Sean McNulty Medical Fund

$33,419 of $250k goal

Raised by 369 people in 1 month
Shelley McNulty  AUSTIN, TX
Hi everyone. My name is Shelley McNulty and this fund is for my brother, Sean McNulty, who is battling multiple medical conditions.

On March 7th, Sean was admitted to St. David’s North Austin Medical Center for what seemed to be a minor sickness, but resulted in something far worse. With each passing day, Sean’s health deteriorated and his body began failing him. On March 14th, he was diagnosed with acute renal failure. His kidneys stopped functioning and doctors began dialysis in hopes of reviving them. The next day Sean was rushed to the ICU for puzzling symptoms – extremely high blood pressure, extreme headaches and pain, difficulty breathing, and numbing of his entire face, hands and feet. He was put on a respirator on March 17th. After many tests, doctors finally diagnosed him with Guillain-Barré Syndrome (GBS) – a disorder in which the body's immune system attacks the nervous system. This syndrome is very rare. For Sean, it has caused nerve damage, respiratory failure and partial paralysis.

Today Sean is still in the ICU and hooked up to a ventilator. Five different specialists are working on his case. He is undergoing dialysis for 3-4 hours nearly every day for his kidney failure. They are treating GBS with an immunoglobulin treatment, which is done for a few days every couple of weeks. He is in constant pain throughout his entire body, and heavily sedated to make him more comfortable. He has been able to communicate with his family through minimal sign language and movement of his hands and head.

Doctors have confirmed Sean’s recovery will take a long time – months to years, even. GBS takes a very long time from which to recover and no one knows if he will have a reoccurrence of this condition in the future. In addition, we are unsure if his kidneys will function again. It is very possible he may have to continue dialysis indefinitely or require a transplant.

We are creating this fund to help Sean with the huge medical expenses from these concurrent conditions and to generate a source of income for him and his kids while he recovers. Since he works in a commission-based business supplemented by shifts in the service industry, he has no income throughout this experience. He will have an extensive stay in the hospital and likely longer at a rehabilitation facility for critical chronic care. We have no definite release date and expenses will only continue to accumulate.

For those of you who know Sean, you know that he is a very outgoing, charismatic, good-hearted guy. He has impacted many lives from growing up in Yakima, Washington, living in Seattle, DJing, working in the service industry, working at ACL and other music festivals, and helping people find and sell homes as a Keller Williams agent. His two children are his driving force. This is a very unfortunate event that has left Sean with no source of income for living expenses for quite some time, not to mention growing medical costs. So every donated amount counts! Sean and his entire family thank you for your support through this challenging time.

#GetWellSean
Follow Sean's progress at  https://www.facebook.com/getwellseanmcnulty/
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Update 5
Posted by Shelley McNulty
6 days ago
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This week has been a good week for Sean. I wanted to share his progress with everyone.

Breathing:
Sean has been spending 12 hours on the respirator’s CPAP setting before the machine is set back to its full setting. He has been able to go 10-15 minutes without any assistance from the machine. The doctors have also put him on a Passy-Muir trach and ventilator, which has a speaking valve. He has been able to say a few words using this.

GBS:
Sean has been able to move his legs a little. He is making little progress every day.

Kidneys:
No change in status with his kidney. They still are not producing very much fluid on their own and what they are passing is not very good quality. Dialysis continues 3-4 times a week.

Thank you to everyone for the continued donations and to all of Sean's friends who made it to his benefit earlier today. My whole family is so appreciative of how generous friends, family and strangers have been. Sean still has a long recovery road ahead of him, and your support means so very much in his continued fight.
Sean's friends showing their support.
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Update 4
Posted by Shelley McNulty
13 days ago
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Thank you for your continued prays, well wishes and generosity. Angels have been watching over Sean. This last week has been much better than last week. He is improving and has been a lot more alert. Here are some details on his condition:

GBS - Sean is getting some feeling back in his toes and lower legs. His nerves are beginning to heal, but he is experiencing serious pain in the process.

Kidneys - There has been no improvement with his kidneys. He continues to receive dialysis more than 3 times a week in 4-hour sessions. The sessions often agitate him and leave him feeling cold.

Respiration - The doctors continue to challenge Sean's breathing muscles. They test him every day to see how he does on his own. The longest has been 10 minutes. He is able to go half the day with the ventilator on CPAP setting to assist him with breathing. By early evening he needs a break and the machine is set back to full setting so he can rest.

He is still unable to talk and we use a notebook with an alphabet to spell out what he wants to communicate.

Sean's girlfriend, Jessica, and some of his friends have arranged a benefit for him. It will be held on Sunday, April 23, starting at 2 pm at Brazos Hall (204 E 4th St, Austin). Everyone is welcome.
Sean with his son last year.
Sean's more alert this week.
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Update 3
Posted by Shelley McNulty
23 days ago
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I thought I would share a photo of Sean and I as kids for this update.

