Ethans Journey to walk.
Ethan is the wonderful 3 yr old child of Steve Scharman and Tina van Ekelenburg.
Ethan was born January 2nd 2013 at 25 weeks weighing 500g. He suffered bilateral grade 3 brain bleeds which in turn caused brain damage. At 18 months he was diagnosed with Spastic Diplegia Cerebral Palsy.... which means that the muscles in his lower extremities are very tight, in turn making it very difficult to walk.
Ethan is now 3 years old and is an amazingly happy go lucky child, His smile lights up the whole room and his giggle is extremely contagious. He gets around by crawling or by walking in a walker.
He was recently Approved for a surgery called SDR in St.Louis with a world renowned surgeon named Dr. T.S Parks ( http://www.stlouischildrens.org/our-services/center-cerebral-palsy-spasticity/about-selective-dorsal-rhizotomy-sdr )
The surgeon expects Ethan to be able to walk independently in all environments if he is to receive the surgery.
This is where you come in... Unfortunately the surgery is not covered by OHIP and as you can imagine is very costly. The price of the surgery is $47000.00 USD... this does not include the 5 week stay in St Louis or transportation. Also he will need 6 months of intensive Physical Therapy following the surgery to help him learn to use the correct muscles for walking, again not covered by OHIP.
So our goal is to raise $120,000.00 which will pay for the surgery, the 5 weeks in st.Louis, The transportation costs and the 6 months of PT after. If by chance there is any funds left over we would like to help other children with their journey to St.Louis.
We are planning the surgery for January 2017 in hopes that Ethan will be fully recovered by the time he starts school September 2017. My dream is to watch him walk into his first day of school!
This is a LIFE CHANGING opportunity for Ethan, This will allow him to participate in sports and to play with his peers where otherwise he would be confined to a walker. The surgery will also prevent Ethan from needing corrective surgery on his leg bones as it will eliminate the tightness in his muscles!
Anything you can do to help would be greatly appreciated!
LETS GET ETHAN WALKING!!!!
If you would like any more information regarding Ethan or the surgery please contact me Tina van Ekelenburg via e-mail at email@example.com
On January 10th 2017 ethan will begin the new chapter of this journey, Steve Scharman and I will do our best to keep everyone updated while we are away. It is expected that Ethan will be in hospital for 6 days and then we continue with intense therapy for 3 weeks, returning to canada Feb 5th.
Home therapy is already set up and ready to start once we are home.
So on this eve of Christmas I can say there is nothing I could ask for as I have already received more than I could of dreamed of thanks to each and every one of you, from a donation to a share to helping at a function , it all has made a huge difference!
From the very bottom of my heart thank you so very much!
Merry Christmas everyone!!!!
So so sorry it has been quite here lately, we have been super busy with work and fundraising. ..and as you can see it is paying off!!!
We are over 1/3 of the way to our goal!!!!
We have a busy few months coming up.
Right now when you shop at Terry's Independent in gravenhurst you will be asked if you would like to make a $2 donation to ethan's journey. This will be going on until Friday July 29th!!!
From Wednesday July 20th-22nd $1 from every fry or poutine sold from shelbys chip wagon in gravenhurst will go to ethan's journey and 100% of beverage sales will go to ethan!!!! Pop out for a yummy bite to eat!!!
This coming Saturday July 23rd we will be at McMaster's meats on hwy 118 E from 10am-3pm for a fundraising bbq silent auction and 50/50 draw with 100% of mo new going to ethan's journey.
Saturday night we will be having a special event at LIV MUSKOKA with Alex the champ master hypnotist! !!! It is going to be a great show! Doors open at 7 and Alex goes on around 830! Entry will be by min $10 donation to Ethan's journey.
We will also be doing a 50/50 draw and silent auction!!!!
I have some other bug news I can not wait to share.... but for now you will have to wait ;)
Please keep sharing ethan and his journey! Every share helps us reach more people! !!!
Thank you again for all your support! Ethan Steve and I can not thank you all enough!!!!!
Thank you all again!
Things have been super busy over here lately, and both steve and I are returning to work shortly so it will only get better!
Few things to update.
On Saturday April 16th Phenix and Journey along with classy cuts salon and spa held a bake sale to raise money for Ethan! It was a beautiful day and a huge success, they were able to raise $500.50 for Ethan!
So a huge thank you to those involved!
We have our event let's get ethan walking coming up this Saturday April 30th at LIV muskoka. ... this is shaping up to be an amazing night.
We have live entertainment provided by Jessica Ryan, The Swells, and Bottle Throttle . Also with a DJ and some good old fashion karaoke.
Entrance fee is by donation and there will be some raffles a silent auction and a 50/50 draw!!!! So please come join us for an awesome night is support of Ethan. The details are on Ethan's Facebook page "ethan's journey to walk "
We are still so blown away by the support from the community, we would not be as far as we are today without all your help so please keep sharing.
If you are interested in hosting an event for ethan or have any ideas for an event please contact Steve or I.
Remember keep sharing and keeping an eye on the Facebook page for upcoming events..... it's going to be an awesome summer!!!
Lots of love from Ethan Steve and I.
Remember SHARE SHARE SHARE!!!!!!