Fighting for Paislee

$20,435 of $50k goal

Raised by 335 people in 9 months
Jenni Thomas
on behalf of Janee Thomas
 KANSAS CITY, MO
Late June 27th, 2016 Paislee, was admitted to Children's Mercy Hospital for Thrombocytopenia. They wanted to run more tests as there were symptoms present that were very concerning. About 2 am that following morning they told us it was Leukemia. There were complications diagnosing her so they ran more tests, tried to get a sample of her bone marrow, and were unsuccessful so they took a piece of her bone. That Thursday, they officially diagnosed her with Acute Myelogenous Leukemia (AML). There are many subtypes to this disease and Paislee had the worst of it. Only 3% have this disease resulting in only a 50/50 chance. They started chemo immediately 3 hours a day, every 12 hours. She has developed a serious rash as a side effect to one of her chemos, has cellulitis, and fluid in her hip joint causing her leg to swell significantly.  She is on an antibiotic for these things and it's helping. They have placed a feeding tube because her throat is starting to develop mucositis.

Janee has taken a leave of absence from work so she can help support Paislee during this time. Paislee will be in and out of the hospital doing treatments. The timeline for that is unknown at this time, that relies on how Paislee responds to all of her treatments and if different health levels stay normal. She has already recieved several blood tranfusions and platelets to help with these.

Our little P is doing the best she can and has had her good and bad days. When she is fever free, she is able to cruise the halls in a little car (blue is her favorite) and has a little family of pigeons outside her window that she has named Walter and Penny (okay Janee named them) that she loves to watch.

There are fundraisers in the works, including bracelets and t-shirts that we will be getting in to help raise money. I will update everyone on those events when the dates and times are set up.

Thank you to everyone for your continued prayers and support for our family. It's overwhelming to see how loved our little warrior is! No one fights alone and she WILL beat this!

I will be posting updates here when I can, check back to see her journey.
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Update 65
Posted by Jenni Thomas
4 days ago
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I wanted to wait and give Janee and Jason privacy until they were ready to announce it but here is the update on P. We need our prayer warriors more than anything right now.

Copied from Janee's fb: The next hardest post I've ever had to make.
On March 17th, we went to clinic for platelets. After talking with our NP we ran more tests to Just makes sure everything was looking ok. As the tests came back we were pulled into a private room and told Paislee had 30% blasts in her blood. The most we've ever had was 12% and that was June 27 2016. The moment we found out P had cancer. Paislee's bone marrow is completely filled with cancer and its spilling out into her blood stream. There is nothing more we can do. We immediately knew what was happening. Our daughter is dying. As we clung to our daughter, bawling how sorry we were, and to not be scared because mommy and daddy would never leave her side. We felt a part of us dying that day when we had to sign the do not recesitate form. We were handed the hospice folder. We have put P on 2 low dose chemos to help break down the blasts In her blood to make her feel better till the day comes. She's been put on methadone for pain along with oxy. We were told we probably won't know its comimg, she will start bleeding internally and just fall asleep and wont wake up. The timeline is weeks to a month, and a high number would be 3-6 months. But that's probably not the case. There is no chance of bone marrow transplant, no chance of me saving my babies life. And we should fill Paislees last days doing everything we want to do with her. We are heartbroken, devastated, and just sick to our stomachs. We are spending everyday holding her closer, trying to remember what she smells like, how warm her skin is, the sound of her voice. Everynight she sleeps between us, I hold her hand and don't sleep much, I want to make sure shes still breathing. We are asking for no visitors, we need our time with P. Because we dont know how much time she might have left. We ask for a miracle, to save her. We cannot bury our only baby girl. We ask for people to sign up for the meal train so we will have meals to eat everyday. Please drop to your knees and beg for God to save our baby. She needs a miracle.
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Update 64
Posted by Jenni Thomas
14 days ago
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1
1
It's been a while since I've updated, so I thought every one needed an update. P is at home right now, she still has no immune system so visitors unfortunately are not allowed at this time. She is doing ok, she is still getting sick from the chemo she was on, and she has PTSD so she doesn't want to sleep alone most of the time. She's still not eating much so she has to be on her feeds to keep her calorie intake up.
She is enjoying being able to run around and play with her cat and dog but unfortunately is not 100% herself yet. We are mentally preparing for her to get her Bone Marrow Transplant soon with Janee being her donor. Please say some prayers as it will be a process for both Janee and Paislee to try and save P's life. It is our only option at this point.
Also, I would like to thank all of the people that have set up fundraisers, sent gifts, those who have helped in anyway, that have reached out to us supporting not only her but our family as well. It's overwhelming to have this amount of support and have people understand the severity of her health issues. You all have amazing hearts, this process is something that can't be explained and is not something that any family should have to go through. Since her diagnosis it's been a roller coaster of emotions and we take every day as a blessing that she is still here with us. So thank you for the kind gestures and prayers it will never be forgotten and it's a good feeling to know there are still good people in this world.
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Update 63
Posted by Jenni Thomas
28 days ago
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On Saturday P was moved to the ICU due to her fevers being close to 105 (they wouldn't break) and her respiratory rate being high. She has 2 infections e-coli and strep mitis, strep mitis can be deadly but they are being treated with antibiotics and seems to be helping. She has now gone about 48 hours without a fever and has been moved back on the normal unit. She is being kept as comfortable as possible with fentanyl, ativan, and is on oxygen while she sleeps. We are still asking for privacy as she has many obstacles to overcome. However we thank you all so much for your continued prayers and support you have for her. Please keep the prayers coming her skin is mottling due to poor circulation so she is being watched very closely. Please continue to pray for our little fighter she needs it most right now! I can only post one pic of her on here so to see the others go to my fb.
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Update 62
Posted by Jenni Thomas
1 month ago
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Lots of prayers today, P is not doing well her body is working over time due to the infections. We are asking for privacy right now so our family can have time to focus on her and the situation.
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Read a Previous Update
Lisa Hoffman
9 months ago
5
5

