Friends of Finlay
Their youngest son Finlay, born in July 2013 has recently been diagnosed with Stage 4 Hepatoblastoma (meaning the tumour in his liver has spread to his lungs). Hepatoblastoma is a rare childhood cancer of the liver in children under 3, more commonly seen in boys. More info here
Finlay and the Higgs Family; Darren, Katey, Milla and Harrison, will face a long road ahead on a scary unknown path in beating this.
On top of this already overwhelming diagnosis, all three of the Higgs children have a rare neurological disorder called Paroxysmal Tonic Upgaze (PTU) : More info here which requires periodic monitoring and testing.
And if that wasn't enough for this young family of 5, Harrison is also living with Childhood Apraxia of Speech (CAS) : More info here . Harrison requires a team of specialists to help him with his disorder.
So what can we do to help these beautiful people? We all want to help take this pain away and unfortunately we don't yet have a cure for this awful disease.
My name is Dee and I am a good friend of the Higgs. Katey and I met when we were both pregnant with our first bubs and we have continued a strong relationship since with our children growing up together as part of the same mum's group. Like everyone, I was devastated by the news that Finlay was sick.
Katey and Darren are so touched by everyone who has reached out to offer their support and with this in mind, I have received their blessing to start a fund in Finlay's name. The fund will be a way that people can offer something to the Higgs' in their time of need, just as we know Katey and Darren would do if God forbid their own friends were in an unspeakable situation like they find themselves in.
The financial implications of having a child with a long-term illness can be crippling, and it is my hope that this fund will help Katey and Darren so that finances are one thing they don't have to worry about.
Thank you, Dee
Follow Finlay's journey on his facebook page www.facebook.com/friendsoffinlay
Thank you to everyone who has contributed to the fund to date. Unfortunately Finlay is still fighting this horrid disease and it looks like he'll be fighting a while longer yet before he can get back to being "just a kid".
Katey continues to post often on the facebook page about Finlay and the Higgs family - you can find their page here - www.facebook.com/friendsoffinlay
September is Childhood Cancer Awareness month. Unfortunately Childhood Cancer is one of the least funded cancers in terms of research and support. This totally sucks for kids like Finlay :(
I look forward to your continued support of Finn and the Higgs family.
Thank you to absolutely everyone who has contributed to the Friends of Finlay fund. Having a child with a long term illness leaves families in a financially crippling situation, so this money goes a long way in ensuring that the Higgs Family can get to the important task of looking after the welfare of Finn and their other beautiful children.
Finlay celebrated his 2nd birthday yesterday, on July 23rd, and we all wish him a wonderful year!
Thank you xx