will be a quicker remedy to the on going flare ups.
While she has days of less pain & is able to take part in activities, there are still those days where she is too depleted to finish a practice, & too tired & sore to stay on her feet for more then an hour or two at a time.
Thank you again for everyone’s continued thoughts and prayers as we await remission & take one day at a time. #stayinghopeful
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