Help Support Landon's Cancer Fight
Here is his story from his parents:
To give a brief summary, a few weeks ago Landon had been complaining about back pain. We took him to his doctor and after an X-ray we believed that he was dealing with constipation. We were able to get him all cleaned out but he still continued to complain of the pain periodically.
He still continues to act like a normal toddler but slowly we and his daycare noticed some changes. He just didn't seem as much like himself and wasn't eating as well. We went back to his doctor and ran some lab work that all came back normal. We weren't sure what to do next.
On Monday March 7th we received a phone call from his daycare that he didn't feel well, didn't want to be touched, and was just crying. We rushed him back to his doctor who referred us to Sacred Heart Children's Hospital. We were admitted through the ER that night and spent the next four days going through blood tests, CT scans, MRIs, bone scans, needle aspirates, and ultrasounds until on Friday March 11th the doctor told us that there was a mass they found around his spine and it was cancerous... We have never felt such sickening devastation in our lives.
The diagnosis was confirmed March 15 and that it had spread to his bone marrow. Our beautiful, happy son has stage four metastatic neuroblastoma.
Our world has been turned upside down as we now face this battle but we are a strong family with amazing physical and spiritual support. We will BEAT this!
If you can find it in your heart to make a donation to them. If you are not able to make a donation please share this page and say a prayer for him and our family.
Thank you so much!!! We will beat this!!!
SCANS ARE CLEAR!!! Landon had his 3 month MIBG and CT scans this week and he continues to be N.E.D. Such amazing news and so proud of my boy. This year we’ll get to be home for Thanksgiving and Christmas and spend time with family. I can’t thank everyone enough for the love and support for almost the past two years. We love you Landon!!!
Our last inpatient stay!
Journal entry by Madison Hill — 1 hour ago
We checked in today for Landon's last antibody treatment and last inpatient stay!!
He will start his medication early tomorrow morning and our plan is to head home on Saturday.
We are so thankful for the wonderful nurses here at Sacred Heart Children's Hospital but I hope we never have to hang out again (unless you want to come to our house for dinner, then I'll totally hang out)!
One more round...
Journal entry by Madison Hill — 17 minutes ago
Sorry for the delay in updating but this last round really took it out on everyone. We are home and doing well now though.
The issue with this last round was IL2... it's such a nasty little thing. It really makes blood vessels "leaky" and Landon really had a lot of leakage, he was carrying about 5 extra ponds of fluids at one pint. It started to really mess with his comfort, electrolytes, and body functions. He made it though three of the four scheduled days before his doctor decided to stop it. We are hugely thankful to his nurses who know him so well and are so careful with him that they were able to lessen the side effects. As soon as the IL2 stoped he started to feel and do much better!
In addition to the IL2 issues, it is suspected that he has/had a possible line infection. One culture came back positive for an organism that is commonly found in the mouth. He was instantly started on antibiotics since he had a fever as well. My thought is that it may not be a true infection, Dylan said that Landon may have sneezed at the time labs were collect so who knows. The important part is the most recent cultures are negative and we are continuing IV antibiotics just to be on the safe side.
Landon has been doing well since we've been home and wanting to play outside since the weather is finally nice! We did make a stop at a store yesterday with him so he could meet a grizzly bear, I'm not to sure how he really felt about it.
It's kinda crazy to think that we only have one more inpatient treatment round. Our lives have revolved around this for what seems like so long. I'm not sure what it will be like to not be counting the days until the next hospital stay but I cannot wait!!
Journal entry by Madison Hill — 7 hours ago
Landon's scans have come back clear!!!!
It was a long weekend for our family though. We received the call Friday afternoon from Landon's doctor that the preliminary reading showed some suspicious sites on his liver. To confirm or rule out theses areas we needed to have an MRI done on Monday.
There were many tears of fear and anger shed this weekend as we could do nothing but wait. Landon enjoyed himself though as his Auntie Taylor was here and boy did he wear her out. Ignorance in youth has been wonderful and Landon spent the weekend not knowing anything was going on.
We made it through this weekend and spent the day at the hospital today as Landon had to be completely anesthetized for the MRI. After he woke up we headed upstairs to awaits the report.
To our surprise we were met getting off the elevator by Landon's doctor who was waiting with amazing news and hugs. The MRI was clear! The spots seen on the MIBG scan were an artifact and nothing to be concerned about! And his bone marrow samples were clear as well! We didn't know to cry, celebrate, or pass out. This was the best news we could have ever asked for, our prayers had been answered.
We thank you all for your continued support, thoughts, and prayers, they are working!!
We start round four this week which will be the same as round two. We expect the home IV medication to go smoothly but next week as inpatient seems to be a little harder on him. Please keep us in your prayers still.
Our 18 month-old daughter, Parker, was diagnosed with stage 4 as well in January of this year. It is truly the most devastating news parents can receive. She has a tumor located on her spine thats pushing on her lung lowering her intake of oxygen and it has also spread to her bone marrow. She wasn't acting the same either and cried in pain constantly and soon lost mobility from her waist down from the pressure the tumor was putting on her spinal cord. She is now on her 4th round of chemotherapy and we can't believe the change we have seen in her. She is happy! The pain that we seen in her eyes has become a glimmering hope for her future. It is hard to watch all the lab work and obstacles children have to face but there is light at the end of it. Keep strong! We will all beat this!! Prayers for your whole family!!!
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Been thinking about little Landon since day one. Sending lots of prayers to stay strong and fight this dragon....you can do it little man!
Dear Madison and family, I just noticed a few days ago I had a memory on my phone and it was a memory of a year ago when I shared the news about Landon and his battle with cancer. You all have been through so much and I just want you to know you still have a whole army of prayer warriors out here that haven't and will not give up until this battle is won. May this year bring an end to all hard things Landon and you have had to go through. Continued prayers and love. Jim and Marsha Greenslitt
So glad to hear Landon is doing well and has energy. So good to see his smiling face. You and your family continue to be in our prayers. We will be praying this new kind of radiation does the job it is intended to and does not damage any other tissue around his spine. God Bless you all, Jim and Marsha
Continuing to send prayers for Landon and your family!!