D'CREAMERY in Kearney, MO is also collecting for Paislee. There is a bucket for donations on the counter! Every little bit helps! #fightforpaislee

+ Read More
Kimber Stevens Vollmer
3 months ago
4
4

Do you have a match if your precious baby? If not What can we do to help find a match or to be a donor?

+ Read More
Paula Carpenter Wilkinson
6 months ago
2
2

We would love to donate directly. If someone could reach out to us we would love to help!

+ Read More
Diana Richardson
3 months ago
1
1

Thank you for the updates!!! God bless you all!!

+ Read More
Jg Griffey
3 months ago
1
1

praying!!! i belive in miricles because im also a miricle of god myself i was given 3 days to live by some of the best doctors in the country after i was born on sunday febuary 3rd 1991 thats because i was 3 months premature and couldnt breath my lungs we so underdeveloped had to have a lung biopsy it was extreamly risky when i was born just minutes earlyer but everyone prayed and on the 3rd day when i was supposed to go to heaven i was saved!! :) that was 26 years ago and thats just one the doctors were stuned :) at 2 years old i started to talk but then 6 months later i stopped compleatley i could only scream and cry i had thoughts in my brain but i could not phisicly talk the doctors didnt know why so i had to learn to talk again every sound every word the Lord Jesus again helped me and now i can run without any complecations and talk and tell people im healthy because of the lord and his miricles :) i tell my story to help inspire all who need it and tell the world that The Lord Jesus is full of miricles and there is hope May God Bless Paislee And her entire family as well as the Doctors, Nurses, Specialists, Theropy , financial , and spiritual healing In Jesus name amen!!! :)

+ Read More
Coco Fadden Hudlemeyer
8 months ago
1
1

Thank the Lord!!! I am so happy for your angel!!!! ♥

+ Read More
Tara O'Connor VanderValk
8 months ago
1
1

Ahhhhh!!!!! Been praying for this sweet angel! Thank you God!!!

+ Read More
Coco Fadden Hudlemeyer
9 months ago
1
1

Love and prayers for all of you and God bless Paislee!

+ Read More
Tracy Gordon-Shoate
9 months ago
1
1

Praying for this little angel. God bless

+ Read More
Ryan Pearson
4 days ago

My heart is breaking reading your most recent update. As a single father to a beautiful 3 year old daughter, I can't imagine how scared y'all must be, and the pain y'all are feeling. I pray that if it is God's will, he reaches down and heals your beautiful daughter. If it is her time, I pray your family finds peace in knowing she is going to be with our heavenly father who will hold her tight for you in a mansion he has built, in a city with golden streets, until you see her once again.

+ Read More
Isaac Leite
3 months ago

I am willing to donate bone marrow

+ Read More
Sonja Bachman
2 months ago

Praying for Paislee and her family ♡

+ Read More
Sarah Pomato
2 months ago

Is there anyway to donate other items to your family? I donated here but I'd love to help out in other ways!

+ Read More
Jill Nollett
3 months ago

Great news! Praying for that beautiful girl and the whole family!

+ Read More
Sarah Beard
3 months ago

Have you guys tried calling st jude they will pay for everything

+ Read More
Tina Mey
3 months ago

How do people go about getting tested for a bone marrow transplant?

+ Read More
Shayla Beth Strahle
3 months ago

Has she found a match for a donor?

+ Read More
Katelynn Michelle Louise Thomas
3 months ago

I could donate directly if they are willing from Leavenworth Kansas

+ Read More
Cheyenne Nelson
3 months ago

If someone could please message me on fb. I'd like to see what id have to do to donate bone marrow for lil miss!

+ Read More
Kimber Minet
3 months ago

I am praying for you P you are a little warrior. I will b praying for you,your family and the doctors. I am pray in right now for your pain to ease.

