Medical Fundraiser for Rainan

$16,451 of $15,000 goal

Raised by 171 people in 29 months
RS
Rachel Stanton
on behalf of Alex Patrick
 TWISP, WA
Rainan is the happy, bright, and beautiful 16 month old son of Chelsea DeBaun and Alex Patrick. While his short life has been filled with joyful adventures living a sustainable, off the grid life in rural Washington, he was recently diagnosed with Spinal Muscular Atrophy (SMA) after months of hospital visits and tests. SMA is a genetic disease that affects the motor nerve cells in the spinal cord. The illness will likely impact Rainan's ability to perform basic functions like walking, running, and breathing. Children with SMA are likely to have a shorter life expectancy and often spend a lot of time in the hospital and with other medical professionals in an effort to help them obtain the best quality of life.

While Rainan does have health insurance, there is sure to be a huge financial strain on the family as they begin this long journey. Any funds raised will go toward medical expenses and devices that are not covered by insurance, as well as additional expenses incurred from not being able to work or needing to hire out help on their farm while they frequently make the 7 hour journey to Seattle Children's Hospital. Please share this widely and help us reduce the financial burden for Alex and Chelsea.
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Wow!! We are so grateful for everyone who has contributed to or shared this campaign and for all of the prayers and well wishes that have been heading their way. THANK YOU, THANK YOU!

Rainan is working with doctors at Seattle Children's Hospital and will soon be starting Spinraza, which is the first ever medication to be approved for SMA and is only very recently available. The medication has been shown to be very promising. In addition to this they are looking into complementary therapies to help Rainan along. The funds raised so far will be used for the long trips to a from Seattle, as well as to pay for anything that their insurance will not cover and other unforeseen expenses. Please continue to share this campaign and keep them all in your hearts and prayers.
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$16,451 of $15,000 goal

Raised by 171 people in 29 months
Created February 23, 2017
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AP
$20
Allison Peck
22 months ago

So much love to you

AZ
$100
Anna & Zdenek Zumr
24 months ago
1
1

All the best to Rainan. Thanks for hosting us and Josh.

TJ
$100
Tiana Jones
25 months ago
1
1

Sending love to you all

MT
$25
Martha Taylor
26 months ago
1
1
FE
$25
Francesca Elms
27 months ago
1
1

Best of luck with everything!

AW
$150
Anne and Karl Wenner
27 months ago
1
1
NW
$100
Nick Wenner
27 months ago
1
1
SL
$50
sadaea lax
27 months ago
2
2

Blessings and prayers and loving support

MR
$36
Michael Reitman
27 months ago
2
2

Thoughts, prayers & good vibrations headed your way.

LL
$50
Leesa Linck
27 months ago
2
2
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