Sean McNulty Medical Fund
On March 7th, Sean was admitted to St. David’s North Austin Medical Center for what seemed to be a minor sickness, but resulted in something far worse. With each passing day, Sean’s health deteriorated and his body began failing him. On March 14th, he was diagnosed with acute renal failure. His kidneys stopped functioning and doctors began dialysis in hopes of reviving them. The next day Sean was rushed to the ICU for puzzling symptoms – extremely high blood pressure, extreme headaches and pain, difficulty breathing, and numbing of his entire face, hands and feet. He was put on a respirator on March 17th. After many tests, doctors finally diagnosed him with Guillain-Barré Syndrome (GBS) – a disorder in which the body's immune system attacks the nervous system. This syndrome is very rare. For Sean, it has caused nerve damage, respiratory failure and partial paralysis.
Today Sean is still in the ICU and hooked up to a ventilator. Five different specialists are working on his case. He is undergoing dialysis for 3-4 hours nearly every day for his kidney failure. They are treating GBS with an immunoglobulin treatment, which is done for a few days every couple of weeks. He is in constant pain throughout his entire body, and heavily sedated to make him more comfortable. He has been able to communicate with his family through minimal sign language and movement of his hands and head.
Doctors have confirmed Sean’s recovery will take a long time – months to years, even. GBS takes a very long time from which to recover and no one knows if he will have a reoccurrence of this condition in the future. In addition, we are unsure if his kidneys will function again. It is very possible he may have to continue dialysis indefinitely or require a transplant.
We are creating this fund to help Sean with the huge medical expenses from these concurrent conditions and to generate a source of income for him and his kids while he recovers. Since he works in a commission-based business supplemented by shifts in the service industry, he has no income throughout this experience. He will have an extensive stay in the hospital and likely longer at a rehabilitation facility for critical chronic care. We have no definite release date and expenses will only continue to accumulate.
For those of you who know Sean, you know that he is a very outgoing, charismatic, good-hearted guy. He has impacted many lives from growing up in Yakima, Washington, living in Seattle, DJing, working in the service industry, working at ACL and other music festivals, and helping people find and sell homes as a Keller Williams agent. His two children are his driving force. This is a very unfortunate event that has left Sean with no source of income for living expenses for quite some time, not to mention growing medical costs. So every donated amount counts! Sean and his entire family thank you for your support through this challenging time.
Follow Sean's progress at https://www.facebook.com/getwellseanmcnulty/
Sean has been spending 12 hours on the respirator’s CPAP setting before the machine is set back to its full setting. He has been able to go 10-15 minutes without any assistance from the machine. The doctors have also put him on a Passy-Muir trach and ventilator, which has a speaking valve. He has been able to say a few words using this.
Sean has been able to move his legs a little. He is making little progress every day.
No change in status with his kidney. They still are not producing very much fluid on their own and what they are passing is not very good quality. Dialysis continues 3-4 times a week.
Thank you to everyone for the continued donations and to all of Sean's friends who made it to his benefit earlier today. My whole family is so appreciative of how generous friends, family and strangers have been. Sean still has a long recovery road ahead of him, and your support means so very much in his continued fight.
GBS - Sean is getting some feeling back in his toes and lower legs. His nerves are beginning to heal, but he is experiencing serious pain in the process.
Kidneys - There has been no improvement with his kidneys. He continues to receive dialysis more than 3 times a week in 4-hour sessions. The sessions often agitate him and leave him feeling cold.
Respiration - The doctors continue to challenge Sean's breathing muscles. They test him every day to see how he does on his own. The longest has been 10 minutes. He is able to go half the day with the ventilator on CPAP setting to assist him with breathing. By early evening he needs a break and the machine is set back to full setting so he can rest.
He is still unable to talk and we use a notebook with an alphabet to spell out what he wants to communicate.
Sean's girlfriend, Jessica, and some of his friends have arranged a benefit for him. It will be held on Sunday, April 23, starting at 2 pm at Brazos Hall (204 E 4th St, Austin). Everyone is welcome.
This week started with a set back. Sean was not as responsive as he was the previous week and did not seem to be able to control some of his arm and head movements. Then he seemed to slip into a coma-like state. Fortunately, after removing him from all sedatives he had been receiving, he became more alert. Today he was able to open both eyes (he has not been able to do this for a while – only seeing out of a tiny slit from one eye), as well as track people and focus on them. He is also able to move his mouth, chin and stick out his tongue.
Dialysis continues and he has had 4-hour treatments every day for the last 3 days. He will have a break from it tomorrow.
The doctors will be performing a bronchoscopy soon to determine the best treatment for his pneumonia, which is getting worse.
More updates to come.
Doctors are also still striving perform dialysis on Tuesdays, Thursdays and Saturdays but frequency really depends on his blood counts.
Visitors are welcome!
Saw this on a friends facebook feed. I'm so sorry hear this. There is a book called Bed Number 10 written by a survivor of GBS. It's a hard story to read but it might give you some things to watch for for his comfort and it detailed how she learned to communicate with her eyes. Prayers to your family.
JESUS please lay your healing hands on Sean. JESUS I ask that you surround him and his family with peace, comfort and mercy. JESUS please heal Sean today from all ailments. Please bless him and his family with abundance that only you can provide. AMEN
If i could donate i would. I am so sorry this has happened. Im a surviver of gbs. Was diagnosed jan 16 2017. Prayers to you and your family.
He had a 3 day virus known to also cause GB.