Morgan James Krisciunas was  born on  the 4th may 2007 by emergency caesarean section following a routine visit to the midwife where a dropping heart rate was discovered. Morgan spent the first 2 weeks of his life in intensive care before returning to Peasedown to start his life.
At 6 months old Morgan was diagnosed with spastic quadriplegia cerebral palsy which means he hasn’t had the childhood his young parents had planned for him and parenthood has been very different from what his parents had expected. Morgan also suffers from epilepsy (although very well controlled with medication) and is visually impaired, he can see colours, light/dark, outlines but nothing more.
Morgan has been fed via a gastrostomy peg since he was 2 years old after countless chest infections and one admittance to intensive care for pneumonia (as a result of food going down into his lungs and causing an infection).
In June 2013 Morgan was fitted with a baclofen pump as the high doses of oral baclofen were no longer effective in helping Morgan’s muscle tone. The surgery was life changing for Morgan and his muscle tone improved but unfortunately after 2 weeks Morgan developed an infection due to the metal used in the pump and it had to be removed.  Medication was not successful in treating the infection and it was 6 months before Morgan was able to have a new pump fitted. This surgery took place on New Year’s Eve 2013 and although the pump is still working  the second pump never had the positive impact on Morgan the first pump did. The pump sits under the skin just below the ribs and holds 20mls of baclofen, it then has a catheter that goes around into his spine meaning that the baclofen is constantly trickling through and should be more effective this way.  This means that Morgan’s muscle tone is still very high causing him to be in constant pain and suffering a great deal of discomfort. Morgan struggles to maintain his weight as he's constantly burning calories fighting against the tightness of his muscles

 Despite all of these issues the family try to give Morgan a fulfilling and happy childhood whilst loving, caring and parenting this amazing boy.

When able Morgan attends Threeways School in Bath which is amazing – Morgan enjoys school and takes part in 2 after school activities (sensory club and music therapy) as well as having a weekly session in the hydrotherapy pool.
Morgan loves swimming !!  Swimming is his absolute favourite! He's like a different child the minute his feet touch the water, he throws himself back, kicking his legs and laughing and screeching! Music also plays a big part, he listens to audio stories every night before he goes to bed and enjoys music on his iPad. There is something very soothing for Morgan when it comes to music, he really engages with this.
Sensory stimulation is very important. Life with very limited sight must be very difficult but he does react when a light goes off and will move his head to look around, fibre optics, lasers anything colourful is also very comforting and stimulating for Morgan.

 Morgan has spent 17 days in hospital (14 of which were intensive care) in June this year and he is due to go into hospital shortly where  he will undergo another procedure on his legs and ankles to release the tendons as they shortened as a result of his high muscle tone. After the operation he will  be in casts for 6 weeks and have to wear braces at night to keep his legs straight. Morgan is now 8 years old and needs to be carried up and downstairs to the bathroom and his bedroom and this will be made even more difficult after this surgery. Morgan is nearly 4ft tall and his mum is only 5ft 3 and this is going to be another very testing time for this family. 

 The family and Morgan are fighters and have overcome so many hurdles but the latest obstacle to be put in their way leaves the family at breaking point, In mums words  “There is no longer a light at the end of our tunnel just a future of uncertainty that Morgan doesn't deserve” the reason for this is that the family were looking forward to an extension being built on their home that would provide Morgan with a ground floor bedroom and wet room which would mean that Morgan wouldn’t have to be carried up and down the stairs to get a bath and to go to bed. The extension was due to be completed by Christmas but due to delays  the costs of the works have increased by £15,000 and the grant the family have for the works do not cover this increase,

 The extension is not a luxury it’s an absolute necessity for this family . The new bedroom that is to be created for Morgan isn’t huge and the family don’t want gold plated taps, they just want their home adapted to improve Morgan’s quality of life. Carrying Morgan up and down stairs and lifting him in and out of the bath is a painful and potentially dangerous situation for everyone.

£15000 isn’t a great deal of money – we are looking support to ensure that Morgan and his family get the extension and the best quality of life they can have.

Morgan and his family enjoy spending time at a local hospice which is great, Morgan also enjoys school and his clubs but I feel it’s only right that Morgan and his family should be able to enjoy family time together in their own home

A blog has been set up to keep people up to date with how Morgan is doing and how we are getting on with getting the extension sorted.
Morgan and his family are so grateful for everyones support and we hope that we will soon be able to get work started.
https://peasedown1.wordpress.com/

We are now looking for donations to help Morgan and his family get the adaptations made to their home.
We really do appreciate every penny that you can donate to give Morgan and his family the home they deserve