This week started with a set back. Sean was not as responsive as he was the previous week and did not seem to be able to control some of his arm and head movements. Then he seemed to slip into a coma-like state. Fortunately, after removing him from all sedatives he had been receiving, he became more alert. Today he was able to open both eyes (he has not been able to do this for a while – only seeing out of a tiny slit from one eye), as well as track people and focus on them. He is also able to move his mouth, chin and stick out his tongue.

Dialysis continues and he has had 4-hour treatments every day for the last 3 days. He will have a break from it tomorrow.

The doctors will be performing a bronchoscopy soon to determine the best treatment for his pneumonia, which is getting worse.

More updates to come.
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Update 2
Posted by Shelley McNulty
28 days ago
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3
3
Sharing a photo of Sean after his tracheotomy. The doctors have been able to lower his sedatives and he has been more alert. They are testing his ability to breath on his own every day.

Doctors are also still striving perform dialysis on Tuesdays, Thursdays and Saturdays but frequency really depends on his blood counts.

Visitors are welcome!
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Read a Previous Update
Ashley Logstrom
1 month ago
8
8

I am sorry to hear about your brother. I am a GBS survivor myself. I was diagnosed 3 years ago. It is possible to comeback from GBS. It just takes time.

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Peggy McNulty
1 month ago
2
2

In surgery now for a tracheotomy and stomach feeding tube. Still waiting for improvement. #prayforourboy

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Jenny Herbold Bogue
1 month ago
2
2

Saw this on a friends facebook feed. I'm so sorry hear this. There is a book called Bed Number 10 written by a survivor of GBS. It's a hard story to read but it might give you some things to watch for for his comfort and it detailed how she learned to communicate with her eyes. Prayers to your family.

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Keri Dawn Solner
1 month ago
2
2

So sorry to hear- such a rare disorder- : Did he by chance get a vaccine close to this terrible occurrence? This disorder is listed as a side effect of many.

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Janet Green-Stroud
23 days ago

JESUS please lay your healing hands on Sean. JESUS I ask that you surround him and his family with peace, comfort and mercy. JESUS please heal Sean today from all ailments. Please bless him and his family with abundance that only you can provide. AMEN

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Ashley Johnson
1 month ago

If i could donate i would. I am so sorry this has happened. Im a surviver of gbs. Was diagnosed jan 16 2017. Prayers to you and your family.

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Peggy McNulty
1 month ago

He had a 3 day virus known to also cause GB.

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$33,419 of $250k goal

Raised by 369 people in 1 month
Created March 24, 2017
Shelley McNulty  
$10
Shayla Maglaris
3 days ago

Thoughts and good vibes are with you!

RS
$300
Ron Stafford
4 days ago

good luck Sean

DP
$250
Dawn Pereira
5 days ago

Love, peace and hope - Dawn & Rob

DP
$50
DamMe Potter
5 days ago

Best wishes with thanks to Mike Joyce for making us aware and matching this donation.

AK
$100
Aleksandra Koleva
6 days ago
$10
Anonymous
6 days ago
JM
$20
Jacoby Madewell
6 days ago
KK
$50
Kristy&ilya Kuklin
6 days ago
VC
$100
Vanessa Chiapetta
6 days ago

God Bless you Sean and your family.

EE
$50
Edy Embry
6 days ago
Ashley Logstrom
1 month ago
8
8

I am sorry to hear about your brother. I am a GBS survivor myself. I was diagnosed 3 years ago. It is possible to comeback from GBS. It just takes time.

+ Read More
Peggy McNulty
1 month ago
2
2

In surgery now for a tracheotomy and stomach feeding tube. Still waiting for improvement. #prayforourboy

+ Read More
Jenny Herbold Bogue
1 month ago
2
2

Saw this on a friends facebook feed. I'm so sorry hear this. There is a book called Bed Number 10 written by a survivor of GBS. It's a hard story to read but it might give you some things to watch for for his comfort and it detailed how she learned to communicate with her eyes. Prayers to your family.

+ Read More
Keri Dawn Solner
1 month ago
2
2

So sorry to hear- such a rare disorder- : Did he by chance get a vaccine close to this terrible occurrence? This disorder is listed as a side effect of many.

+ Read More
Janet Green-Stroud
23 days ago

JESUS please lay your healing hands on Sean. JESUS I ask that you surround him and his family with peace, comfort and mercy. JESUS please heal Sean today from all ailments. Please bless him and his family with abundance that only you can provide. AMEN

+ Read More
Ashley Johnson
1 month ago

If i could donate i would. I am so sorry this has happened. Im a surviver of gbs. Was diagnosed jan 16 2017. Prayers to you and your family.

+ Read More
Peggy McNulty
1 month ago

He had a 3 day virus known to also cause GB.

+ Read More
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