Medically needed renovations
I am writing to tell you about a very special little girl and ask you to help her. Marysue is now ten years old. At the time everything happened she was 9 years old. Marysue loved going to school, running and playing with her friends, singing in the the children's choir and playing hand bells at church.
On November 20, 2013, received her annual flu shot. Then, on the evening of November 25, 2013, she played freeze tag with her friends, ate her dinner and went to bed. Marysue was fine when her father and I turned in around ten that night. The next morning, she did not get up at six as she normally did. I went in to check on her. When I called her, she did not respond. I attempted to wake her and could not at first. Finally, she opened her eyes but she did not speak to me which was not normal for her.
I immediately called Stephen (her father). We called 911; they sent an ambulance. After they evaluated her, they told me to get in the ambulance. I had to ride in the front. I later found out that on the way to the hospital she had a seizure. Later, we were told that during the night she had a previous seizure with lack of oxygen.
My wonderful daughter was later diagnosed with white brain matter disease also known as A.D.E.M.
Marysue is now nonverbal, confined to a wheelchair/hospital bed, is primarily eating via a g-tube though we are now able to start feeding her stage two baby food by mouth. The only voluntary movement that she currently has is using her head and some gross motor in her legs and arms.
We are trying to raise funds to build her an accessible bedroom and bathroom to improve her life. Our house is very small and her hospital bed is in our living room because the doors in our house are too narrow to accommodate her bed or wheelchair. When it is necessary to move her; say, to the bathroom, her daddy has to carry her. Her daddy should not be lifting her as he has shoulder and neck problems which were scheduled for surgery right after that horrible night which, of course, had to be cancelled as he is only one who can lift her. By lifting her has caused him many days and nights of pain.
We are also trying to raise funds to purchase a wheelchair van. If we had this, we feel we could possibly get one of our neighbors to put her in her wheelchair which we (her grandma or me) could wheel the wheelchair into the van thus providing me and her grandmother the ability to take her for her doctors and relieving her father having to carry her and fit her in her car seat (an infant car seat) which is getting more and more difficult to achieve as Marysue now weighs 70#.
A trust fund has been established at Chase Bank under the name of Marysue L. Grivna Trust Fund.
Trust was established at Chase Bank, N. A., W. Waters Avenue, Tampa, FL. Account is managed by Messrs. Donald Barker and Scott Hessmeyer.
Any assistance you can lend will be greatly appreciated.
I hope you have filed a vaccine compensation claim. We did when our daughter was injured by her Dpta vaccines when she was 8 months old and 20 months old. Her diagnosis was ADEM also. We won her claim uncontested. Our attorney's were great. We are in Birmingham but the attorneys we used are in Boston, Mass. The firm is Conway, Homer and Chin-Caplan. Feel free to go to my Facebook page and private message me for more info. Your daughter is going to need a lot and although money will not cure her, it will give you peace of mind and provide her with everything she needs. You have a 3 year window to do this from the time of the injury.
Carla, have you been to the website wonderbaby.org ? The person doing the site has a son with special needs. She got a grant to renovate a bathroom to make it accessible for her son. If you contact her I'm sure she will get back with you. Also, the book, The Myth of Autism, by Dr. Michael Goldberg is worth reading, if just for the pages on diagnostic testing that her doctor could do. Best wishes! -Lemoyen
Marysue do not give up!!! I had the same diagnosis following a Flu shot in 2012. Same symptoms and everything. I've been all the way to Mayo's in MN. I was a new nurse when this all happened. I would love to talk with your parents about how I am now and where I turned. I cried reading this page. It brought back all of the uncertainty and fear. Plz reach out to me. Thank you.
OUR GOV'T SHOULD B PAYING FOR THIS LITTLE GIRLS NEEDS
My Mom got the flu shot as recommended - 2 days later she had flu like symptoms - fever - lethargic - rushed to hospital....misdiagnosed....thought she had a stroke.....after 3 months we found she had Guillian-Barre Syndrome was eventually put in nursing home--we lost her.....from the UNDERSTUDIED SIDE EFFECTS OF THE FDA'S RECOMMENDED FLU SHOT.,,,,,
If you would like some one who has also gone through this with her child at 18mos old after a flu and MMR shot on the same day,; go to Ashley Zieren Rice's Facebook page and also to the Caringbridge website and put in (rowan rice) name of child on Caringbridge. Also, Ashley has used a dozen therapies for Rowan..In Feb. they are going to Asheville, NC for ANET BANIEL training for movement intervention to reprogram the brain....Hope this helps. Bless you all (mom and Dad need comfort and solace too.)
I do not have a chat site setup go to my Facebook Carla Grivna and you can see tbe Marysue Lucille Grivna trust page with more info
i am so sorry to hear about your daughter. keep going. my daughter hasn't had her flu shot yet and she is at high risk. please give me some advice about it. she doesn't talk and she has seizuires's and she is a diabetic too. i don't know what to do. jane. does's your daughter have a chat website.
Please if you will share your story with me
I am so sorry - I know very well what you are going through!
Sweet Marysue..Here is hoping that Santa and a lot of his helpers (the readers) brings you and your parents a Christmas to remember.
December fundraiser coming soon. Follow along and help raise awareness at https://www.facebook.com/FundMarysue.
I am so sorry!! I agree with Han Rekers about natural therapies. You must begin to take health into your own hands. Any doctor who administers a flu shot is not to be trusted. We create health by the choices we make, not with vaccines! Feed her only alive food that can begin to heal, fresh juices...lots of them. Food heals. Medicine destroys the body. Contact Dr Robert Morse or Burton Goldberg or a whole huge list of other holistic, alternative doctors. The allopathic doctors are making so much money on the things they do which do not create health. They know nothing about how to heal. They don't even acknowledge that food heals! Start researching ONLY holistic therapies and do not believe a word these mainstream docs say. Even your husbands body could totally heal and regenerate with proper nutrition and cutting out the empty food, acidic food. Take your health into your own hands. Read, research and know that traditional doctors never studied nutrition and how to HEAL. They only know drugs, pharmaceuticals, and surgery. Thats not healing! Give the body proper food and environment and it heals itself. The body heals itself if you know what to give it. EVEN scoliosis can heal on a whole foods, high vibration diet. The life force in the food heals or kills. Dead rotting flesh from animals has no life in it. Its dead. The energy from the sun that alive food has is what heals. Please contact Dr Morse to get educated. Get your daughter off meds and off doctors who kill asap. I will be praying for all of this. For your families health and well-being.
Hi Carla, There is a website for Florida that could help you with being compensated for vaccine injury. The website is know-vaccines.org. I have put the following contact below in case you don't have time to check out the website. You may already have this information. I am so sorry you are going through this. Please contact the people at know-vaccine.org for support. Blessings to you and your family. The National Childhood Vaccine Injury Act (NCVIA) requires health care providers to report: Any event listed by the manufacturer as a contraindication to further doses of the vaccine. Any event in the Reportable Events Table that occurs within the specified time period after vaccination. The National Vaccine Injury Compensation Program has paid out over 1.2 billion dollars in damages to families of vaccine-injured or vaccine deaths since 1986. Call to obtain an information packet detailing filing a claim, criteria for eligibility, and required documentation. For further information: National Vaccine Injury Compensation Program Parklawn Building, Room 8A-35 5600 Fishers Lane Rockville, Maryland 20857 1-800-338-2382
Otto Borden her parents can apply for compensation @www.hrsa.gov/vaccinecompensation there is a time limit i understand . Reply · Like · Follow Post · November 6 at 7:29am
Monica how do I reach you
I am so sorry this happened to your daughter. As a parent we want the best for our child. God.bless