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Fighting For Luke

$30,319 of $47,000 goal

Raised by 319 people in 6 months
Created April 28, 2018
Four year old Luke McLetchie has been diagnosed with severe Acquired Aplastic Anemia (AAA) which is a rare, life-threatening bone marrow disease. Only 2 children in one million are diagnosed each year in North America.  His bone marrow is not producing red blood cells, white blood cells or platelets which puts him at risk for an overwhelming infection or hemorrhage. The best treatment for AAA is a bone marrow transplant however his brothers and parents are not a match. A world wide search for an unrelated bone marrow donor has been started. Meanwhile Luke is receiving blood transfusions and platelet infusions on a regular basis and will soon start treatment of immunosuppressant drugs at BC Children's Hospital. 

Luke is a happy, active boy who loves playing and wrestling with his older brother Cole and his (fraternal) twin Dane.  He enjoys biking, skating, skiing, running and soccer.  Since his illness he cannot participate in these sports because of the danger of bleeding.  He cannot go to his daycare or anywhere with lots of kids because of the risk of infection that he cannot fight with his low white blood cells. Fortunately he also likes drawing, painting, puzzles, books and Lego which are safe activities for him.          

His mom, Jodee, is a single mom with shared custody of the three boys.  She has had to take unpaid leave from her job to care for Luke at home and to take him to appointments at Children's Hospital.  Employment Insurance does not cover housing and household costs for the family. The length of time that his treatments last depends on his response to immunosuppressant therapy and if a bone marrow donor can be found.  It will be many months or longer.  Luke needs his mom with him and she needs help financially to provide for him and his brothers. Luke's dad, Iain, is very involved in Luke's care however he is unable to provide financially for two households.

For those of you who know Jodee personally you can etransfer a donation directly to:   fightingforluke2018@gmail.com  as GoFundMe does take off an adminstrative fee for all donations. 

To support Luke and other children you can give blood at your local blood bank.  Also, consider signing up at the Bone Marrow Registry if you are between the ages of 17 and 35.  Thank-you!
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It’s been 4 months since Luke was first admitted to children’s hospital. He will complete his round of immunosuppressive therapy next week.

There have not been any real signs that it is working..... yet. Drs are waiting until the end of August to determine his next treatment plan. They will also do another bone marrow biopsy mid August.

If Luke partially responds to the immunosuppressive therapy by the end of August (ie. blood counts improve but are still low) they will do another 3 month round of immunosuppressive therapy.

If there’s still no response by the end of August, Luke will get a bone marrow transplant. Drs have NOT found Luke a match on the unrelated bone marrow registry. The alternative is to use Dane or Cole even though they are half matches (it’s not the ideal option, but it is an option and CAN work).

We are so incredibly grateful for all the support we’ve received. The last months have been so incredibly hard and your support has helped immensely. Thank you. Thank you. Thank you. .
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When Christina the Child Life Specialist at BC Children's Hospital lends you a Nintendo Switch to pass the time during your blood transfusion....

Thank you to those who can donate blood and do! We are so grateful to whomever you are. Luke is continuing his immunosuppressant therapy as well as receiving frequent platelet infusions and blood transfusions. The search for a bone marrow match continues.

Joining the Bone Marrow Registry is relatively simple. You must be in good health and between the ages of 17 and 35, although if you are a match you can donate at an older age. You can register online and Canada Blood Services will mail you a kit to complete the process. For more information go to
https://blood.ca.en/onematchhowto
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When Christina the Child Life Specialist at BC Children's Hospital lends you a Nintendo Switch to pass the time during your blood transfusion....

Thank you to those who can donate blood and do! We are so grateful to whomever you are. Luke is continuing his immunosuppressant therapy as well as receiving frequent platelet infusions and blood transfusions. The search for a bone marrow match continues.

Joining the Bone Marrow Registry is relatively simple. You must be in good health and between the ages of 17 and 35, although if you are a match you can donate at an older age. You can register online and Canada Blood Services will mail you a kit to complete the process. For more information go to
https://blood.ca.en/onematchhowto
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Luke now has twice weekly appointments at BC Children's Hospital for the next three to six months. He was there yesterday to receive a platelet infusion via his PICC line (a long term catheter inserted into a vein in his arm to a large vessel near his heart). He is happy that he doesn't have frequent needle pokes but the PICC further restricts his activities, no swimming or deep baths. He has been on some outings, away from crowds, wearing a mask for his protection with his compromised immune system.

Luke's family continues to appreciate all the support they are receiving.
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$30,319 of $47,000 goal

Raised by 319 people in 6 months
Created April 28, 2018
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$75
Anonymous
15 days ago
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Marilyn McBride-Fox
3 months ago
$100
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3 months ago
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3 months ago
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