Medically needed renovations

$18,265 of $60k goal

Raised by 267 people in 21 months
Carla Grivna   TAMPA, FL
2417951_1414522251.1614_funddescription.

I am writing to tell you about a very special little girl and ask you to help her. Marysue  is now ten years old. At the time everything happened she was 9 years old.   Marysue loved going to school, running and playing with her friends, singing in the the children's choir and playing hand bells at church. 

 

On November 20, 2013, received her annual flu shot. Then, on the evening of November 25, 2013, she played freeze tag with her friends, ate her dinner and went to bed.   Marysue was fine when her father and I turned in around ten that night.  The next morning, she did not get up at six as she normally did. I went in to check on her.  When I called her, she did not respond.  I attempted to wake her and could not at first.  Finally, she opened her eyes but she did not speak to me which was not normal for her. 

 

I immediately called Stephen (her father).  We called 911; they sent an ambulance.  After they evaluated her, they told me to get in the ambulance. I had to ride in the front. I later found out that on the way to the hospital she had a seizure. Later, we were told that during the night she had a previous seizure with lack of oxygen. 

 

My wonderful daughter was later diagnosed with white brain matter disease also known as A.D.E.M.  

 

Marysue is now nonverbal, confined to a wheelchair/hospital bed, is primarily eating via a g-tube though we are now able to start feeding her stage two baby food by mouth. The only voluntary movement that she currently has is using her head and some gross motor in her legs and arms. 

 

We are trying to raise funds to build her an accessible bedroom and bathroom to improve her life.  Our house is very small and her hospital bed is in our living room because the doors in our house are too narrow to accommodate her bed or wheelchair.  When it is necessary to move her; say, to the bathroom, her daddy has to carry her.  Her daddy should not be lifting her as he has shoulder and neck problems which were scheduled for surgery right after that horrible night which, of course, had to be cancelled as he is only one who can lift her.  By lifting her has caused him many days and nights of pain.

 

We are also trying to raise funds to purchase a wheelchair  van.  If we had this, we feel we could possibly get one of our neighbors to put her in her wheelchair which we (her grandma or me) could  wheel the wheelchair  into the van thus providing me and her grandmother the ability to take her for her doctors and relieving her father having to carry her and fit her in her car seat (an infant car seat) which is getting more and more difficult to achieve as Marysue now weighs 70#.

 

A trust fund has been established at Chase Bank under the name of Marysue L. Grivna Trust Fund.

Trust was established at Chase Bank, N. A., W. Waters Avenue, Tampa, FL.  Account is managed by Messrs. Donald Barker and Scott Hessmeyer. 

 

Any assistance you can lend will be greatly appreciated.

2417951_fb_1414003669.4964_funddescripti

2417951_1415076167.3622_funddescription.

2417951_1417402162.5423_app.png

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Update 56
19 days ago
Marysue had a good holiday weekend. We need all the help we can get we are talking to contractors to go over the plans and get bids.
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Update 55
1 month ago
We have now gotten the plans for Marysue's room completed and are starting to contact contractors to get bids.
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Update 54
1 month ago
Marysue is doing well. I am glad to report that we have received the plans for Marysue's new room today from the archetech. We are along way from our goal any help that anyone can give will be much appreciated.
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Update 53
1 month ago
Marysue has has always been one of the most patriotic kids her grandfather who left us in 2011, was retired military her Uncle and great U were also in the military so she learned at a early age that it is a important thing to do to support our troops, so here is her outfit to show her support.
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 689 total shares
Martha Carr
17 months ago
2
2

I hope you have filed a vaccine compensation claim. We did when our daughter was injured by her Dpta vaccines when she was 8 months old and 20 months old. Her diagnosis was ADEM also. We won her claim uncontested. Our attorney's were great. We are in Birmingham but the attorneys we used are in Boston, Mass. The firm is Conway, Homer and Chin-Caplan. Feel free to go to my Facebook page and private message me for more info. Your daughter is going to need a lot and although money will not cure her, it will give you peace of mind and provide her with everything she needs. You have a 3 year window to do this from the time of the injury.

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Lemoyen Apostle
12 months ago
1
1

Carla, have you been to the website wonderbaby.org ? The person doing the site has a son with special needs. She got a grant to renovate a bathroom to make it accessible for her son. If you contact her I'm sure she will get back with you. Also, the book, The Myth of Autism, by Dr. Michael Goldberg is worth reading, if just for the pages on diagnostic testing that her doctor could do. Best wishes! -Lemoyen

+ Read More
Rachel Krewal
20 months ago
1
1

My heart truly goes out to you this is just unimaginable and horrific.

