My name is Amanda Moats, and I am writing this for my sister Kaylee Moats, who has been diagnosed with a rare condition called MRKH (Mayer-Rokitansky-Kuster-Hauser Syndrome). We received this crushing news in the doctor’s office when she was 18 years old, after never having a menstrual period. After having a MRI completed, the doctor determined that she did not have a uterus, cervix, vagina or vaginal opening. As you can imagine, it was hard to process all of this information and we were all heartbroken.
As a sister, there was nothing worse than getting that phone call and knowing that my sister’s dreams for her life were changed so drastically in an instant, with nothing I or anyone else could do to make it better.
Kaylee will never be able to carry her own children. The dreams we had of raising families together are going to look a little different than we had initially planned. This diagnosis raises a lot of fears, concerns, and insecurities in Kaylee about her identity and her future. The options of surrogacy and adoption give her some hope but she will never be able to carry her own children. After receiving the news, she decided to focus on school and address the problem later on when she was ready.
Here is some more information on the condition below.
Vaginal agenesis is a congenital disorder of the reproductive system in females that affects approximately 1 in 5,000 females. In this disorder, the uterus and the vaginal canal do not develop properly during the pregnancy and the female is born with a very short vaginal canal or no vagina at all. The condition is typically not detected until puberty when the teenage female is delayed in getting her menses or it may be discovered with first attempts at having sex.
Kaylee just graduated from college in May and knew it was time to get with a doctor and see what could be done. Through many hours of research and direction from the MRKH foundation, we have found two surgeons in the Atlanta area that are well equipped to help. They can perform a surgery that will create a vaginal opening, allowing Kaylee to be able to have an intimate relationship like any other woman would experience. It would give back a part of her that has been missing since birth and dramatically improve her quality of life. The surgery lasts 1-2 hrs and has a 96% success rate. As you can imagine, the whole family was very excited about this and Kaylee was ready to pursue the surgery. After a phone conference with the nurse liaison in Atlanta, we were told that the insurance companies consider this a cosmetic surgery and will not pay for it. We were crushed again as are many of the other hundreds of girls trying to get this surgery completed. We were left unsure about how to proceed, and how to pay for these expenses.
After reading through some of the MRKH blogs, many girls have been able to raise funds through a Go Fund Me page. We have decided to take this path and see what funds we are able to raise to help fulfill Kaylee’s dream. The cost of the surgery is $15,000 plus hotel, counseling and airfare to Atlanta. We would be forever grateful for anything you can donate. No amount is too small. Thank you for getting Kaylee one step closer to her goal and allowing her to have a brighter and happier future.
- June Nelson
- Waka Nishida
- Marvens Jean pierre
- Michael Fogg
Organizer and beneficiary
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