+ Read More

$20,435 of $50k goal

Raised by 335 people in 9 months
Created July 7, 2016
Jenni Thomas  
on behalf of Janee Thomas
$10
Anonymous
1 day ago
$100
Anonymous
1 day ago
DH
$50
Dick, Peggy Hess
1 day ago
$15
Hope Luker
2 days ago

Your family is in my thoughts.

LM
$100
Lindsay Moorman
2 days ago
$200
Natalie Denae
2 days ago

Praying, praying, praying!

$10
Monica Dallas
2 days ago

I'm so sorry for your loss and I don't know them personally but her story got to me I hope this little amount works

SM
$5
shagun misra
3 days ago
KT
$50
karen teter
3 days ago

I will pray that she knows the love of God, along with her family & friends and that as she is going through this cancer that she will have her pain under control. And that the family knows that she is in the palm of God's hand and she will be home/heaven with Blake when it is her time to be with the Lord.

$30
Anonymous
3 days ago
Lisa Hoffman
9 months ago
5
5

D'CREAMERY in Kearney, MO is also collecting for Paislee. There is a bucket for donations on the counter! Every little bit helps! #fightforpaislee

+ Read More
Kimber Stevens Vollmer
3 months ago
4
4

Do you have a match if your precious baby? If not What can we do to help find a match or to be a donor?

+ Read More
Paula Carpenter Wilkinson
6 months ago
2
2

We would love to donate directly. If someone could reach out to us we would love to help!

+ Read More
Diana Richardson
3 months ago
1
1

Thank you for the updates!!! God bless you all!!

+ Read More
Jg Griffey
3 months ago
1
1

praying!!! i belive in miricles because im also a miricle of god myself i was given 3 days to live by some of the best doctors in the country after i was born on sunday febuary 3rd 1991 thats because i was 3 months premature and couldnt breath my lungs we so underdeveloped had to have a lung biopsy it was extreamly risky when i was born just minutes earlyer but everyone prayed and on the 3rd day when i was supposed to go to heaven i was saved!! :) that was 26 years ago and thats just one the doctors were stuned :) at 2 years old i started to talk but then 6 months later i stopped compleatley i could only scream and cry i had thoughts in my brain but i could not phisicly talk the doctors didnt know why so i had to learn to talk again every sound every word the Lord Jesus again helped me and now i can run without any complecations and talk and tell people im healthy because of the lord and his miricles :) i tell my story to help inspire all who need it and tell the world that The Lord Jesus is full of miricles and there is hope May God Bless Paislee And her entire family as well as the Doctors, Nurses, Specialists, Theropy , financial , and spiritual healing In Jesus name amen!!! :)

+ Read More
Coco Fadden Hudlemeyer
8 months ago
1
1

Thank the Lord!!! I am so happy for your angel!!!! ♥

+ Read More
Tara O'Connor VanderValk
8 months ago
1
1

Ahhhhh!!!!! Been praying for this sweet angel! Thank you God!!!

+ Read More
Coco Fadden Hudlemeyer
9 months ago
1
1

Love and prayers for all of you and God bless Paislee!

+ Read More
Tracy Gordon-Shoate
9 months ago
1
1

Praying for this little angel. God bless

+ Read More
Ryan Pearson
4 days ago

My heart is breaking reading your most recent update. As a single father to a beautiful 3 year old daughter, I can't imagine how scared y'all must be, and the pain y'all are feeling. I pray that if it is God's will, he reaches down and heals your beautiful daughter. If it is her time, I pray your family finds peace in knowing she is going to be with our heavenly father who will hold her tight for you in a mansion he has built, in a city with golden streets, until you see her once again.

+ Read More
Isaac Leite
3 months ago

I am willing to donate bone marrow

+ Read More
Sonja Bachman
2 months ago

Praying for Paislee and her family ♡

+ Read More
Sarah Pomato
2 months ago

Is there anyway to donate other items to your family? I donated here but I'd love to help out in other ways!

+ Read More
Jill Nollett
3 months ago

Great news! Praying for that beautiful girl and the whole family!

+ Read More
Sarah Beard
3 months ago

Have you guys tried calling st jude they will pay for everything

+ Read More
Tina Mey
3 months ago

How do people go about getting tested for a bone marrow transplant?

+ Read More
Shayla Beth Strahle
3 months ago

Has she found a match for a donor?

+ Read More
Katelynn Michelle Louise Thomas
3 months ago

I could donate directly if they are willing from Leavenworth Kansas

+ Read More
Cheyenne Nelson
3 months ago

If someone could please message me on fb. I'd like to see what id have to do to donate bone marrow for lil miss!

+ Read More
Kimber Minet
3 months ago

I am praying for you P you are a little warrior. I will b praying for you,your family and the doctors. I am pray in right now for your pain to ease.

+ Read More
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