+ Read More
Janie Anderson
8 months ago

OUR GOV'T SHOULD B PAYING FOR THIS LITTLE GIRLS NEEDS

+ Read More
Rachel Moore
12 months ago

Offering prayers up for you and your family. May God bless your socks off!

+ Read More
Patricia Thomson
15 months ago

My Mom got the flu shot as recommended - 2 days later she had flu like symptoms - fever - lethargic - rushed to hospital....misdiagnosed....thought she had a stroke.....after 3 months we found she had Guillian-Barre Syndrome was eventually put in nursing home--we lost her.....from the UNDERSTUDIED SIDE EFFECTS OF THE FDA'S RECOMMENDED FLU SHOT.,,,,,

+ Read More
Barbara Zierden
18 months ago

If you would like some one who has also gone through this with her child at 18mos old after a flu and MMR shot on the same day,; go to Ashley Zieren Rice's Facebook page and also to the Caringbridge website and put in (rowan rice) name of child on Caringbridge. Also, Ashley has used a dozen therapies for Rowan..In Feb. they are going to Asheville, NC for ANET BANIEL training for movement intervention to reprogram the brain....Hope this helps. Bless you all (mom and Dad need comfort and solace too.)

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Carla Grivna
18 months ago

I do not have a chat site setup go to my Facebook Carla Grivna and you can see tbe Marysue Lucille Grivna trust page with more info

+ Read More
Irma Jane Taylor
18 months ago

i am so sorry to hear about your daughter. keep going. my daughter hasn't had her flu shot yet and she is at high risk. please give me some advice about it. she doesn't talk and she has seizuires's and she is a diabetic too. i don't know what to do. jane. does's your daughter have a chat website.

+ Read More
Carla Grivna
19 months ago

Please if you will share your story with me

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Rachel Moore
19 months ago

I am so sorry - I know very well what you are going through!

+ Read More
Gaylene DuPont
20 months ago

Sweet Marysue..Here is hoping that Santa and a lot of his helpers (the readers) brings you and your parents a Christmas to remember.

+ Read More
Patricia Stacy
20 months ago

December fundraiser coming soon. Follow along and help raise awareness at https://www.facebook.com/FundMarysue.

+ Read More
Kathy Evans
20 months ago

I am so sorry!! I agree with Han Rekers about natural therapies. You must begin to take health into your own hands. Any doctor who administers a flu shot is not to be trusted. We create health by the choices we make, not with vaccines! Feed her only alive food that can begin to heal, fresh juices...lots of them. Food heals. Medicine destroys the body. Contact Dr Robert Morse or Burton Goldberg or a whole huge list of other holistic, alternative doctors. The allopathic doctors are making so much money on the things they do which do not create health. They know nothing about how to heal. They don't even acknowledge that food heals! Start researching ONLY holistic therapies and do not believe a word these mainstream docs say. Even your husbands body could totally heal and regenerate with proper nutrition and cutting out the empty food, acidic food. Take your health into your own hands. Read, research and know that traditional doctors never studied nutrition and how to HEAL. They only know drugs, pharmaceuticals, and surgery. Thats not healing! Give the body proper food and environment and it heals itself. The body heals itself if you know what to give it. EVEN scoliosis can heal on a whole foods, high vibration diet. The life force in the food heals or kills. Dead rotting flesh from animals has no life in it. Its dead. The energy from the sun that alive food has is what heals. Please contact Dr Morse to get educated. Get your daughter off meds and off doctors who kill asap. I will be praying for all of this. For your families health and well-being.

+ Read More
Claire Friedman
20 months ago

Hi Carla, There is a website for Florida that could help you with being compensated for vaccine injury. The website is know-vaccines.org. I have put the following contact below in case you don't have time to check out the website. You may already have this information. I am so sorry you are going through this. Please contact the people at know-vaccine.org for support. Blessings to you and your family. The National Childhood Vaccine Injury Act (NCVIA) requires health care providers to report: Any event listed by the manufacturer as a contraindication to further doses of the vaccine. Any event in the Reportable Events Table that occurs within the specified time period after vaccination. The National Vaccine Injury Compensation Program has paid out over 1.2 billion dollars in damages to families of vaccine-injured or vaccine deaths since 1986. Call to obtain an information packet detailing filing a claim, criteria for eligibility, and required documentation. For further information: National Vaccine Injury Compensation Program Parklawn Building, Room 8A-35 5600 Fishers Lane Rockville, Maryland 20857 1-800-338-2382

