Help with Gilly's Memorial Service

$6,570 of $10,000 goal

Raised by 146 people in 48 months
My son Gilbert was born with tricupsid atresia he has had four open heart surgeries and over two dozen procedures done. We are here at Texas Childrens Hospital in Houston. Gilly has not seen the sun and been outside in almost six months. The doctors here are saying that due to a fungal infection they will not be able to do any more heart surgeries due to the infection even if he gets rid of it they said they still wont because it would be to "risky" so they are saying he is pretty much imcompatible with life. His heart is only working at not even ten percent now due to the infection growing on his mitral valve that they had just tried to fix. They said they dont know how long he has its all up to him. I have been trying to get third, fourth, and fifth opinions but we would have to go to Boston if they would do the surgeries there but the insurance will not pay for him to go there. I hate that I have to make an account for this I wish I did not have to but medical expenses and having to be here in Houston far away from home and possibly have to go to Boston is way out of my grasp of cash. Me and dad are not able to work at the moment because we have to be here at every moment cause even though he looks good internally he is very sick and can go at any moment. So please if you can help with anything a dollar, five dollars, or even just by sharing Gilberts page me & Gilbert & our family would very much greatly appreciate it. And one last request please keep Gilly & his doctors & nurses in your prayers!
+ Read More
So this morning Gilbert decided to take the breathing tube out he was doing good all on his own but the doctors intubated him again and we are going to try to slowly wean the support if he tolerates it, But in the next 48 hours I have have to have an answer whether we're going to intubate him again or not and they're going to find out Dallas's opinion but if I end up putting the breathing tube in him again they said it will go to ethics group. And they said by then will accept him. so tomorrow hopefully we will start weaning him off again. they said that last time they think it was the fever that caused his heart rate to go up because he ended up getting cultures and urine and he had a UTI. so for the next 48 hours please pray extra hard that he can tolerate this!!!!! Tomorrow is another conference I'll update everyone with the new information when we know more . And as always thank you so so much for all the prayers and support !!!!!!
+ Read More
We spoke with the doctors again today they wanted a decision. Me and dad can not and will not take out the breathing tube and withdraw care unless I know for sure all resources have been completely exhausted. So we told them to consult with dallas. And they said that gillys surgeon spoke with the surgeon from Boston and he said that he agrees with them here but we never heard from them so I'm going to see if that's true. Because if there's anything they can do for him idk if insurance will help or not idk I'm in debt forever and if there is a will there is a way. I'd do anything to keep my son here I just want my family to be complete again even if it takes another year in the hospital what ever it takes we will do. He did good with them taking off some of the support from the venelator until he got a fever today and they had to put him back on full support. The doctor also told us he doesn't even know for sure if in a few days if he will be stable enough to transfer. And they didn't get cultures and start him on antibiotics because they said it wouldn't change the outcome. That's all the changes for now as soon as we find out more we will update everyone but for now please keep praying for our little warrior and his doctors and nurses. And thank you everyone for all the prayers love and support it means a lot to all of us and I always read yall comments and messages to Gilly because I know he can hear me!!!!!
+ Read More
We were supposed to have a conference today with the doctors but we are postponing it until tomorrow because honestly me and dad still haven't come up with a decision and a few other reasons but we talked to the doctor alone today just us and asked him a few questions. We asked him what would happened if we winged him off the breathing tube exactly what would happen how long and other questions. Long story short we asked him if we could do some trials just to see how he would react. He said we would try for thirty minutes or less depending on how he reacted. They thought his heart rate would go up and his work of breathing would worsen. But it's been over 30 min actually 45 minutes now and he has been doing great! Every thing is the same and he's doing most of the work on his own. So we are now waiting to see what the doctors have to say about that! But that shows me a lot. It gives me hope a lot of hope actually. I'm literally getting myself ready for tomorrows conference because I'm going in there to fight & argue for my Gilly the Great ( in a nice & respectable manner)!!!!! Please pray that everything keeps going in the right direction!!!!!! And thank you everyone for all the love and support and especially the prayers!!!!!!!
+ Read More
I am so so so lost I do not know what to do in this situation we had the conference today and Dr McKenzie the surgeon who is did Gilbert's past three surgeries was there in this conference. well they told us already what we know that Gilbert is not going to make it out of the hospital Gilbert is going to pass away cuz there's nothing else that we can do there they said they could always do stuff but nothing is going to help him they told us that Boston we should put that to the side because they're not going to do the heart cath and stuff they don't think that's in his best interest and they said that Boston would be too hard for him to go. Due to his insurance and it just being so far away that if we wanted to put him through more suffering because they said thats what is happening right now that he's just suffering they said that insurance will not pay for him to go get a heart transplant in Boston since Texas Children's is here in Texas and also Dallas. They said they do not recommend taking him to Dallas and putting him through more because he has a very very small chance like only a 1% chance of actually finding a heart for him and his quality of life will be very low after that. They wany to keep him here and comftorable as possible then with draw care here in the next few days. but in a way I kind of feel like I don't want to give up because we came way too far to just give up now and he hasn't given up himself but I don't know what to do I don't want to make him suffer I don't know if I'm just doing this for my own selfish needs or what to do this is the hardest decision ever I wish I could do whatever is possible to keep him here and I've heard so many other miracle stories and they told us here at this hospital that he's not going to make it so many times and he's proved them wrong so it's hard to believe and I don't know what to do!!!! please keep Gilly in your prayers and also the medical staff and also us and our family because this is the toughest decisions to ever have to make. Hold your kids a little tighter and always remind them how much you love them because in a blink of an eye everything can flip, just appreciate what you have don't wait until it's too late!
+ Read More
Read a Previous Update
Robert N Martha Romero
43 months ago
1
1

