Love Radley-Fight AML!
It's been only 5 days and the battle has begun with day one of chemo today. Several cycles of chemo, isolation, and subsequent complete marrow transplant at MD Anderson in Houston are required. Months of hospitalization, treatment and post treatment, will be necessary. Their world has been turned upside down. The anguish and fear of a baby diagnosed with cancer is unimaginable. On top of the emotional distress, the financial burden of cancer is overwhelming. There are few financial aides for Radley's type of leukemia. We are doing all we can, but we need your help. Please, it could be your child, your nephew (as Radley is mine), your grandchild...who in an instant, is fighting for his life. Help us fight for Radley with whatever contribution you can make. It will be a long battle---but Radley is a fighter, and we won't stop fighting for him.
In this time of so much hatred and intolerance, it is refreshing and heartwarming to see that love, care and concern for your fellow human is still alive and well and living in a very special and wonderful new member of our Radley family...
His name is Soren. He is 21 and was Radley's marrow/stem cell donor who gave us some very precious extra time with our beautiful Radley. Soren is exactly who we hoped and prayed that he would be.
Thanks to the negotiations of Be the Match and their counterpart in Germany, Melissa and Daniel were able to meet up with Soren while on their trip through Europe. Melissa and Daniel are taking this trip in the hopes of gaining some healing while connecting and celebrating the life of their sweet baby boy with Radley's immediate and extended European family. They have been such a wonderful support to our Rad family throughout Radley's illness and beyond.
What a blessing it was that Melissa and Daniel happened to be close to the town where Soren lives and that he was willing and able to connect with them. Soren arrived with some beautiful flowers and of course a lot of tears were shed as they all shared stories.
We will be forever grateful to Soren for being Radley's "Blood Brother" and are also so thankful to his parents for raising such a generous and thoughtful young man.
Peace and Love
The Rad Family
MAY 7TH, 2016
Today would have been our beautiful Radley Moon's third birthday.
While Melissa and Daniel are picking up the pieces of their lives, we want to stop for just a moment to acknowledge the impact that this little guy made on all of our lives. Radley was a courageous warrior in his fight against AML-M7. In his all too brief time here, he helped to raise awareness of the need for people to become registered bone marrow donors through http://www.bethematch.org, he helped raise awareness of childhood cancer and how much more is still needed in the area of research for new and innovative drugs and treatment http://curesearch.org/Childhood-Cancer-Statistics , he brought people across the world together for a common purpose. He inspired a song written in his honor by his Aunt and sung by his cousin ( https://www.youtube.com/watch?v=pBTt5kd--1o&feature=youtu.be), he showed us how to be strong when we were weak, laugh when we wanted to cry, smile when our hearts were breaking. He did more in his almost three years than most of us do in a lifetime and has left us such a legacy of strength, hope and most of all LOVE.
We are never getting over this loss. This is the cost of sharing your life with someone worth missing.
At the end of our time here on this planet, we will either be reunited with our sweet Radley in some glorious mystery, or simply reach our last day of mourning his loss.
Either way we are beginning to rest in the simple truth:
The day we stop grieving—is the day we stop breathing.
Peace and Love
The Radley Family
APRIL 27, 2016
We picked up Radley's ashes today.
Just a small hair clipping and a tiny box of ashes are all we have left of his perfect little body (perfect except for the cancer, of course).
Then there's this thing: a central venous catheter I asked them to remove from Radley's body before cremation. This is how we gave him his chemotherapy, some of his medicines, and for over a year, most of his nutrition.
I have a love/hate relationship with this thing. Healthy kids don't have tubes stuck into their chests, so it was a constant reminder that we had a very sick child. The dressing covering the insertion site made normal baths impossible. No swimming allowed, either.
On the other hand, I can appreciate it as a marvel of medical technology. It saved him from countless needle sticks and painful peripheral IVs. It was in his body for eighteen months and caused zero infections, stood up to an active toddler, and performed almost flawlessly. Thank you Dr. Hickman of Seattle Children's Hospital for your improved design and methods. You have improved the quality of life for kids with serious illnesses.
Now, we're just waiting for Radley's rocketship urn to arrive! It's so cute y'all are going to love it!
Peace and Love
The RAD Family
APRIL 19TH. 2016
FROM: Melissa and Daniel
Our dear baby Radley Moon passed away this morning. He had been asleep for several days, except for a brief moment on Saturday when he opened his eyes and asked for his water cup. He went peacefully, his breathing and heartbeat just gradually slowing down and weakening. There was no pain or distress.
My mom and Melissa were with him, talking about a story I'd recently shared about holding Radley in my arms and dancing to Paul Simon in the kitchen of our old apartment. Melissa turned to play the song on her computer and in that moment Radley's eyes fluttered open. Mom ran to get me from the other room and we were all by his side as he took his last breath. Steve came over as quickly as he could and helped us survive this horrible day.
We are having his body cremated, and his ashes will go in a handmade wooden rocketship. We're working on plans for a memorial celebration on the night of the full moon in May. More details as plans shape up.
Thank you everyone for your love and support. We couldn't have made it this far without a ton of help. It's renewed my hope for humanity to see the outpouring of generosity towards my family.
Peace and Love
The Radley Family
Sharon, the link for the event isn't working. I'm trying to tweet out the info for my people in Texas.
Oh my! I will NEVER again post comments from my cell phone without my glasses on! First of all, I KNOW your name is Radley. And secondly, "toucan" was supposed to be "you can"! You are all welcome for the laugh!! :)
Ridley, you are a true Rock Star!! We are all praying and pulling for you, little man. You have taught us more than toucan possibly imagine. We are looking forward to meeting you. God bless you and your amazing, loving family.
Dressed up as spiderman today with my colleagues as other superheroes. We managed to raise £171 for Radley. Sending you all our love little man xxx
Radley, our love and prayers are with you. You ere a very strong and determined young man. We are all fighting with you!
This little boy is more than a rockstar in my eyes. You're in my heart & prayers Radman! ❤️
Thank you guys! It is so nice to come to this site and see all your sweet messages and generousity. We love ever last one of you. Radley sending lil man hugs your way! Xo
Thank you all!!! It has been a journey... We love you guys and keep sending that love our way. It's not over yet. Xo xo
Radley is getting out of the hospital!
Hope Radley is having a good day today. Praying for him to be healed. Contact me when you go to MD Anderson. Maybe when Radley has a break he would like to go to the beach....if they will let him.
Thank you everyone for all your help. We are at a loss for words. This is amazing. You are allowing us to focus on our family during this difficult time.