+ Read More
Rachel Krewal
20 months ago

Otto Borden her parents can apply for compensation @www.hrsa.gov/vaccinecompensation there is a time limit i understand . Reply · Like · Follow Post · November 6 at 7:29am

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Carla Grivna
20 months ago

Monica how do I reach you

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Monica Beason
20 months ago

Marysue do not give up!!! I had the same diagnosis following a Flu shot in 2012. Same symptoms and everything. I've been all the way to Mayo's in MN. I was a new nurse when this all happened. I would love to talk with your parents about how I am now and where I turned. I cried reading this page. It brought back all of the uncertainty and fear. Plz reach out to me. Thank you.

+ Read More
Kimberly Williams Aviles
20 months ago

I am so sorry this happened to your daughter. As a parent we want the best for our child. God.bless

+ Read More
Viva Chang
20 months ago

Hello Carla, This makes me so sad. I hope that this serves as a wake-up-call for those who still continue to trust in vaccines. I am praying for your daughter and sending you all lots of love.

+ Read More

$18,265 of $60k goal

Raised by 267 people in 21 months
Created October 22, 2014
$20
Anonymous
13 days ago
$10
Anonymous
14 days ago
JQ
$30
John Andrew Quinn
15 days ago

What an extremely difficult event for a parent to have to experience, and how much more difficult for your daughter. I understand what a struggle it is, but keep her mind and body as active as possible. The body's ability to heal and recover is extraordinary, and much more so when there is love, positive energy and optimism. She will become much much better. Blessings and peace.

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JK
$25
Janice Kalien
23 days ago

My thoughts and prayers are with you. My son had a severe reaction to his flu shot this winter and still struggles with joint pain. I wish I could give more.

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$20
Anonymous
2 months ago
AM
$30
Anonymous M
2 months ago
LS
$20
Lubna Sengul
2 months ago

I sincerely hope you manage to upgrade the room needed for your daughters medical use

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DG
$50
Donna Gu
2 months ago
$50
Betty Ford
2 months ago
DH
$10
David Hollowell
3 months ago
Martha Carr
17 months ago
2
2

I hope you have filed a vaccine compensation claim. We did when our daughter was injured by her Dpta vaccines when she was 8 months old and 20 months old. Her diagnosis was ADEM also. We won her claim uncontested. Our attorney's were great. We are in Birmingham but the attorneys we used are in Boston, Mass. The firm is Conway, Homer and Chin-Caplan. Feel free to go to my Facebook page and private message me for more info. Your daughter is going to need a lot and although money will not cure her, it will give you peace of mind and provide her with everything she needs. You have a 3 year window to do this from the time of the injury.

+ Read More
Lemoyen Apostle
12 months ago
1
1

Carla, have you been to the website wonderbaby.org ? The person doing the site has a son with special needs. She got a grant to renovate a bathroom to make it accessible for her son. If you contact her I'm sure she will get back with you. Also, the book, The Myth of Autism, by Dr. Michael Goldberg is worth reading, if just for the pages on diagnostic testing that her doctor could do. Best wishes! -Lemoyen

+ Read More
Rachel Krewal
20 months ago
1
1

My heart truly goes out to you this is just unimaginable and horrific.

+ Read More
Janie Anderson
8 months ago

OUR GOV'T SHOULD B PAYING FOR THIS LITTLE GIRLS NEEDS

+ Read More
Rachel Moore
12 months ago

Offering prayers up for you and your family. May God bless your socks off!

+ Read More
Patricia Thomson
15 months ago

My Mom got the flu shot as recommended - 2 days later she had flu like symptoms - fever - lethargic - rushed to hospital....misdiagnosed....thought she had a stroke.....after 3 months we found she had Guillian-Barre Syndrome was eventually put in nursing home--we lost her.....from the UNDERSTUDIED SIDE EFFECTS OF THE FDA'S RECOMMENDED FLU SHOT.,,,,,

+ Read More
Barbara Zierden
18 months ago

If you would like some one who has also gone through this with her child at 18mos old after a flu and MMR shot on the same day,; go to Ashley Zieren Rice's Facebook page and also to the Caringbridge website and put in (rowan rice) name of child on Caringbridge. Also, Ashley has used a dozen therapies for Rowan..In Feb. they are going to Asheville, NC for ANET BANIEL training for movement intervention to reprogram the brain....Hope this helps. Bless you all (mom and Dad need comfort and solace too.)

