Finley's Medical Fund

£160,439 of £175,000 goal

Raised by 1,349 people in 28 months

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Finley was born 14.10.2011 and weighed 6lb 10oz when he was born and was totally gorgeous, we all fell instantly in love with him. Finley developed and grew just as any normal toddler would until April 2013 when out of the blue Finley had a seizure, at first doctors thought it was a febrile convulsion and we were told it was really common in small children. This was until Finley had another seizure, a full Tonic / Clonic seizure while we were playing at the local park and he was rushed to hospital.

James Cook University Hospital in Middlesbrough then decided to give him an MRI scan and this is when our lives fell apart, they discovered Finley had a brain tumour, and his care was then transferred to the Royal Victoria Infirmary in Newcastle and was placed under the care of Dr Juliet Hale.

Weekly visits, MRI Scans and blood tests were all taken at the RVI and then in September 2014 Finley underwent a biopsy, which took six weeks waiting for the results, but these proved inconclusive. Finleys results were then shared with all the leading experts across the UK and the USA to try and find a diagnosis. Finley has so far tried 3 of the available drugs, but none of them have worked and his tumour has so far been resistant to all medication.

Finley's care was then transferred to Great Ormond Street Hospital in London, all his test results have been discussed in numerous meetings and again sent to the USA for help.

Finally the doctors gave us a diagnosis of a Hypothalamic Harmatoma , an extremely rare brain tumour. This tumour causes Finley to have,

Endocrine Problems
Severe Epilepsy
Gelastic Seizures
Darcrystic Seizures
Tonic / Clonic Seizures
Developmental Delays
Rage Attacks
Learning Difficulties

We have visited Great Ormond Street dozens of times now with 3/4 days stay to complete telemetry testing, X-Rays, blood testing, endocrine testing and many other tests.

Finley has a daily battle with seizures, he also has a daily battle with emotional problems, rage attacks and learning difficulties. The only hope for Finley to try and lead a normal life is to undergo Laser Ablation Surgerywhich is only performed in the USA.

Finleys tumour can never be removed as it is too deep in the hypothalamus region of the brain and is totally entwined with brain matter, therefore Laser Ablation is the only hope as it attack the tumour with a laser to try and stop the blood flow to the tumour and, possibly shrink it also.

Finleys tumour is 2.5cm and is large for a child of his age. The seizures the tumour causes leave Finley totally exhausted and he is having over 10 a day on some occasions.

Finley is one of three and has two older sisters, Georgia, who was born 5 weeks early and has Pulmonary Atresia, which was diagnosed after birth and she has had four open heart bypass surgeries to date, with possibly more planned for the future. Brooke who sadly passed away aged 8 weeks old to the same conditionGeorgia has, had surgery at The Freeman Hospital in Newcastle and was born seven weeks early, only spending 6 days at home in her short life,

When i found out i was pregnant , I was told i had more chance of winning the lottery than having another child with a heart defect.

Finley's ultrasound scans were all perfect throughout my pregnancy and the doctors called him my miracle baby - He still is my little miracle and he is perfect!

Money that we are hoping to raise will  help us get Finley to either Texas or Arizona in the USA, these two centres can both do the procedure know as Laser Ablation, but both have extremely high costs as this procedure is state of the art brain surgery but life changing for Finley!
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❤️ As some of you will already know Finley has had a fantastic 9 months since having the laser ablation surgery in February of this year and we can’t thank all his supporters enough for making this happen, however we need your help again. We recently discovered that Finley needs to travel back to the Texas Children’s Hospital in the new year for more treatment. This treatment will cost around £15k so can you help??!! Can you hold a fundraiser for Finley, complete a sponsored challenge for Finley or can you suggest anyone who may be able to help?? I'm open to all suggestions, please get in touch and if you can help by donating than that would be amazing too! #getfinleytoamerica ❤️
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Finley's Medical Fund has reached 50% of its goal. Thank you to everyone who has donated and shared Finley's story!
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A huge big thank you to each and everyone of you who follows this page, our page Let's get Finley to America on Facebook and has donated to help Finley so far, we've very nearly hit the halfway point and couldn't have done it all without your help, thank you all so much! #getfinleytoamerica
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❤️A massive big thank you to everybody who has so far donated to Finley's Campaign we have been totally overwhelmed by everybodys generosity, kindness and support.