I pray for Gilly everyday. Please God help us.

+ Read More
Rayna Malone
44 months ago
1
1

Dr. baird is our surgeon and saved my daughters life, if anytging can be done he can do it! Prayers for youf sweet baby!

+ Read More
MsIndependent Angelique
43 months ago

I'm so sorry for ur lost....I send my deepest sympathy....and I will continue to just Pray for ur family during this hard time....GOD GOT A NEW ANGEL watching over you'll.....

+ Read More
Katherine Foerster Hunter
43 months ago

I'm so sorry for your loss.

+ Read More
Nancy Castle
43 months ago

I am so sorry for your loss. It is the most difficult thing to go through. I lost my husband two years ago at about this same time. I know the numbness, I know the denial. I know the feeling that I am just a shadow of the person I was. I also know your little boy is in heaven now. He is whole, no longer suffering. He is in your heart, and you will never forget him. You will smell his scent one day, or hear a little baby sound. You'll feel his soft hair on your chin as you cuddle him. He will always remember you. He will always remember who his Mommy and Daddy were. God will remind you of that every once in a while, just so you know HE's there and that he cares. Maybe you won't want to remember those things at once, but one day you will. And, one day you will begin to heal a little bit each day. And, you will smile at his beloved memory.

+ Read More
Jennie Mason
43 months ago

Praying that you will reach your goal and God bless you and your family by granted your hearts desire and favor.

+ Read More
Melissa Hutzell Bittner
43 months ago

We will be praying for you Gilly everyday. Praying they can get you back home. Praying for your mom and dad. We were right where your mom and dad was when our son was born. He had open heart surgery when he was 2 weeks old. Children's hospital in Pittsburgh PA saved our sons life. You keep fighting little guy.

+ Read More
Kim Wardlow Spencer Peace
43 months ago

My grandson has had three open heart surgeries in Boston and they are great! We live outside of Dallas. He had his first two here. Praying for your family.

+ Read More
Kim Wardlow Spencer Peace
43 months ago

Have you checked into Angel a Wings? I believe it is a nonprofit group that will fly sick people to hospitals for free.

+ Read More
Lynn Sanders Westbrook
45 months ago

Prayers.

