Help Us Get To Cleveland Clinic!

Tyson was diagnosed with focal epiplsey when he was just 2 years old, but this February we were told they got it wrong and they stopped his medication.

He is currently experiencing another regression in his skills. This time, we were able to monitor him with an EEG during the regression, which revealed increased abnormal brain activity and a higher risk of seizures. Since the activity is concentrated in the back of his brain only, any seizures he may be having are likely very brief and, given his young age, hard to nearly impossible to identify especially when he is not hooked up to an eeg.

Thankfully, we’ve secured an appointment with the head of epilepsy at Cleveland Clinic, who wants to see Tyson in 30 days for an extended 3-5 day EEG. Normally, I attend these appointments alone so Jerale doesn’t have to miss work, but this trip requires us to travel a long distance, and he will need to come along to help. Additionally, the visit falls over my birthday, and to be honest, I’d rather not be so far away from half of my family during that time.

We’re asking for some help to cover the cost of gas, food, and lodging during the trip. I’m applying to stay at the Ronald McDonald House, but there’s no guarantee a room will be available. For now, I’ve included hotel costs in our estimate, but if we secure accommodations there, I’ll adjust the amount accordingly.

We understand these are challenging times for many, so please don’t feel pressured to give if it creates a strain for you. Your support, whether it’s a donation, a share, or simply sending well wishes, means the world to us. Thank you for standing by our family.