We have now passed the quarter mark in just 3 months which is a absolutely fantastic, the amount of goodwill messages Finley has received from total strangers is just so amazing and we couldn't be where we are without your help!

We really appreciate every single penny that's donated and with your help we will change Finleys life, so thank you from the bottom of our hearts Kara, Stephen, Georgia and Finley xx❤️
Despite everything Finley is going through he completed the middlesbrough 3k run dressed as Captain America, Finley had a seizure halfway around the course but Finley is a real life super hero and he dug in and completed the course, he is amazing and we a
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Read a Previous Update
Jack Duffield
24 months ago
5
5

You should send his story to the BBC for Children in Need

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James Rutherford
23 months ago
1
1

We wish you and your son all the luck and best wishes possible. My wife has had this condition since birth and despite an operation 20 years ago she is getting worse. She is hoping for an operation also, using Gamma Knife surgery, if not that she will undergo conventional surgery to try to help her. We dearly hope Finley gets the treatment he needs as we know how much this affects his quality of life from a first hand point of view. xxx

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Lynn Park
23 months ago
1
1

Good luck x

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Esme Jay
23 months ago
1
1

This guy is clearly amazing - a fighter, a warrior and, obviously, a superhero! If I could afford to donate (unfortunately I am penniless) I would give as much money as I could to help heal your brave young man. Good luck, Finley, and best wishes to Kara, Stephen and Georgia, too. :) Esme xxx

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Neil Parsons
25 months ago
1
1

Get well soon little fella

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Lynn Park
25 months ago
1
1

Good luck hope you reach your target to get that lovely boy to America xx

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Mark Crutchley
27 months ago
1
1

I hope you reach your target! Good luck!

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Lisa Trowsdale
27 months ago
1
1

Good luck I hope he receives the treatment soon xx

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Jennifer Gibbs
27 months ago
1
1

Good luck! Bless his soul, I hope he receives the treatment he needs soon x

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Jennifer O'Callaghan
28 months ago
1
1

Tipped £4000! Great news :-) xx

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£160,439 of £175,000 goal

Raised by 1,349 people in 28 months
Created May 17, 2016
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Jack Duffield
24 months ago
5
5

You should send his story to the BBC for Children in Need

+ Read More
James Rutherford
23 months ago
1
1

We wish you and your son all the luck and best wishes possible. My wife has had this condition since birth and despite an operation 20 years ago she is getting worse. She is hoping for an operation also, using Gamma Knife surgery, if not that she will undergo conventional surgery to try to help her. We dearly hope Finley gets the treatment he needs as we know how much this affects his quality of life from a first hand point of view. xxx

+ Read More
Lynn Park
23 months ago
1
1

Good luck x

+ Read More
Esme Jay
23 months ago
1
1

This guy is clearly amazing - a fighter, a warrior and, obviously, a superhero! If I could afford to donate (unfortunately I am penniless) I would give as much money as I could to help heal your brave young man. Good luck, Finley, and best wishes to Kara, Stephen and Georgia, too. :) Esme xxx

+ Read More
Neil Parsons
25 months ago
1
1

Get well soon little fella

+ Read More
Lynn Park
25 months ago
1
1

Good luck hope you reach your target to get that lovely boy to America xx

+ Read More
Mark Crutchley
27 months ago
1
1

I hope you reach your target! Good luck!

+ Read More
Lisa Trowsdale
27 months ago
1
1

Good luck I hope he receives the treatment soon xx

+ Read More
Jennifer Gibbs
27 months ago
1
1

Good luck! Bless his soul, I hope he receives the treatment he needs soon x

+ Read More
Jennifer O'Callaghan
28 months ago
1
1

Tipped £4000! Great news :-) xx

+ Read More
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