+ Read More
Angel Gannon
45 months ago

Were going through a lot at the moment, but once were through our storm I will pay it forward to this campaign, that I promise. Sending lots of love snd prayers!! ♡ ♡ ♡

+ Read More

$6,570 of $10,000 goal

Raised by 146 people in 48 months
Created June 22, 2015
Your share could be bringing in donations. Sign in to track your impact.
   Connect
We will never post without your permission.
In the future, we'll let you know if your sharing brings in any donations.
We weren't able to connect your Facebook account. Please try again later.
$10
Anonymous
40 months ago (Monthly Donation)
$10
Anonymous
41 months ago (Monthly Donation)
AB
$50
Ashley Brown
42 months ago

I happened to stumble across Gilly's Journey Facebook page...and I found myself going through your journey, post by post and picture by picture. I am a proud mother of two healthy young boys, and my heart breaks for what you all have endured. Little Gilly was such a precious child. Love hat smile of his! I pray that God provides peace and comfort in your days ahead. Please know that I am praying for you guys. Gilly is finally pain free and with his Maker.

$100
Shepherds Class
42 months ago
1
1

This is from the Shepherd's Class @Flint Baptist Church. We love you guys and Peace Be With You!

$10
Anonymous
42 months ago (Monthly Donation)
AP
$100
Alma Perez
42 months ago
CB
$50
Carolee Brunken
43 months ago
RP
$25
Richard Palmer
43 months ago
$30
Anonymous
43 months ago
DW
$25
Dane Welsh
43 months ago
Robert N Martha Romero
43 months ago
1
1

I pray for Gilly everyday. Please God help us.

+ Read More
Rayna Malone
44 months ago
1
1

Dr. baird is our surgeon and saved my daughters life, if anytging can be done he can do it! Prayers for youf sweet baby!

+ Read More
MsIndependent Angelique
43 months ago

I'm so sorry for ur lost....I send my deepest sympathy....and I will continue to just Pray for ur family during this hard time....GOD GOT A NEW ANGEL watching over you'll.....

+ Read More
Katherine Foerster Hunter
43 months ago

I'm so sorry for your loss.

+ Read More
Nancy Castle
43 months ago

I am so sorry for your loss. It is the most difficult thing to go through. I lost my husband two years ago at about this same time. I know the numbness, I know the denial. I know the feeling that I am just a shadow of the person I was. I also know your little boy is in heaven now. He is whole, no longer suffering. He is in your heart, and you will never forget him. You will smell his scent one day, or hear a little baby sound. You'll feel his soft hair on your chin as you cuddle him. He will always remember you. He will always remember who his Mommy and Daddy were. God will remind you of that every once in a while, just so you know HE's there and that he cares. Maybe you won't want to remember those things at once, but one day you will. And, one day you will begin to heal a little bit each day. And, you will smile at his beloved memory.

+ Read More
Jennie Mason
43 months ago

Praying that you will reach your goal and God bless you and your family by granted your hearts desire and favor.

+ Read More
Melissa Hutzell Bittner
43 months ago

We will be praying for you Gilly everyday. Praying they can get you back home. Praying for your mom and dad. We were right where your mom and dad was when our son was born. He had open heart surgery when he was 2 weeks old. Children's hospital in Pittsburgh PA saved our sons life. You keep fighting little guy.

+ Read More
Kim Wardlow Spencer Peace
43 months ago

My grandson has had three open heart surgeries in Boston and they are great! We live outside of Dallas. He had his first two here. Praying for your family.

+ Read More
Kim Wardlow Spencer Peace
43 months ago

Have you checked into Angel a Wings? I believe it is a nonprofit group that will fly sick people to hospitals for free.

+ Read More
Lynn Sanders Westbrook
45 months ago

Prayers.

+ Read More
Angel Gannon
45 months ago

Were going through a lot at the moment, but once were through our storm I will pay it forward to this campaign, that I promise. Sending lots of love snd prayers!! ♡ ♡ ♡

+ Read More
or
Use My Email Address
By continuing, you agree with the GoFundMe
terms and privacy policy
There's an issue with this Campaign Organizer's account. Our team has contacted them with the solution! Please ask them to sign in to GoFundMe and check their account. Return to Campaign

Are you ready for the next step?
Even a $5 donation can help!
Donate Now Not now
Connect on Facebook to keep track of how many donations your share brings.
We will never post on Facebook without your permission.