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Fighting For Bella

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Sweet Bella is almost 2 years old, and has been unwell since birth. She was a very lethargic & fussy baby. At that time we didn't think there was serious problem until she was 9 months old, when a 106 degree fever struck. That was the first time she was rushed to the hospital. At the hospital she experienced a febrile seizure, and almost died from a massive kidney infection. Since then she's been very sick. Just in the last 100 days she's been sick 67 times. The major problem is a recurrent/chronic fever, that has no obvious symptoms, but causes internal inflammation, and severe debilitating pain. Bella also has a pituitary brain tumor, which is very rare for someone her age; but, is a separate issue, and isn't the cause of most of her problems. Bella also has complicated/unexplained digestive issues, severe allergies, and has been losing weight. She is seen by top specialists in our area, and in over a year, no one has been able to figure out a diagnosis. She is seen by: Infectious Disease, Immunology, Oncology/Hematology, Neurology, Neurosurgery, Allergy, rheumatology, endocrinology, and her primary pediatrician regularly. We are in the process of narrowing it down, and hopefully will have answers soon.
My Husband & I are employed, and have health insurance, that we pay for privately. Although we both earn a salary, part of my pay is project, or commission based. I have not been able to go work to earn the money we need, for Bella and our family. Unfortunately, the insurance doesn't cover the expenses. Bella is seen by multiple Dr's per week, or is in the hospital. She goes through expensive testing weekly, and requires medicine. In effort to save her life, we have accrued copious amounts of debt, and bills. We have run out of money, and can no longer afford her medical care, and we may need to go out of state to find answers.
I never imagined it would come to this, and I struggle asking for help, but for my daughter, and family: will you help us?
From the bottom of my heart, thank you.

Organizer

Rachael Grushko
Organizer
Berkley, MI

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