Hope For Isaac

This is Isaac, he is 4 years old and weighs just 9kg. Isaac has Allen Hurnden Dudley Syndrome, a condition that is  ultra rare and it is killing him but does not define who he is. Isaac is the sweetest happiest little boy who never cries and who lights up my life. He can have 50 seizures a day, respiratory arrests when I have to bag him to keep him alive. Isaac is the most complex case Southampton children’s hospital have dealt with. They have run out of ideas to help run out of drugs to try. 
He came to me at aged 8 months I was a foster carer, shortly  after followed by a letter saying that Isaac was considered un adoptable due to his complex needs. That letter made me cry for days.
In 2016 I became Isaacs legal guardian 
making me responsible for the rest of his life. Isaac is extremely poorly he has been given a year to live. I don’t want a miniute a day a year I want a lifetime with this precious child. 
Isaac would greatly benefit from a large porch type enclosure on the rear of my house. To enable me to put him in his wheelchair in the dry out the wind and indeed the sun. Isaac is registered blind but can burn very easily because of the medication he takes. I have given up my own life to care for this very special child and do it gladly. I’m alone with Isaac and sometimes it’s hard a very lonely place  but I would not change this for the world. Will you share our go fund or donate even £1 helps, help me keep him safe and comfortable whilst he is still here. I have planned his funeral bought his spot please help me plan his life.

Thank you