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Kodis headstone and pmd foundation

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So our little man Kodi who had just turned 13 months passed away on the 31st of December 2017 with suffering from a seizure he couldn't come out of.
kodi had a very rare condition called PMD which severely effected his nervous system and brain.
kodi meant the world to myself (Sara) my partner Jordan and his brother  Kobi.. He has made such an impact on our life's and he is missed terribly . He was our world our life our everything but for the year he was with us he went through a lot of pain and frustration with medication just not working for him.. Kodi needed around the clock medication and required 24 hour care and monitoring due to his condition and seizures he was having.
Although it pains us to say he now rests in peace and is no longer suffering. 
The funds will be used to help us pay for a memorial headstone and the rest of the funds will be donated to the pmd foundation to help other children with this life limiting condition.
If unable to donate please can we ask you to share this post instead 

Kind regards 
Sara Jordan and kobi

Organizer

Jordan N Sara
Organizer

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