+ Read More
Carla Grivna
18 months ago

I do not have a chat site setup go to my Facebook Carla Grivna and you can see tbe Marysue Lucille Grivna trust page with more info

+ Read More
Irma Jane Taylor
18 months ago

i am so sorry to hear about your daughter. keep going. my daughter hasn't had her flu shot yet and she is at high risk. please give me some advice about it. she doesn't talk and she has seizuires's and she is a diabetic too. i don't know what to do. jane. does's your daughter have a chat website.

+ Read More
Carla Grivna
19 months ago

Please if you will share your story with me

+ Read More
Rachel Moore
19 months ago

I am so sorry - I know very well what you are going through!

+ Read More
Gaylene DuPont
20 months ago

Sweet Marysue..Here is hoping that Santa and a lot of his helpers (the readers) brings you and your parents a Christmas to remember.

+ Read More
Patricia Stacy
20 months ago

December fundraiser coming soon. Follow along and help raise awareness at https://www.facebook.com/FundMarysue.

+ Read More
Kathy Evans
20 months ago

I am so sorry!! I agree with Han Rekers about natural therapies. You must begin to take health into your own hands. Any doctor who administers a flu shot is not to be trusted. We create health by the choices we make, not with vaccines! Feed her only alive food that can begin to heal, fresh juices...lots of them. Food heals. Medicine destroys the body. Contact Dr Robert Morse or Burton Goldberg or a whole huge list of other holistic, alternative doctors. The allopathic doctors are making so much money on the things they do which do not create health. They know nothing about how to heal. They don't even acknowledge that food heals! Start researching ONLY holistic therapies and do not believe a word these mainstream docs say. Even your husbands body could totally heal and regenerate with proper nutrition and cutting out the empty food, acidic food. Take your health into your own hands. Read, research and know that traditional doctors never studied nutrition and how to HEAL. They only know drugs, pharmaceuticals, and surgery. Thats not healing! Give the body proper food and environment and it heals itself. The body heals itself if you know what to give it. EVEN scoliosis can heal on a whole foods, high vibration diet. The life force in the food heals or kills. Dead rotting flesh from animals has no life in it. Its dead. The energy from the sun that alive food has is what heals. Please contact Dr Morse to get educated. Get your daughter off meds and off doctors who kill asap. I will be praying for all of this. For your families health and well-being.

+ Read More
Claire Friedman
20 months ago

Hi Carla, There is a website for Florida that could help you with being compensated for vaccine injury. The website is know-vaccines.org. I have put the following contact below in case you don't have time to check out the website. You may already have this information. I am so sorry you are going through this. Please contact the people at know-vaccine.org for support. Blessings to you and your family. The National Childhood Vaccine Injury Act (NCVIA) requires health care providers to report: Any event listed by the manufacturer as a contraindication to further doses of the vaccine. Any event in the Reportable Events Table that occurs within the specified time period after vaccination. The National Vaccine Injury Compensation Program has paid out over 1.2 billion dollars in damages to families of vaccine-injured or vaccine deaths since 1986. Call to obtain an information packet detailing filing a claim, criteria for eligibility, and required documentation. For further information: National Vaccine Injury Compensation Program Parklawn Building, Room 8A-35 5600 Fishers Lane Rockville, Maryland 20857 1-800-338-2382

+ Read More
Rachel Krewal
20 months ago

Otto Borden her parents can apply for compensation @www.hrsa.gov/vaccinecompensation there is a time limit i understand . Reply · Like · Follow Post · November 6 at 7:29am

+ Read More
Carla Grivna
20 months ago

Monica how do I reach you

+ Read More
Monica Beason
20 months ago

Marysue do not give up!!! I had the same diagnosis following a Flu shot in 2012. Same symptoms and everything. I've been all the way to Mayo's in MN. I was a new nurse when this all happened. I would love to talk with your parents about how I am now and where I turned. I cried reading this page. It brought back all of the uncertainty and fear. Plz reach out to me. Thank you.

+ Read More
Kimberly Williams Aviles
20 months ago

I am so sorry this happened to your daughter. As a parent we want the best for our child. God.bless

+ Read More
Viva Chang
20 months ago

Hello Carla, This makes me so sad. I hope that this serves as a wake-up-call for those who still continue to trust in vaccines. I am praying for your daughter and sending you all lots of love.

+ Read More
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