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Fighting For Luke

$27,507 of $47,000 goal

Raised by 286 people in 26 days
Created April 28, 2018
Four year old Luke McLetchie has been diagnosed with severe Acquired Aplastic Anemia (AAA) which is a rare, life-threatening bone marrow disease. Only 2 children in one million are diagnosed each year in North America.  His bone marrow is not producing red blood cells, white blood cells or platelets which puts him at risk for an overwhelming infection or hemorrhage. The best treatment for AAA is a bone marrow transplant however his brothers and parents are not a match. A world wide search for an unrelated bone marrow donor has been started. Meanwhile Luke is receiving blood transfusions and platelet infusions on a regular basis and will soon start treatment of immunosuppressant drugs at BC Children's Hospital. 

Luke is a happy, active boy who loves playing and wrestling with his older brother Cole and his (fraternal) twin Dane.  He enjoys biking, skating, skiing, running and soccer.  Since his illness he cannot participate in these sports because of the danger of bleeding.  He cannot go to his daycare or anywhere with lots of kids because of the risk of infection that he cannot fight with his low white blood cells. Fortunately he also likes drawing, painting, puzzles, books and Lego which are safe activities for him.          

His mom, Jodee, is a single mom with shared custody of the three boys.  She has had to take unpaid leave from her job to care for Luke at home and to take him to appointments at Children's Hospital.  Employment Insurance does not cover housing and household costs for the family. The length of time that his treatments last depends on his response to immunosuppressant therapy and if a bone marrow donor can be found.  It will be many months or longer.  Luke needs his mom with him and she needs help financially to provide for him and his brothers. Luke's dad, Iain, is very involved in Luke's care however he is unable to provide financially for two households.

For those of you who know Jodee personally you can etransfer a donation directly to:   fightingforluke2018@gmail.com  as GoFundMe does take off an adminstrative fee for all donations. 

To support Luke and other children you can give blood at your local blood bank.  Also, consider signing up at the Bone Marrow Registry if you are between the ages of 17 and 35.  Thank-you!
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Luke now has twice weekly appointments at BC Children's Hospital for next three to six months. He was there yesterday to receive a platelet infusion via his PICC line (a long term catheter inserted into a vein in his arm to a large vessel near his heart). He is happy that he doesn't have frequent needle pokes but the PICC further restricts his activities, no swimming or deep baths. He has been on some outings, away from crowds, wearing a mask for his protection with his compromised immune system.

Luke's family continues to appreciate all the support they are receiving.
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Luke was admitted to BC Children's Hospital on Monday to have his PICC line inserted. The PICC is a long catheter that goes into a vein in his arm to a large blood vessel near his heart and can remain in place for many weeks. Yesterday he started on a three month course of immunosuppressant therapy. He will receive 4 days of drugs in hospital via the PICC line then three months of 3 other oral medications at home. He will require frequent blood tests, blood transfusions and platelet infusions, all of which can be done through the PICC line. The nurses have taught him how to give his doll the medications! The search for a bone marrow match continues.

Persons between the ages of 17 and 35 years may be eligible to register. More information can be found at https://blood.ca/en/onematchhowto Donating blood also helps Luke and other kids in need.
Luke's family is thankful for all your support and encouragement.
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Luke was at BC Children's Hospital this morning to meet with his doctor regarding his care. Because his brothers and parents are not a match for a bone marrow transplant the next treatment option is a three month course of immunosuppressant therapy to hopefully help his bone marrow to start producing blood cells.

He is waiting for insertion of a PICC line (a special IV that can stay in place for several weeks). Once this line is in place Luke can receive the medications he needs as well as his regular blood transfusions and platelet infusions. He also won't need to be poked for his blood tests, they can withdraw blood samples from the line.

The search for an unrelated bone marrow donor is ongoing in case the immunosuppressant therapy is not successful. Luke remains at risk for infections or hemorrhage so his activities are restricted: no sports or exposure to potentially infectious people.

Jodee and Iain are so grateful for the outpouring of encouragement and support for their family and relieved that Luke will have his mom at home with him during this difficult ordeal. Thank you all!
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$27,507 of $47,000 goal

Raised by 286 people in 26 days
Created April 28, 2018
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CR
$50
Carol Robbins
1 hour ago
$200
Anonymous
8 hours ago
GK
$100
Gary Kershaw
11 hours ago
DR
$100
Donna Rand
11 hours ago
SO
$50
Sona Osmanzai
1 day ago
$200
Anonymous
3 days ago
AA
$50
Alexandra Arsene
4 days ago
JJ
$100
Jenny Judge
5 days ago
AA
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Anna Atkinson
7 days ago
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